I saw a Dr a few years ago for chronic constipation. I take high quality flax seed oil, high quality fish oil and 2 TBSP of California brand Extra Virgin Olive Oil. This should take 2-3 days to kick...
I took abx from 2016-2017 and got 30% better. Switched to buhner and self treated for 2 years and got to about 70%. I did 4 SOTs without much success other than it bringing on chronic tinnitus which...
And Im curious. How did you cure your lyme? Do you take anything daily for it?...
I get what you're saying. Do you refute this study? http://mediafilelibrary.myasealive.com/src/media/xmfl/file/ASEA%20REDOX%20Gene%20Study%20Summary.pdf...
Girlie: Totally understand. I hope the original post can stand. If anyone has ANY questions or needs to see more science behind it, please email me I went from spending thousands a month, out of...
I feel better than I have in several years from ASEA. I heard about it a few years ago and thought it was a joke. I looked again when my 14 months of ABX were giving me progress, but i was stuck at...
email me...
Try a gut health supplement called Restore...
Get a HIDA scan on your gallbladder WITH a CCK challenge. It showed my GB functioning at 15%. I got my GB out and the vast majority of my Nausea went away and rarely comes back. Sometimes right after...
I also have milk thistle but am waiting to add that in. Need some guidance on that. Im taking a trip and can't add in anything else until I get back. I'll prob lower by herbal intake before I go and...
I had been on a traditional ABX protocol with minimal herbs. They were artemisinin for 1 week of the month and jap knotweed every day (350 mg). Last week I decided to look into Dr Buhners protocol. I...
I won't be living in PHX. I figured a LLMD would be in the greater PHX area. I'll be about 30 minutes away. No surprises for me!...
Im on ABX through a LLMD and I added Jap Knotweed and Cats Claw on my own. Today I was told by a wonderful woman that she will be adding in Nutrizyme and Fucoidan. Apparently the Nutrizyme is an...
you couldnt pay me a million dollars to live in cali. But i agree with your assessment of the regions climate on your lyme....
Dr Fry sadly retired this past summer. His literature is amazing. I currently see Dr J in DC. I am most likely moving to Arizona and need a good LLMD in the area. Thanks! (I think my email is shown...
I took a trip to Utah and my joint pain dropped a lot. I attribute this to the lower humidity. I live near DC and the humidity is HORRIFIC. I'm considering moving to Arizona due to it being home to...
Since I got sick 2 years ago I have not flown. Tomorrow I will be flying accross the country. Any advice on how to limit symptoms? Did your symptoms increase during or after the flight?...
I wasn't seeing much improvement for about 8 months. My LLMD (Dr J) said I should get my GB checked. Turns out it was functioning at 15% and was flapped over. Apparently Lyme loves it. My doc...
I take a 2 week break every month. That's what pulsing includes. I'm not overdoing it. It's just a new symptom. Seeing if anyone had a remedy for it....
Yeah I see Dr J and have been on pulse treatment for 18 months. Not all at once, but I'm currently pulsing Dapsone, daraprim, rifabutin, minocin, Ceftin, malarone, artimisinin, Enula, flagyl,...
Has anyone gotten this? I have avoided all drugs in the Quinole family. I've been on treatment for 18 months now. It's horrific pain. I went to a foot doctor and there is no tear but he sees fiber...
After starting this and starting sencha green tea I'm herxing..I think. My left side is completely numb. Even my left eye. I went to the ER to get checked and they said I'm fine. Also, usually when...
What brand of Japanese knotweed do you guys find works best? I ordered Gaia brand from Amazon. Anyone use this brand before?...
I wouldn't say she is against it as much as she believes their ABX protocol is more effective. I am getting better...in much better than where I was a year ago...but I don't want to be stuck at 5%...
I am currently being treated by Dr J. I'm seeing progress but it's a long journey. I'm exploring adding a holistic herbal Lyme doctor as well. Can anyone recommend one in the DC area? My PA at Dr J...
So Im starting cycle 2 of my new protocol. My drugs include coartem, daraprim, dapsone, rifabutin, ceftin, minocin, malarone, artimisinen, Enula. I took coartem by itself during week 3 of cycle 1 and...
I am going to take 4 pills of Coartem 20/120 2x/day this upcoming Mon/Tue/Wed. I'm currently living at home with my parents and they help with my Lyme. They will be out of town during this 3 day...
Dr J wants me on diamox 250 mg plus klor con 10mg and vit C 500 mg to be taken together 1/day. I think the diamox can cause low potassium and that's why....
The diamox is for my horrific head pressure but Dr J wants me on klor con at the same time and I have no idea why. Can anyone give their experience? I haven't tried either but I have filled both...
I see a lot of posts asking for a doctor in a specific area. It's worth the long drive to see a better LLMD even if they are 5-7 hours away. You usually go once every 3 months and nothing is more...
When you call dial option 4 (triage) and leave a message. At the end of your message hit the # key then hit 1 after the voice asks if you'd like to send your message. That sends the message. Their...
I don't use FB. Zuckerberg sells you out to big brother plus it's an echo chamber. I may make a fake account and check that group out though. :turn:...
This is my new protocol http://www.healingwell.com/community/default.aspx?f=30&m=3816263...
Also, I'm allergic to bactrim but Dr J doesn't think dapsone should trigger my allergy even though they are similar. If anyone has experience with this please chime in....
I'm about to add these to my protocol during week 1 of my cycle. I'm only taking these 1/day. Should I take them in the morning or at night?...
IF it is Dr J he said I should get a spect and igenix test because my initial blood work was negative, but he said I didn't have to because he clinically diagnosed me with Lyme and COs. He said it...
My diagnosis is spot on. I def have it and the rib will not stay down. The first surgery really helped me. My surgeon says he will do it whenever I'm ready. He's not a Lyme guy though. There's really...
I have thoracic outlet syndrome. I had my top left rib removed 2 years ago due to immense pain and a clot it caused. I also have the same condition on the right side but this time it's purely pain....
Dr J in DC or Dr F in Rockville or a second Dr J in Rockville. Just google Lyme doctor Rockville MD and two names pop up. I use Dr J in DC....
PM me. A very close family member is high up in the company. It helps me a lot. It's helped everything wrong with me until Lyme. It helps me detox and lowers the severity of my symptoms....
In my 5 appointments I've met Dr J once. His NPs run all protocols by him. I see Rachel. She's super smart. I was seeing someone who isn't there anymore and I was recently switched to Rachel and I...
Has anyone used this? Dr J recommended it for my sleep issues. I can fall asleep and stay asleep for 7-8 hours. The problem is I have not woken up feeling rested in the last 2 years. If I get 2 hours...
That if I ever get the chance to be somewhat healthy I will never complain again. Oh and Id rather have cancer than Lyme. Even Dr J says it's easier to treat HIV patients than Lyme....
Do you recommend staying with FIR or should I be using NIR or MIR? From all my research FIR does the most to detox your body....
I felt great in the sauna. Last night, 8 hours after, my symptoms became chaotic. Joint pain, head pressure, limb pain all came on strong after feeling decent all day. I think this was a major herx....
It feels amazing. Will update on how my symptoms and pain are later today!...
Girlie: lexapro is anti depressant with anti anxiety properties. Diamox is for my head pressure. The other two are very strong ABX. Fronton: very aggressive. No it's ceftin. I was on omnicef but I...
Week 1: days 1-8 of 4 week cycle xylitol and lactoferrin MWF: Ceftin 1000mg 2/day Rifabutin 150mg 2/day M-F: Daraprim 25mg combined with Leucovorin 10mg 1/day Dapsone 50mg 1/day Enula 10 drops 2/day...
After 1 year of treatment 75% of my symptoms are gone but I'm still only 20% better because my worst symptoms are still awful. They include head pressure, anxiety, depression, joint pain and air...
I was diagnosed with TS 15 years ago and when I'm on antibiotics all my symptoms of TS are lower or non existent. My rage and anger issues are dramatically lower while on antibiotics. On my off weeks...