and Girlie I've been thinking about this idea for a few years now and I'm surprised someone hasn't already jumped on it and made a website where we can go to find a house nearby to stay in for a day...
got your message Ashleyann82587 and sent you another message with phone #...
I was very sensitive to touch as well; I had the restless leg syndrome thing going and I couldn't stand the feeling of sheets or blankets touching my legs. I would feel my t shirt barely touching my...
and something to think about: I live in MD so I'm close to some of these cities where these LLD are, and I mentioned to my wife the idea about opening up our guest room to any fellow Lymies that are...
is Dr. J (last name rhymes with caller) in Rockville, MD? I see him and he certainly made a HUGE difference in my healing! If this is the one you're referring to, I'm more than happy to chime in and...
so this is probably one of the symptoms that I didn't have, but not completely sure....but can anyone try their best to describe what brain fog feels like? Is it physical? can you actually feel a...
thanks for the response; yeah I called my wife at work and told her what I was experiencing and she gave me a variety of calming herbs (forgot their names) but they seemed to work because I was able...
For some reason today I feel more anxiety than I have; not sure if it's due to going back on andrographis or not, but I recently started taking andrographis and resveratrol and after doing some yard...
One of the most annoying, and constant, symptoms I've had since showing signs and symptoms in 2013 is the dizziness/light headedness/motion disturbance. It's diminished quite a bit since going on...
This has been a constant symptom of mine ever since my miserable journey with Lyme and Bart and Bab started back in 2013. I've had a lot of symptoms overall (if there was a checklist mine would be a...
thanks for all the good info! one more question regarding the stuffy head stuff....what do you guys do for dizziness (or the sensation of light headedness?) this is a constant thing for me...
I'm increasing my cat's claw so does that help for much?...
thanks, not sure if I started anything new since I'm taking such a variety of stuff, although I did add Taurine to my mix a few weeks ago. That might be it or if I am herxing I'm all for that, but...
Does anyone else experience the stuffy head/ears? This hasn't been a very common symptom for me, but I noticed it more obviously the last few weeks and it's not allergy related. I find myself having...
not really a 'new' topic but one I hope gets some responses and information from, but just when I thought I could tolerate the dizziness, here it comes again.....I think it might have something to do...
I'll try to answer the best I can: as far as symptoms go, I had the bartonella rashes all over my abdomen; these streaks that appeared after I got out of the shower. They didn't have any texture or...
I think the combo of rifampin and tinidazole worked for that. I kicked the babesia and bart almost two years ago. I have residual stuff from the Lyme I can't seem to get rid of...
I came down with symptoms in Sept. 2013 (after pulling a tick off my that summer) and later finding a red patch behind my left knee...anyway, long story short, I've been treated with doxy (had to...
I've recently begun to experience the numbness and tingling in my right arm and hands. Like someone above posted, I experience it mostly at night and I definitely recall two nights where it was just...
so what herbal supplements/remedies are you guys taking? I've found the following to be helpful to me: cat's claw andrographis artemisinin resveretrol taurine and I also take magnesium and garlic....
one of my first (of many) symptoms was severe headaches. They would migrate from being behind the eyes (sometimes just one) to the top, sides, and base of neck. In the beginning (for me it was 2013)...
THEN: bad headaches (top, sides, base of skull, behind eyes) nystagmus in left eye ocular migraines (eye buzzes) chest pains heart palpitations extreme pressure/discomfort in head muscle twitches...
my pains (recently) are very localized and go away after a few seconds, but when they first happened they scared me and I thought I was having a stroke or heart attack. I went through all the chest...
so I looked up costochondritis and that is probably the closest to what I tried to describe, in terms of location and localized pain. It feels like a 'tear' or 'cracking' of the muscles or fibers and...
like a lot of things relative to this disease, I will try my best to describe what I am experiencing and to see if anyone else has experienced similar and maybe help figure out what it is? So the...
YES! I've had the chest pains before (about two years ago) that migrated from left to right to center, and they varied in intensity from tingly to dull to sharp, and like you, felt I was having a...
I was hoping someone could elaborate on the subject a little more. I've also experienced what might be electrolyte imbalances but my symptoms usually present themselves as serious light headedness, a...
had sudden onset of symptoms in Sept. 2013, kicked around from specialist to specialist for over a year, went untreated for almost 2 years. Finally went to LLD in May 2015 and have been treated...
I'm also a pulser and started about two months ago; my cycle is 5 days on, 10 days off. I also noticed when I was 'off' the meds I felt pretty good, but once I started back on I felt gross and...
thanks Traveler! Yeah, once I understood what was going on, I made sure I would remove myself from the situation before I got too angry or upset at something. I managed to use that angry energy and...
Wow, first of all, sorry to hear about all this! I sincerely am sorry you had to experience everything you just mentioned. I can't speak of the infidelity or whatever obstacle occurred before your...
I had the 'restless legs' symptoms and it's annoying, but it went away after a few weeks on abx. I remember always feeling like I had to move or shake my legs whenever I laid down to sleep and I...
you don't have to push anything or do anything other than wear it; when you turn it in to your doctor, they download the readings and will get back with you about it. If I remember, the day I...
so to answer my question (because I'm a little anxious obviously) has anyone experienced a temporary blindness like I described? I've read in many forums and articles that Lyme can cause blindness...
thanks for the response but seeing an opthamologist probably won't be able to help if it's a Lyme related neurological issue. It's like when I went to the cardiologist and had an ECG, EKG and stress...
I believe I had the Holter monitor; it was a small box taped to my chest with electrodes...it wasn't uncomfortable or anything...
I wore it for 24 hours (this was before I was finally diagnosed with Lyme, babesia, bartonella) because I was having heart palpitations and chest pains. It was literally taped to my chest and it...
I've experienced what's called 'ocular migraine' many times (I call them 'eye buzzes' or 'eyegraines') and they are annoying and I never experienced them before until being sick with Lyme, but today...
I've been on minocycline for over a year now and it's been very good to me. I started off on doxy but I had a lot of issues with nausea so I switched over to minocycline and have had no effects from...
wow! a great question, and somewhat complicated one as well.....a variety of symptoms since Sept. 2013, but the worst (before correct diagnosis and treatment) had to be the indescribable head...
I was diagnosed with babesia (done by blood smear) and for the most part am over the worst of it but I wanted to ask a babesia related question here because I know someone can answer it, but I've had...
I'm also on Mino after switching from doxy and it's been great for me so far (been on it since June 2015) and haven't experienced any side affects, but I do occasionally get the 'head pressure' and...
I did have a glucose monitor but never used it because at the time I felt it was my general doctor just trying to appease me and my concerns; I didn't get the 'emptiness' feeling all the time; it was...
can you get your LLD to write a note? I actually had mine write a letter so I can bring back to a job interview because I mentioned it at the first interview and was met with a lot of skepticism, and...
I went to a LLD back in May and have been on a variety of meds and herbal supplements since, and while I'm happy to say I've come a loooooong way since starting treatment, I probably have a ways to...
I'm 4 months into treatment, went off doxy because of stomach issues and went on minocycline, also taking tinidazole, atovaquone-proguanil, and rifampin. In addition, I'm taking a wide variety of...
THANK YOU Nosila!...
I hate to even imagine it, but does anyone have or had a child with Lyme and/or co-infections? and how long before signs and symptoms showed, and how long was the treatment? I ask because I fear my...
does anyone have (or had) the indescribable head sensations? the best way I can describe it is a constant 'fullness' or 'heaviness' in the head and the feeling of being 'detached'? I can't describe...
zachsmom, The heart palpitations and chest pains were by far the scariest things to happen to me because they were so noticeable and frequent. That lead to a lot of anxiety and I got to the point...