I started treatment about a month ago with Banderol and Samento. Two weeks later I started Doxy 1 x day and last week I upped it to 2 x day. I've never had joint pain before (I know I'm very lucky),...
Now that makes sense to me! Thank you!...
This is the first place I've seen CMV and EBV referred to as coinfections of lyme (but I am new to this). I know I've had both and was diagnosed with an active infection of CMV about 12 years ago...
Claritin doesn't do anything for me (H1 antihistamine,) but believe it or not, Zantac 150 (H2 antihistamine) x 2 a day has helped me enormously with my energy level. Before I was dx with lyme, I saw...
I saw the PA at my LLMD's today and she said the HS CRP looks for inflammation...although it can't pinpoint the organ the inflammation is, it does detect inflammation in the body so they check that...
According to the CDC approved testing I wouldn't have lyme (unless they want to add PCR to their approval list), although they do state that miyamotoi can only be detected on PCR testing....
I was looking at the California Dept. of Health's website about tick borne diseases and it says there have been no cases of tick borne miyamotoi relapsing fever reported in California. Because I was...
I do! Sometimes very elevated (in the 500's) with no apparent reason. I've been to 2 gastroenterologists and had 2 endoscopies, and a pancreatic scan and there is nothing abnormal in them. Plus I...
Thank you! I see the LLMD tomorrow so I'll ask him why he ran this test, and what it means....
OMG yes! One doctor told me "we were just getting old" and one of the neurologists asked me if I was depressed. Grrrrrrrrrrr. I didn't realize how small minded and 'in the box' that most doctors...
Following.....
I just saw the results of my last labs at the LLMD. My HS CRP was 4.1 (range is <1) and my iodine was a bit low (48 and range is 52-109). I'm not familiar with the HS CRP test and all I find for it...
Thanks all!...
Yes...excellent article! Thank you, Traveler! The folate I take is combined with some niacin and a few other things I can't recall right off hand....
It is in an amber bottle. I only see it when I put it in the dropper. The brand is NutraMedix. I'm glad to learn that it does have a lot of particles in it. I guess I just wasn't paying attention...
Also on B-12, I often test over the top of the range, but I recently had my Vit B12 Binding Capacity, Unsat (Transcobalamin) run and it was very low at 317 (range of 650-1340). My understanding is...
I've had my dna run through 23andme.com and I've also uploaded it to Livewello.com, which does a standard variance report. I also have the hetero mutation on C677T, but under methylation Livewello...
I just started taking a Samento and a Bandero tincture last week and noticed today that the Samento has a lot of pink debris floating around in it. I bought it directly from the LLMD. Is that normal?...
:)...
I lived in Arkansas...around Bull Shoals, Mountain Home...and oh yeah and when I lived there near "The Black Oak Arkansas" compound!...
I live in Ventura County and our house backs up to open space. I work in LA County off of Malibu Canyon in a very forested area and know lyme infected ticks have been found down the road, but I have...
Thank you for that! I'll be more careful in the future!...
I started reading this book by Dr. N. M. D., ND, who practices in San Diego, and wow! It's a little bit scary, but it clearly explains my cognitive issues and what causes them. It explains the...
ItisLyme...I'm happy to hear you are feeling better and thank you!...
Girlie...since the LLMD I was seeing didn't distinguish it from regular lyme, I think it is the same. Purrrsiankitty: My understanding is PCR can have have a false negative. Julymorning...glad if it...
There's more, but it was continued on the next page and I couldn't copy it all. "Borrelia miyamotoi disease (BMD), a tick-borne infection that can cause more severe symptoms than Lyme disease, was...
I'm sorry...I didn't sign up for it and was able to read it when I did a search. I do not blame you though. I'll try to copy and paste it....
I live in California and was dx with b. miyamotoi which causes relapsing fever and only shows up on PCR tests (according to the CDC at least), along with b. burgdorferi which only showed up for me on...
Wow! Thanks for all the insight. I'm seeing an LLMD, but I'm not happy with his bedside manner. Luckily I've found a local DO who specializes in infectious diseases and seems very interested in a...
It seems like there are a lot of people who have been here for years and are still dealing with lyme. Does that mean that some people never fully recover? Does chronic truly mean even after you've...
I started taking LA-3 a few months ago (advertises as helping with weight loss). I didn't lose any weight, but my A1C went from 5.8 to 5.5 with no dietary changes. It's supposed to "trigger the AMPK...
Also H2 antihistamines. An immunologist suggested I take Zantac 150 2 x day and it helped me a lot with my energy level, which was life altering. This was way before I knew I had lyme..when I thought...
I recently got my tests back from them and I have the same 2 along with OspA and Miyamotoi. I saw the results before I went to my LLMD and I still didn't believe it until he told me I had lyme. (The...
That's the only way I shop now. Between that and Google Express I never have to leave home again! I love smile.amazon although I have been using it for my daughter's middle school band program, but...
And I have an appointment with the lyme doctor who ordered it too....
Thanks! I did email DNA C with some questions late in the day so hopefully will hear from them tomorrow....
I just got my results detected are: Borrelia burgdorferi F7-NSA B. burgdorferi Osp A-NSA Borrelia miyamotoi-NSA Borrelia recurrentis-NSA It does say the NSA means DNA was detected, but not of...
Does anyone know if the PCR test has to be run through my doctor? The doctor gave me the test kit, but I'm not sure I want to go back to that doctor. They typed their information in the form, but I...
That's very strange because the nurse said the paperwork says to exercise for 1/2 hour prior to testing, but it's better to exercise for at least 1 hour to make sure the test works. I'm going to have...
The LLMD gave me a PCR urine test and said I have to exercise for an hour before taking the test. I can't seem to find any information on the reason for exercise prior to the test. Does anyone know?...
Have you ever been tested for Ehlers-Danlos? I'm no doctor, but I've researched it a lot because I'm hypermobile, and if it's just falling out of the socket it may be this connective tissue disease....
I'm still not officially dx with lyme, but it was after I became ill. I even put it off for a few months because I felt so badly I was afraid to go into surgery feeling that poorly. They did have an...
I had shoulder surgery two years ago for a full rotator cuff tear without trauma. It was worth it for me because I literally woke up one morning and couldn't raise my arm higher than my shoulder and...
Does anyone else test high for B12? I don't take a B12 supplement or eat anything that I believe would elevate my B12, but (since I've been ill) I test above the high range for B12. Thanks!...
Wow! More great information from you all! Thanks again! I've lived in California since 1989 so last year I saw a LLMD here. I developed pancreatitis and was told I had h-pylori which was treated with...
Thanks for your insights! Unfortunately, I see that my doctor is on the list of LLMD. I faxed them a letter with my test results asking what my CD57 result might mean since it was never discussed...
Thank you for the warm welcome and the information! I'll be certain to read over the "New to Lyme" also. I know I've been bitten by ticks because I used to live in the Ozarks and had to detach plenty...
After being ill for 2 years I had Igenex testing done in early 2015 and all the Igenex and CDC results stated negative. But on band 58 kDA I did have ++++ and on 31 kDa, 39 kDa, 41 kDa and 83-93 kDa...