I'm sorry to hear this. I have 3 kids who have lyme and some co-infection. One of them was three when he was bit. I was advised the same to wait for symptoms bc none of ticks were engorged and/or...
GW Bush (though they don't talk about any persisting symptoms and how he treated), as well as Kelly Osbourne...
It's kinda funny because I've been administering Mepron to three of my kids 2 times a day and they've been pretty good about it. Well, it's my turn to be on it and I took my first dose this morning...
Hi there, I myself have been pretty absent from the site partly because I've been feeling better and I've seen improvement with the kids, which is great. I feel almost as soon as I posted a good...
Fronton, To be honest, I'm not sure, but we caught the Lyme pretty quickly and my symptoms though persistent were always pretty mild. Except for a period of about a 1 week or two where I had some...
No. I took my kids to Dr J in CT but my spouse and myself went to J clinic in DC. I had originally tried to get my kids into J Clinic but the appointments to be seen for all of us within same time...
I've taken my kids to him and he knew I had it too. He asked about my doctor who pulses and he was pretty critical of pulsing for adults as well but I think he was just being diplomatic in the...
Sorry, I've been a bit MIA but life has been busy and I feel like we are all getting better. As for me, I have long stretches where I start to feel back to normal again. I still have some days where...
I have not lived through this Lyme experience anywhere near many on this forum. I can only tell you that I asked myself this question and how I answered it for myself. My kids and I were exposed to...
Hi Huddie, It's funny that I came upon this today because since starting up antibiotics, my older daughter has developed a dry cough and a bit of chest tightness/pain. It occurs mostly at night but...
Yancync, That's super interesting and definitely something to keep in mind, but my thing which is a good thing it that my kids and I have always had relatively mild and definitely non-specific...
I don't know how "new" she is but I am sure that even though she trained under Dr. J in CT and has the "utmost respect for him," I was told she does adhere to Jemsek clinic model which includes...
If you have been following, last month I took myself and my kids to see Lyme specialist. I had gone to J clinic in DC and the PA who saw me noted that Dr. J (Ped Lyme) had trained their ped person...
Jenny, Thanks so much for this reassuring post. I agree; I just have to remind myself over and over again. At first, I was really concerned about his age and thought he might be a bit senile, but I...
Hi there! I'm going to try to be patient and give the PED Dr. J a chance. So far, she's tolerating the antiobiotics well but it's only been a week. I have to admit it's taking some self-control not...
No. I don't think so. Sorry. Do you mean the one on "what would you do differently" where she responds that she wouldn't take two years of antibiotics and read Buhner's book right away? I'm not sure...
Hi, I'm pretty new to Lyme myself. My family and I picked it up on vacation in August. The one thing I found is that when I looked here and online, I found really scary stories of people who were...
Thank you....that's very good advice. As a side note, she's complained of foot/ankle pain the past two nights so i guess she's herx'ing a bit which is a good thing...
So one of my kids had alarming blood results. At first, I freaked out especially about the ANA but then I did some searching here and saw that some of these were normal findings with Lyme....
What brand and source of oil of oregano do you like? What is it mostly recommended for?...
Ugh, I can't believe I'm going to have to go back to THE Dr J of pediatric lyme and question him on whether this is enough for Bart! He initially wanted to wait on treating until all the bloodworm...
Meaning the supplements not added all in once. Once I had ordered, bought all them and started them in, she said to start with the antibiotic protocol which she said there was no urgency. Not sure if...
I guess it's not for wimps, but I had heard from other and past patients that they felt like they were taking antibiotics most days whereas I don't feel that way. Maybe it's tougher for...
Girlie, I believe Dr. J clinic in DC assumes everyone has the big 3 - lyme, bab, and bart and maybe adds in others if you have more specific symptoms, but they sort of treat you in blocks for the...
Okay sorry my timeline/post didn't make sense. I saw the doctors in mid-December. I was traveling with my kids to see Dr. J in DC as well their own LLMD in CT so I wasn't going to be home for a few...
So my kids went to Dr. J in CT. This was after I had seen Dr. J clinic in DC for myself. I had some reservations going in because I really liked the Dr. J clinic approach to pulsing antibiotics and...
So I didn't have a lot of confidence in my LLMD locally because even there is Lyme here, it's not prevalent. Even though we caught the Lyme early and I had treated with 3 months antibiotics, I still...
I'm new to this myself so I'm not sure I can give you any more insight than you already know. My case and my kids (I suspect 3) were acute and the symptoms have been persistent but mild. I don't...
Hi Huddie, The kids are mostly okay, but they have a weird headache or cough here and here and it's impossible for me not to worry that it's Lyme & co. and they weren't adequately treated. I...
We caught it within weeks (2-3) of the tick exposure. I did about 3 months of antibiotics. 3 weeks of doxy, 1 week of amox, 2 months of ceftin with azithromycin. My local LLMD stopped the...
Well, my current Dr is sort of baffled by the persistence of my symptoms because it was caught early and treated heavily. He did recently run some bloodwork which I believe from my own reading ruled...
I have slowly worked JK back in but I'm not taking more than 2-3 capsules a day. I'm not really seeing that it helps the arthritis though. It seems the arthritis got worse when I ran out Infla-med...
So I was definitely diagnosed with Lyme and we caught it and treated quickly. I never felt terrible except for a 3 day herx from ramping up Japanese Knotweed too quickly. My symptoms have always been...
Lymedriven, How do you deal with the anxiety? So far I've only been diagnosed with Lyme. I've always suspected a co-infeciton - mainly because I was treated early and heavily and I still had...
This makes sense and prior to all this Lyme stuff I was a big believer in western medicine and dubious of herbs and alternative therapy. I know I'm still considered acute in terms of timing of...
So I woke up this morning with a crick my neck, it hurts to move my neck to one side. I'm currently finishing off my antibiotics and slowly working in Buhner herbs (CC and JK). Of course I'm nervous...
Hi I have 4 kids. Two of them tested positive for Lyme by labcorp. Another one tested negative but had Lyme specific titers including 23. He also had the most ticks found on him. The 4th tested...
I have not done BVT and I am very new to Lyme and it's not severe for me right now. However, I did reach out to anyone in any groups I'm on Facebook who posted about Lyme. I found a mom who said her...
Jennny and Girlie, yes that's what I thought. I've seen azithromycin thrown into protocols for Bart and maybe it was keeping the Bart hence causing the short lived episodes of symptoms - but not...
I don't know your history so I must ask, how did you catch the infection within weeks of exposure?[/quote] I don't live in a Lyme endemic area. Of course, I'm sure there are lyme cases here but it's...
Traveler, As always, you are right. I know herbs are powerful bc it is kind of what landed me in the worst herx I've experienced so far. I wrote you an email offline but do you think that maybe...
Tickbite, I didn't get far with the herbs. I started cat's claw and seemed okay, but then I added in japanese knotweed. I was using capsules so I'd one capsule on day 1, 1 capsule twice a day on day...
Thanks very much, Krimpet. I absolutely need to hear those words - "It will get better." I will try to make it a mantra. I also love your quote at the end of your signature line. Who is Louise?...
So my LLMD thinks my case is super "interesting" because we caught it early and treated extensively. I caught it within weeks of exposure. I did 3 weeks of doxy, 1 week of amox, 2 months of ceftin...
Veryluckygirl, You're scaring me more now? How could your daughter get it from you or her sister?...
Do you think it's possible that the Japanese Knotweed kicked up anxiety associated with Bart and is causing the sighing and chest tightness? I'm not a overly anxious or depressive person but the few...
Well, it was one cap 2-3 times day. Maybe just go back to one a day and work back up. It's tolerable other than the fact that it makes me totally panicky that I'm never going to get this thing in...
CD, Thanks so much. I will look into setting up something with Tim Scott. The problem is that I have 4 kids - two are confirmed positive, one was borderline with a lyme specific band and the fourth...
CD, I absolutely would but I checked with Julies and she's booked thru February so while I may take something for then I need something sooner. Unfortunately I can't do tinctures with my kids. I...