Hi fellow lyme warriors, I have been in treatment for 8 months and am mostly healed. I have been doing cbc's every month and have started to notice that each month my wbc is dropping by 1 point,...
Im just so full of worry and stress over this so my lyme and bart are flaring. We saw 2 dr's one started her on amoxicilin 500mg per day. The 2nd dr, who is my dr wanted to double the dose to 1000 mg...
Im sorry your feeling so horrible, maybe your just constantly herxing and need to give your body a break to clear out? What are you drinking a gallon a day of? Maybe it's contributing to the GI...
bartonella can cause all the same symptoms of lyme and since your pos. for bart I would focus on treating that. I have made HUGE gains since switching llmd's to one who knows how to effectively treat...
Has anyone else had their dr's tell them they have a low level MGUS. It's a blood condition that carries a 1% per year risk of turning into blood cancer. It was discovered when the hospital was...
Sigh,how disappointing are we that the government tries so hard to bury this issue. My husband is going to do the full treatment protocol,herbal and anbx and im going to talk to my llmd about my...
Dont be discouraged, keep pressing and you will find a good llmd. But I would have been upset as well!...
Sigh, i knew my intuitions were dead on! My 7 year old daughter who I've pulled 3 ticks off is igenex and cdc positive for a current infection with lyme and my husbands bartonella fish was positive...
We see this all the time, I was told i had progressive idiopathic neuropathy and ms. I live in VT a lyme endemic area. I repeatedly talk to my neurologist about lyme but because I tested neg. on the...
So my new llmd thought a lot of my symptoms overlap with babesia. I didn't think I had it personally because I really dont get night sweats or hot flashes, I do sometimes get the chills though. So I...
Good news, I wonder if the dr over the border is the dr i see. She treats tons of canadiens. She very knowledgeable and studied under Dr. Horowitz. He treated her when she got lyme and co's. I was...
I have 6 spots on my brain, but remember other things can cause brain spots,headaches,aging process, past drug abuse. Only the spot on my spine "could" be ms related. O bands and brain/spinal spots...
i have spots on my brain,but not in the ms spots, plus 1 spot on my cervical spine. Plus o bands in my spinal fluid,general neuro said ms,ms specialist said no....
omg i started the clarithromycin today, im also on planquenil and doxy and i was doing okay on the other 2 meds,both new to me last week. But i took my 1st does of the clarith. this morning at 8 and...
So I saw a new llmd this week 2hr round trip as opposed to 5 hr round trip.She has totally changed my protocol, still on a yeast free sugar free diet but instead of just tetracycline. Im on Doxy,...
im currently being treated in new hampshire but am hoping to switch to plattsburgh ny...
it's actually tetracycline...
I did the igenex bartonella FISH test as recommended by a lyme dr I saw based on my symptoms and boom positive. I wish this dr could treat me but she limits treatment to 1 year due to laws here in...
Well said,being very new myself I have appreciated every response! Thanks all!...
So right now i do a 5hr round trip 1x per month to see a llmd for a 20 min appointment. He doesn't use igenex and doesnt test for co infections. He puts everyone on tetracycline all winter and then...
Okay so im from vt but i was thinking about trying to see the Dr.H it's about 9 hrs roundtrip. Does anyone know how far out these dr book?...
Right now im on 1500mg of tetracycline plus mc-bar an herbal. I see my llmd on thursday and am going to ask him if it's effective for bart....
Hi everyone, Im 36 years old from vermont. We run a campground and marina and do lots of work in long grass and leaves and such. Needless to say i've had a few ticks in me. Over the last years I've...
Rikky1 do you mind sharing what you took to address the bart?...
right now im just on 1500 mg of tetracycline compounded with lox oral, nystatin and mc-bar which is a herbal...
Okay so I have lyme and bart and have been in treatment about a month and a half, I am a little better but not much. How long before you all made real gains. Also can you herx even if your meds...
thank you so much!...
also has anyone gotten better after having bart/lyme?...
Hi everyone, I started to get odd issues last winter with my balance then in may the bottoms of my feet went numb and the burning started in my legs. Things got worse from there. I just tested pos...