I definitely agree with Traveler. I've connected my lyme pattern to a lot of different things, but never factored in the seasonal pattern. Mine seems to be very similar to your kids, actually....
Hey all! I'm super nervous/anxious/scared to be starting antibiotics again and want to be prepared for whats coming. I've been sick for 5 years, got diagnosed with Lyme & Co 12/31/14. I was on...
Thank you much, sweetpeaisme! More options and recommendations are always welcome :) Hope you're feeling well!...
Thank you for the information Chapelle. I have my email activated and have already requested for physician referrals via the organizations you listed, but also like to get personal...
Hey all. I currently have a great LLMD, that was actually the one to diagnose me after being sick for 4 years. I have been seeing her for about a year now and started with oral antibiotics, which i...
Silly SHeep - OMG The Inka Trail was absolutely amazing. Words nor pictures do it justice. I was the hardest thing I've ever done in my life and cried during a lot of it, but I survived and it was so...
Chapelle- I definitely went against my LLMDs wishes when I stopped the oral antibiotics, but I had to. I didn't want to feel or look sick on my wedding day and during my honeymoon. I know that sounds...
Hey all! So I have been sick since 2011, finally got my lyme diagnosis 12/31/14 and immediately started treatment with 3 different oral antibiotics. I was on them through March when I decided I...
Thank you all so much for responding with great information, support and congratulations for everything that happened last year! Some days it helps just knowing that I'm not alone in the battle, so...
Hey guys! It's been awhile since I've posted... I got married, went on our honeymoon, moved at home and work, attempted to start working full time as an RN again, and had my best friend get married...
Sorry for the delay guys. I've been in bed for a couple days now. Thank you so much for all of the suggestions and encouragement. I am meeting with my herbalist on Saturday, so hopefully she can help...
So, few different topics I'm looking for some opinions and/or personal experiences with. I am getting married in August, and I know that the way I look should be the last thing on my list of worries...
I am an RN and had to deal with this same situation in October. I'm sure policy is different everywhere, but in my case I just had to get a form from occupational health to have my MD fill out saying...
Rowingmom- thank you so much for typing all of that our for me. I'm so glad your daughter is doing so well and reading that has definitely given me some much needed encouragement!!! DaveNJ41- Yes! oh...
I just got an email from my doctor saying that she wants to take me the herbal route. I was on Biaxin, Ceftin and Tinidazole for 3 months. At the 3 month mark I was feeling so, so much worse with a...
Yea, my gut is the biggest problem right now. The only reason she is changing me to IM for a month is to give my gut a chance to recover and rest. So, I really hope that the die off doesn't upset my...
So, the IM route can make you feel just as bad as oral? I was hoping that I would feel better off oral antibiotics and it would give my body some time to recover since it would just be one antibiotic...
Hey all! I had an appointment with my LLMD today and since my GI symptoms have progressively gotten worse, she has decided to give me a one week antibiotic holiday and then do IM penicillin for 3...
Yes, I am detoxing as much as I can... baths, activated charcoal, burbur, lemon water, alka seltzer gold, dry brushing and the list continues. Fever was gone for about 12 hours and now it's back :(...
I'm hoping they either go away or I guess I get sued to them. Right now they're really making me feel just overall awful :(...
Thanks Simela! That's a good way to look at it. Makes sense why my fatigue has been through the roof with my immune system working so hard. Hopefully they will be better today!...
Hello there everybody! Hope you all are feeling as well as you can. Me on the other hand have had constant fevers for the last 24 hours. Since starting treatment the beginning of the year, I've...
Lymie Girl- That clears a lot up and makes so much sense. I think my body might be backward or something... I have been on my first antibiotic regimen for 5 weeks and have felt really, really bad...
Glad you're feeling a little bit better! I can't seem to catch a break. I have been feeling awful since I started my antibiotic regimen. I had a couple days last week that I was feeling a little...
Definitely sounds like a herx to me as well. I pulse two consecutive days every week, taking Tini 500mg twice a day. I'm not going to lie, within an hour of taking my first dose I was miserable. All...
Simela1- Sounds like a plan to me. Luckily my dr will treat me for Lyme and the co-infections she thinks I have based on symptoms, so move forward with treatment we will....
I don't have any words of wisdom to add, just empathy. I feel the exact same way. I have countless To Do lists that I've made over the last month and I've crossed barely anything off. I used to be...
Good point Girlie. I definitely think it would mess with my mind a little, and I need it to stay as positive and worry free as possible! Lymedisease1 - I have no doubt that I have Lyme & Co. I've had...
Thanks every body! This makes me feel much better about not getting it done. I trust my LLMD completely and she is treating me for Lyme & co based mainly on symptoms and that first positive 23 band....
I don't know how much this will help, but I've been dealing with migraines since I was 11. Now, I do not drink soda or eat processed sugars, but when I have a migraine that excedrin won't kick down,...
I had my first follow up with my LLMD on Friday. All went well considering. We changed some supplements and herbs around, antibiotics stayed the same (Biaxin 500mg daily, twice a day, Ceftin 500mg...
So, if the cell cycle for lyme is every 4-6 weeks, what does that mean exactly? Will you start to feel a little better around that time and then crash again, or feel your worst around that time?...
Thanks Traveler! I will definitely add it to my daily routine. What's one more thing, right? haha And thank you for the heads up about not spitting it into the sink, because that is definitely where...
Thanks for all the tips and reassurance. I did read that band 23 is specific to lyme and lyme alone so that made me feel a little better. Also, I don't think there is anyway I would be herxing if I...
Thanks Travelor! My first thought was of douse, "did i get diagnosed with another wrong ailment?" I know that's extreme but it's been 4 years of my life, my 20s, being interrupted by my health and I...
Thanks ela! I got completely freaked out when I saw everything come back negative, I'm still new to this. My next question was how long those results take! haha For detox I'm doing Burbur, detox...
I see my LLMD for my second visit on Friday so I will get this all clarified, but I just received my lab results from 12/31. She tested me again with the western blot, co infections and my cd57...
Mine isn't a burning... it's more like what Girlie said. Tender when I move my head on the pillow, touch my scalp or move my hair around....
Thanks for all the tips everyone! I will definitely get some of these foods so they're readily available when I do eat. I do have a protein/meal replacement shake that I try to drink if I'm not up...
I do take a really good multivitamin(MTV) twice a day with extra calcium and zinc on top that. I don't want to lose weight either. I just think that losing 10lbs in 3 weeks is pretty drastic. I just...
I started my first round of antibiotics on January 2, 2015, so it has only been a total of three weeks. But during that three weeks I've already lost 10 pounds. Not saying that I could't stand to...
This happens to me too every couple days! At first I thought it was because due to lack of energy I haven't been shampooing my hair every time I shower, but then I noticed the feeling even when I had...
Well, good luck! We can commiserate together about our regimen :))...
Girlie- Let me know how you feel when you start taking the Tini. I seem to feel much worse on those days and the couple following. My dr has me taking it twice a day, 2 consecutive days of the week....
Thanks guys! I e-mailed my Dr this am and she is usually really good about responding the same day, even weekends. So, hopefully I will hear back from her soon. The vomiting has stopped, I haven't...
So, for those of you that haven't seen any of my other posts, I started my first round of antibiotics for Lyme on January 2, 2015. I am taking Clarithromycin and Cefuroxine daily, twice a day and...
I have felt very welcome and so far both of my posts have been answered with a wealth of knowledge and support. Asking questions of complete strangers is scary, but Lyme is scarier. I was hesitant at...
This thread makes me smile as I am one of the new comers. Thanks guys! :)...
Thank you so much guys! I have been wanting to watch "Under Our Skin" so I am going to do that right now! All of these are definitely what I'm looking for and hopefully the documentary will seal the...
Wash your hair with face wash... Yup this happened to me about three nights ago. Funny part is I didn't even know that I had done it until my fiancé asked if I had bought new shampoo because my hair...