Thanks for the feedback. Kinda feel like I'm rushing Buhner protocol- not giving it more time to work. Gonna continue it along with abx. I can already feel the Doxy/Rifampin combo doing something....
Just started a prescription of Rifampin I've had for a while now. 300mg 2x daily. Reluctant to take because of possible side effects. Can't handle this muscle twitching, eye floaters and a couple...
I agree with Greg's recommendation of Dr S. Dr. P in Provo is another great choice, from personal experience....
I'm guessing Crytolepis? A core herb in Buhner's Babesia protocol. Hope this is the start of better days to come for you. Hang in there......
Currently my most troublesome and annoying symptom. Seems the harder I treat, the worse it gets. Hope it settles down for you soon. Good luck!...
Thanks PeteZa- I read your story early on and think of it often. Encouraging for sure! I've really had a good feeling about Buhner. I hope and pray to see some success. Glad to read it is helping...
Good to hear that! Mine elevated for the first time this summer- I suspect from the infection?? And have slowly dropped since starting some natural treatment....
I had a LP done this week. Ordered by my neuro to "further rule out" possibilities before my LLMD started abx. Dr didn't want abx to "taint" the sample. Like mentioned above, it's not terrible but I...
Mustard- my LLMD prescribed Rifampin for Bart just this week. I've been on Buhners (Sida, Cordy, jk, etc) for a few weeks now and still learning and adding stuff. Just haven't done well on abx, can't...
Girlie- neuro is def not LLMD. She admits that- She said she wanted to do further testing for neurological stuff before "filling the body with antibiotics" which she strongly discouraged me taking....
Anyone know much about this test and how the results can be telling of Lyme infection? My Neurologist I've seen this last year who had ruled out any neuro diseases wasn't interested in performing...
Saiyaex- I have not tried rifampin yet, did an early run of about 2 weeks of Doxy and Biaxin early this fall before we knew what was going on. Have done some IV vit c, ozone, peroxide with some...
I tested positive with Igenex for Bart, IgG. But my non LLMD's didn't believe the test- including a well known infectious disease Dr- and ordered more from labcorp and a specialty lab in Utah. All...
Thanks everyone. Going to order some herbs tonight. Using Buhner's recommended sources and book. A comfort to know there's good help on here. Funny where life takes you when you least expect it......
This was one of my first symptoms. Neck pain then became very stiff for about 3-4 weeks. Now only get pain once in while. Still creaky. :)...
Still new to this and learning... Those of you with Bartonella, what are the (or your) most common or persistent symptoms? I've been dealing with intense muscle pain and twitching in arms and legs-...
Thanks Girlie No known tick bite but exposure. Got sick about a year ago after mountain trip. Started with neck pain, head pressure and pain. Fatigue then very stiff painful neck within a few weeks....
Forgot to include that both IgM and IgG considered IGenex and CDC negative......
Hi All- I promised I'd post these here with an update and to get feedback on interpretation of the results. Not sure what to think... IGenex: Lyme Disease Serum Titer- Negative Multiplex Serum-...
I am currently in treatment with the MAH ozone, H2O2 peroxide, high dose mineral immunotherapy, glutathione and UVrlx- (shouldn't be offered at the moment as the FDA just pulled the plug on the...
Good information, I hope your twin find something to help! This is something that is rocking me hard right now. I feel so overwhelmed and feeling hopelessness with all this that I have been fighting...
Yes, let me look... says normal for age. Some mild stenosis down lower, t-10,11....
David Mertz- amazing story but yikes, kinda freaks you out. Been trying to stay positive and hope it's nothing more serious... Jennydancingfish- CD-57 is 103. Is that low? Based on what I've read, I...
I have been watching my liver closely, bilirubin was slighty high for a couple months when I was in the worst of the pain but the last few metabolic panels show all is normal, in fact the best...
Thanks everyone for your response and kind words. Still letting this all sink in... I will keep you all posted. I'm leaning towards the herbal route for a few reasons, sounds like lots of hope and...
Girlie, thanks for the reply and information. The ND I've been seeing does suspect Babesia, forgot to mention that. Was IGenex negative but I know that doesn't mean much. Oh, and I do have a pending...
Hello everybody. I've spent a lot of time over the past few months on here reading and learning. Seems like a good community of folks and a great place for support and direction which is what I'm...