Great way to start the New Year lol After about 6 years of treating Lyme, flares, and reactivated Epstein Barr, I just tested positive for Babesia. (I'm not sure if it is a new infection or if it was...
EBV Early Antigen D AB (IGG) was >150 (high) EBV Viral Capsid AG (IGG) was >750 (high) EBV Nuclear AG (IGG) was 209 (high) EBV Capsid AG (IGM) was negative Lyme test only showed bands 44 and 61 The...
I just found out yesterday that EB was reactivated from having Covid in December. My LLMD put me on a vitamin protocol (D, B, C, Iron, Zinc, etc), along with Byron White A-EB/H6, Viru-Chord, and...
I just saw my LLMD yesterday for my bloodwork results. I had Covid back in December and have not felt well since. I was afraid of Lyme flaring up, but she said Lyme isn't a concern for now. Rather,...
Thank you both for your reply. I was really trying to figure out whether she's going to put me back on antibiotics when I see her for my follow-up in two weeks. I dread the thought of going back on...
Hello all, I was active in this forum about 5 years ago when I was first diagnosed with Lyme. (Everyone was very helpful and supportive!) I treated with abx and Buhner protocol for 2+ years and had a...
Thanks for the replies! I am feeling better today finally. It took a lot of Mobic(Meloxicam), heat, activated charcoal, and xanax. I finally took the xanax yesterday to see if it would help me relax...
My jaws problems are back; this time on the left side. My jaw, gumline, ear, neck and side of head are tender and sore, with constant, severe pain. The last time I went to the dentist, he did say...
My legs used to swell horribly as well....not just a little bloat, but painful, uncomfortable swelling. Some of it, I think, is due to infection itself, and some is due to abx. The only thing that...
I think I made a HUGE mistake! I had to go to the dentist last Saturday because my jaw was hurting so much, I thought maybe I needed a root canal. The dentist did the exam and found a cavity but most...
I should have also posted that I think it's important that he's bringing awareness to not only the disease itself but the poor treatment most patients receive from many physicians....
This has made news on a local radio station today. http://nj1015.com/nj-psychiatrist-to-discuss-link-between-lyme-disease-and-suicide/ ...
So the symptoms I've been having the last few days of feeling fluish are not the actual flu. I haven't gotten any worse, but I haven't gotten any better. I have constant burning in my throat, chest,...
I just found the thread that talks about dehydration....(it was my post LOL) http://www.healingwell.com/community/default.aspx?f=30&m=3847896...
There was someone on here (probably Georgia Hunter) who had an in-depth explanation of dehydration taking place on an intracellular level so that, despite a lot of water intake, you could still be...
Thanks for the advice. I'm going to wait another day or so and see if it is perhaps side effects from the lexapro (flu like symptoms ARE listed as a side effect - rare but possible lol) and then call...
Try Pinella for the head pressure. It helps a lot!...
As good as I was feeling for the past few weeks, something is definitely happening now and I'm not sure how to tell if it's Lyme coming back, Bart coming to the forefront, or a side effect of lexapro...
Thanks, Trav. I'm going to stop it for a few days and see. It's just alarming....it's supposed to regulate blood pressure and blood sugar, from what I understand, and I seriously have not read any...
I've read that sarsaparilla is one of the easiest herbs to tolerate and has many detoxing benefits. I started it last week and all I know is that the past two days have been horrible. I've had the...
I agree with changing if you don't feel like you're getting the right treatment....I know someone who saw Dr S and had the same type of response and changed right away! Something about his bedside...
What kind of pain? And where is it located? And what are you doing for treatment/detox? Are you taking a probiotic?...
Mine was in the same range for awhile (80/50) and I had a lot of lightheadedness and felt very weak. My LLMD said to just add salt to my diet. I started adding sea salt to a glass of water each...
Good luck Mike! Wish I could help but I didn't have a PICC line and the only abx on your protocol that I took was Biaxin (had a good response to it though). Keep us posted!...
Absolutely! I'm still in bed by 8:30/9 (even if I'm not going to sleep right away, I make sure I'm resting and done with the day at that time) and I'm watching my diet even moreso now than before!...
Thank you, everyone, for sharing in my joy (and for seeing me through some really dark times)! I've been wracking my brain, trying to find an answer to how this all happened, but logmoss seems to...
I used to have bad attacks, which I thought were due to anxiety. Heart racing, sweating, shaking, feeling weak, couldn't concentrate, etc. It turned out to be my blood sugar dropping and then trying...
I've been off antibiotics for about a month now, and, while it seemed at first symptoms were coming back, I really turned a corner and have been feeling much better! My shoulders unfroze, pain is at...
When mine was at its worst, I made sure to add a little sea salt to my water. I also went back on alka seltzer gold religiously (it does have sodium in it!). I also noticed that standing still made...
It wasn't a planned break lol I waited too long for my follow-up due to having issues with work and finances...I thought he would continue my treatment plan but wanted to do bloodwork first. But then...
Thanks, Jo. That's what I was thinking....and probably why he added the GSE. Here I am panicking about not being on abx and it's probably part of my LLMD's master plan LOL! I am definitely going low...
I was on increasing dosages of Biaxin for three months, with a short overlap with Doxy, and then just Doxy for the past month. The plan was to continue Doxy and add in another, possibly Rifampin...
I finished my abx about 2 weeks ago (not exactly sure, possibly 2 1/2-3 weeks). I went to my LLMD for a follow-up but he wouldn't renew the prescription or put me on anything new until I had some...
I'm not sure. I know it can definitely be Babs, but from what I've read from other people, it can be Bart too. I think Babs also causes breathing issues....but definitely get it checked if you...
I'm so sorry you're going through this again! How long have you been treating altogether? Are you detoxing regularly? I'm sure people will be on here who can give you more guidance. Just wanted to...
Thank you for the suggestions! I've decided to try some herbal remedies for anxiety first! I've also ordered some melatonin for sleep, as I've realized that everything is worse when I can't sleep!...
Thanks for the suggestion! I'll look into it!...
Had my follow up this past Friday. I haven't been able to lift my arms over my head without excruciating pain since May. When I saw him in May, it was determined that it was part of Lyme and co. This...
thanks Trav!...
I just started today, with just a drop or two and BAM....very nauseous. And by "very" I mean I'm seconds away from being slumped over a garbage can LOL Guess I should have started with just one drop,...
Dave....did you end up seeing Dr W? How did it go?...
I saw Dr G for my first two months of treatment. From being on here and talking to other lyme patients, it seems she gives a lot of outdated info and only treats with monotherapy (with no mention of...
Yeah, I've used ginger tea in the past. Guess i should put that back into my routine lol I really try to control inflammation with diet and treatment, and I take a prescription NSAID when the pain...
I'm not really sure what it is that's happening to me. A couple of hours worth of scrolling up and down on the computer and I'm back to being nauseous w/motion sickness. :(...
YES! This is exactly what happens...It's a tension/anxiety feeling but it's always my head that shakes uncontrollably and the veins or nerves in the back of my head feel like they are going to...
Can you describe how you felt (days/hours) before and after a seizure? I think I am having them and there seems to be a certain build-up of symptoms leading up to it. Once I have it, whatever "it"...
It just seems that new symptoms are coming and going much more now than ever before. I'm never sure if it's a lyme and cos symptom or just anxiety. To be honest, though, I'm not even sure what...
I've been trying to take a day off here and there. The strange part is that I was feeling much better until this now! The low BP, low blood sugar episodes stopped. I've been able to walk the dog a...
I've posted before about having trouble when falling asleep and being suddenly awakened by a feeling of falling. It's not uncommon and is usually associated with hypnic jerks (muscle...
LOL! I know what you mean! I am very sun-sensitive and burn easily. When I was younger, I would go to a tanning salon just to get a base tan so I wouldn't burn in the sun...I would only stay in the...