There is an article by a British gp in the BMJ it shows how she cured her Lyme. The exact protocol. Maybe print that off and take it to him? A course of doxycycline won’t cut it. If you enable your...
When you have strong neurological issues like tingling I would try to source minocycine, use this alongside a lyme herb protocol (minocycline has shown to be helpful in MS, it reversed tingling type...
So I have this horrid debilitating pain in the back of my neck/back of skull it's been hanging around a couple of months now and getting worse. I had a Mri at the start of the year nothing major...
Yes! Thankyou traveler I'm rubbish at the technical stuff!...
Great guy. They need to shut their doors to new patients and concentrate on the ones that are there though. You can not receive the best healthcare under the conditions they are operating at the...
Sorry I'm not sure how to input the direct link thing! If anyone can change it for me that would be great. I know it's useful for those of us viewing on our phones...
I think Jemsek does a lot also. He gives a lot of talks at conferences all over Europe etc Here is a recent interview he did ... Very interesting https://m.youtube.com/watch?v=WDe0L-5yKvI...
Armin is becoming the igenex of Europe. Though apparently I hear Breakspear don't accept them (?)but interestingly a lot of American/Canadian doctors do. Eli spot and cd57 only. That sera spot is a...
Wow that's a really long time.... Many thanks for all the advice! ...One last thing as I didn't clarify in last message. Did you continue Lyme antibiotic/herb treatment whilst on anti fungals. I'm...
Wow pirouette. I have a lot of similar issues to you in your thread. On top of that I've had an onset of flakey scalp which I've been given a fungal shampoo for, I wonder if it's all related. Can I...
Yeast does make sense when looking at the bigger pic. I do wonder why Lyme doctors don't do a yeast or parasite cleanse at the start of treatment as standard. Especially as its speculated that Lyme...
So to reply to you all. My exact symptoms (of feeling awful for not eating sugar/carbs) are general hangover feeling, tiredness, dizzyness, dehydration feeling and even a weird taste in mouth. Today...
I'm actually looking for one in LA but are willing to travel all over. I'll have a look at that website. Thankyou!...
I have been eating very good for past 2 weeks and currently on a break from antibiotics. However my symptoms are getting worse the more and more I restrict my diet of carbs and sugar. I went through...
Can anyone recommend a good Lyme doctor who uses herbs and antibiotics?...
I was told 900mg is a mouse dose for chronic illness. I think most Lyme doctors have a game plan of going up in dosage over time so I would speak to your doctor. You have to absolutely find the right...
I think you have scope to increase massively on gabapentin. It's available as 100mg I think you can go upto 2700mg possibly higher under guidance from doctors. Everyone's therapeutic dose is...
What was your score on the elispot?...
I used to not be able to tolerate aggressive treatment due to stomach issues. A PPI helped with it all. (I believe it slightly alkalises/calms things in the stomach so might help healing) along with...
Yes I have issues where it feels like I definitely cant breathe comfortably. I read a theory that these problems can be linked to a back up off toxins in the liver! I can't remember the ins and outs...
are you currently treating Julymorning?...
I have been in treatment using pulsed abx, I am currently on my week off though. I have been using probiotics ongoingly. However last Sunday I had a sensation that some food got stuck in my throat...
I take both of those and super artemisia at high dosages is very powerful. I had some scary side effects/herx which was feeling like I'm being strangled! The other one was the good old chest...
It's 3 and sometimes 4 antibiotics a day but like someone else said its not everyday, it works out 10 days a month. My current protocol I take approximately 30 tablets a day. Only 4 of these tablets...
use AONM to sort testing abroad. They guide you through everything. I was clinically diagnosed through my doctor via mark and symptoms. My nhs test came back part positive (igm) my private test came...
Abhi- Why don't you try activated charcoal? In UK it is marketed to help with this issue...
Yes and azith...
I feel terrible for you, I know exactly what you are going through I also have young children and live in UK. The worst thing about this disease is the politics surrounding it which in turn leads to...
Sorry that's a lie! I'm on Amox instead of tini!...
Blueberrymuffin I'm actually on exactly the same antibiotics as you plus flagyl. I don't have issues with periods as such I'm very regularly i think the estrogen dips and peaks seems to over excite...
Blueberrymuffin - yes I do take antibiotics at the mo so I would be looking to take contraceptive pill alongside treatment, however as I say I go through the same pain cycles whether I'm on...
Yes I've definitely heard the words .... So we will run this test to 'reassure you'! So patronising but at the same time if we have to pretend to be what they prob think of us already (anxious etc)...
Did you have any testing Artemix? if so any abnormalities or are you just going at the treatment and hoping it resolves?...
i will definitely give motherwort a go before I go down the pill route...
Yes I definitely think I will ask to get my hormones checked. Seems so hard for doctors here to initiate such simple things as hormone testing even though I have had this hormone related complaint a...
I too only want to use it as a absolute last resort however after chatting with someone with lupus today who also has hormone flares that no conventional tablets control except the pill. I do wonder...
Hi So I have been advised a few times by my doctor now to go on the pill to manage pain as I do get a lot of hormone induced flares. I was previously on the pill before seeing an experienced Lyme...
Yes definitely buy because as traveler says, they explain a lot more than simply what to take. Antibiotics aren't the cure all when it comes to Lyme so even if you go down the antibiotic route...
My antibiotics are changed every few months but at mo I'm taking a few things amoxicillin, mino and azith with flagyl pulsed plus a ton of supplements. Herbs burbur, Pinella, Japanese knotweed. loads...
Hi I'm in uk, my sera spot was completely negative. My elispot was borderline/weak positive.I am treating. Good luck....
Can I ask something about this 28 day cycle Lyme has? I do experience pain variation cycles myself. However I now see a doctor who is considered one of the best in the world and he has categorically...
Yes I take 2 X 500mg a day two days a month. Any more than that then believe me I would not take it! I agree with swapping for tinadazole that was the other option for me. I have tried it before it...
I started flagyl 3 days ago. 1st day was a breeze then last night I had extreme pain in organs, extreme anxiety, heart palpitations it was really the worst time I'd had on any antibiotic ever. Today...
I had i spot test, unfortunately waste of money for me. I tested completely negative, on my other labs was borderline on Eli spot and positive on elisa and IGM blot test. I had the rash so clear...
Also ask for extended Lyme panel off nhs if you suspect Lyme. you maybe lucky and receive a positive on other related infections which can then confirm a tick born infection. Nhs are hopeless when it...
Maybe but my father who does not have Lyme also had the equivant of a herx when treating h pylori. So I think strong antibiotics can do this also when treating....
the whole lyme politics situation makes my head spin and does leave you wondering what the heck is going on. I had a tick bite, 4 weeks antibiotics didn't cure it so now most of the medical community...
Hi beefany Also from the uk. Just wondered if you had an update regarding your diagnosis? Was previously under infectious diseases myself, was told I definitely had lyme but now have something...