Bartonella was already pos at 1:128 in toronto I had to test before leaving and the only req I had was for a lab in the US. The babesia they sent in toronto somehow got screwed up and cancelled....
I've tried most of the methods and nothing really seems to help. I drink a ton of lemon water. I take turmeric. Baths make me feel 10x worse so thats out......
Thanks guys. Feeling like this just sucks. It makes life miserable. In addition to tetra i am on jk cc andro eleuthero cordy sarsaparilla garlic berberine basically all the vital plan stuff. Plus...
I try to work out while sick because I hate looking sick. I lost about 10 lbs around my wedding from anxiety. Wasnt eating. Look back on the pics and i look so unwell. I try to keep building muscle...
Pretty crummy. Drove to the US this morning to get a quick babesia and brucella test done before we leave on Monday. Thanks for asking. I ran for about 30 mins on the treadmill which felt good to...
Also my latest wbc is 4.1 as well. Your wbc will fluctuate throughout the day. It can be lowered by antibiotics. The hematologist/oncologist said 4.1 is totally fine....
Huddie those electrolyte numbers are fine Glad to see all the haptoglobin interest. 1 percent of white and 4 to 10 percent of black people have no haptoglobin genetically. Usually when there is...
I know a lot because im an MD. lol Low CK is meaningless. Low chloride is meaningless. Low sodium is called hyponatremia and only a problem if its very low. Whats the value?...
Haptoglobin does not show on a cbc. Separate test...
Yeah heme said stop tx if neutrophils get very low. Like below 1. She didnt care at all about the platelet count. Ive always had low platelets. She was pretty convinced the labs were from whatever...
Im only on 1 because I am being treated by an apparently world class lyme doc and thats what he recommended. He says he starts slowly because previously ran into problems treating too aggressively....
Haptoglobin is a marker of hemolysis or red blood cell breakdown. If its low it usually indicates your red cells are being destroyed intra or extravascularly. Babesia and Bartonella can cause it....
The haptoglobin is undetectable so basically 0. Wbc low normal Platelets slightly decreased from normal...
Yeah I read some of that stuff. Ive been ill since May, amd all along I have sort of been pushing myself. I was a lot better in September. I thought this was all over. I was running. Lifting. I had...
Yeah I mean this has been going on for 7 months so I have had a pretty thorough workup for infectious, inflammatory and other causes. I cant run and lift weights today. The last week has been awful....
Did any of you guys second guess your diagnoses at any point? I just worry that being seen by a lyme MD means everything gets attributed to lyme and potentially something else could be...
I assume you mean 6000? 60000 would literally be an entire bottle....
Thanks guys. I guess what's concerning me a little is that I dont have any specific things that people complain of on here. I dont really have joint pain anymore, although I did have very bad axial...
Hey guys Just saying hello again. Its been about 7 months. Things have gotten bad. Lyme ELISA positive through public health ontario, positive CDC blot from igenex, positive bartonella titre through...
Hey Peteza thanks for asking! Im back at work. I dont feel amazing. Im functional. Im far from the bedridden achey feverish mess I have been. I tire easily, and lots of tinglies and skipped beats....
I dont know what to believe. There are arguments in both directions. 1) my symptoms arent typical of lyme. They could be lyme, but could just as easily not be. 2) I am, slowly, getting better. (Am...
Well they didnt ignore it, they sent the f/u wb which was negative. But the igenex wb was CDC positive. And so here I am....
Except that even with a positive Canadian ELISA, and CDC positive WB from igenex, I am still being refused treatment. I CANNOT understand this....
And now he tells me my CANADIAN elisa was POSITIVE! f/u wb negative. This is insane. A positive ELISA. CDC positive western blot. And profound symptoms. Im treating this....
Hrm, I don't know enough about lyme to comment on that, but there is a very wide differential for diffuse twi. Usually the first thing i would think if it was diffuse would be pericarditis but thats...
Girlie. Yes. Total resistance, but not surprising. I think because i am modestly better he thinks its best to ignore the result. Im taking these herbs from the Vital Plan. You can look it up online....
Yeah he said its meaningless and unvalidated. I have no idea what to do. Just keep taking the herbs and trucking on I guess....re-explore this if i really turn for the worse again.......
Hi guys and thanks for the replies Peteza, youre right that was a typo. Girlie, thanks for that idea, its not a bad one. I've forwarded to my infectious disease doc to see what he thinks... I agree...
Dear all (to those who hate me as an evil MD like Traveler, may ignore...) Igenex IgM result: POSITIVE CDC/NYS IgM result: POSITIVE **23-25 + **31 + **34 ++ **39 ind **41 ++ 58 + **83-93 -...
Hi everyone I am visiting from the Lyme forum and have considered maybe this is CFS. I am just wondering if anyone's experience with CFS has been anything like what I have been going through for 7...
I can tell you that in medical school, we never, ever ever ever, had a lecture on lyme disease. This is all very weird.......
“I wanted to write my book, one, because I realized that there were other people out there who are suffering, and there’s a lot more that we don’t know than we know about this disease and that there...
That thing on Martz is CRAZY!!...
You had a person/friend who was diagnosed with ALS and whose symptoms disappeared after treatment for lyme disease? If that is true that neurologist should lose his license....
No harm in seeing any amount of MDs including a lyme doc for sure. But cervical myelopathy is one of the only differentials for ALS. and if you have MRI confirmed cervical stenosis, ignoring it in...
So I think we need to be careful attributing every single symptom to lyme. I mysef had widespread fasciculations during bouts of extreme stress and anxiety. Fair to say it can be caused by both. But...
This does not sound like ALS. 31 would be extraordinarily unusual. You would not fasciculate for 4+ years without profound weakness. The twitches and everything else sound like a result of anxiety...
Bc pills and metformin are two totally different treatments for different issues. In Canada at least, legit pcos would be handled almost exclusively by an endocrinologist....
So I am an MD and I will give you my thought, though in no way shape or form is this medical advice. You need to see an endocrinologist. This has nothing to do with lyme disease. If you do indeed...
Thanks for all the kind words and very helpful advice everyone. My wife is quite sick with a bad respiratory thing so I dont know if what I have had the last few days is that but without the resp...
Not really. I think that would put me over the edge. My wife is a saint and feeding me well to keep my energy up. I puked once at the start of this but that was after taking zinc and turmeric on an...
Wow Pete thats crazy. For me it isnt so much the pain. Dont get me wrong I have neuropathic pain. Shooting pains down my arms. Ankles. Everywhere. But its the flu-like symptom that is incapacitating....
Thanks dacarte. You have no idea how much advil I have been taking. Lol. It used to help. Now it might as well be a tic tac....
Thanks Asmoline that would be great. Could you re check the email address though? I don't have anything... Part of the problem here is I don't know if its Lyme. But all the other investigations have...
And detoxing wise. Yes I am trying everything. Lemon water. Epsom salts. Vital plan. You name it. I cannot get even an hour of relief from this....
Thanks guys for all the help. Sad to report things are not better. I am feeling positively dreadful. I can barely move. I feel like I am in the middle of the worst flu. Only its lasted two months. I...
Will the euro strains show up on igenex if I order just 188 and 189 or is there anything else I need to order?...
Whatever you have would be very helpful. Thank you....
Thanks for the help guys. I would write a longer reply but I am just feeling way too unwell. I am really getting discouraged and losing hope. I feel so sick every day with these flu symptoms and...
Hey Girlie I've enabled my email to become public. Do you think you could email me that LLMD close to us in Ontario?...