I never treated. Hope they will get better for you....
floaters, visual snow, entophic blue field phenomenon – yes, all the time muscle twitches – yes, sometimes sleep disturbances – yes, sometimes intestines bloating and making sounds – yes, sometimes...
GuyWithVs, Get tested for Lyme. I have had visual snow for about 20 years now but apart from that and some other visual problems I have not had other symptoms until 2009. I got my test done at BCA...
TokyoPVCs, How was your appointment? I used to live in the UK and didn’t have the best experience with the NHS either....
Thanks for the responses. PeteZa – No, I’m not covered for Hep A as I had only one shot 10 years ago. I forgot to go back for the second one. I already researched the ingredients of the vaccines...
Hi, I’m wondering if anybody has personal experience with the below mentioned vaccines or did any research on safety/rate of aluminium excretion in adults: Hepatitis A (HAVRIX 1440SKB-E/ML WWSP 1ML)...
I don’t know if I have the MTHFR gene mutation. Some time ago I was advised that if I ever need to supplement B12, go for methylcobalamin but I haven’t heard of the hydroxy type yet. Thanks for the...
I get this too. Always comes suddenly, always clears ups suddenly....
Yes, that is so annoying. They tested my B12 three years ago and it was high (well above the upper reference limit) without any supplements. So all this time I have been resting assured that I don’t...
I never had a blood test but always found that I don’t absorb magnesium well without a daily dose 50mg. I stopped B6 a few times over the years and always became more constipated. I found an...
Hello, I used to take 50mg B6 every day in the pyridoxine hydrochloride form. It ran out and didn’t repurchase for a while and I noticed that I have been more constipated than usual. As B6 helps with...
No worries, I didn’t think you were suggesting changing my meds. I just expressed my frustration with having to be on HC and T3. No problem, that’s what this community is all about: sharing info! :)...
Unfortunately I didn’t/don’t have the option to try herbs and homeopathics instead of HC. My ACTH was very low so I had/have a problem with the pituitary gland too. I don’t think my adrenal and...
As some of you may know, I’m looking into herbal treatment. I want to try one herb at a time because if, for example, I have an allergic reaction or something I want to know which one was it. I’m...
Caramba, yes, it happened to me but not with people I knew for a long time. When I met someone new (for example at a job interview and we talked for about 30 mins) and after I went home I had trouble...
I don't remember the name and can't find it now. But thank you, this UK based looks promising....
They are SO cute! Put a smile on my face....
It is infuriating that you had to go undiagnosed for such a long time… Most likely I would try a herbal protocol. I need to do more research on the subject but so far I read that buying these if one...
True, I should have used the word estimated. It depends on which study we look at, this one came up with 89.4%. http://www.biologischmedischcentrumbmc.nl/104TONEUJ.pdf I’m not saying that this test...
Interesting that now some don’t think a healthy immune system should have a cd57 over 200. I guess it depends who you ask. As that article said they don’t know what skew the results, why it reflects...
Hi Pirouette, Thank you for your response. I’m not saying the CD57 is completely reliable but I would not say it doesn’t say anything about the state of our health. That article says it can change...
We will be cautious and stick to using protection. As for astragalus, my only concern is that it lowers cortisol. His was tested last year and it was normal so I guess it shouldn’t be decreased. I...
My boyfriend has some aches and pains too but I guess it is indeed from working out and he has always had that, well before I started becoming unwell. That’s why I think that is still from the gym...
Hi Purrrsiankitty, Stress and lack of sleep make twitches worse for me. I take 500mg magnesium per day that helps but I still have them. I also have small involuntary movements....
I still haven’t decided about treatment. Some of you may remember that I wrote in another thread that I’m scared of side effects, herx etc. But let’s say I start treatment. My boyfriend is positive...
Yes, they all can be inaccurate. What I meant is that Armin Labs were accused of being less reliable than other labs specialised in Lyme. Here is the statement they issued to clarify things:...
Hi Anne, I haven’t used Armin Labs so I don’t know about their turnaround time. But interesting that your LLMD prefers them for accuracy because they were accused that their testing is inaccurate....
Thanks for the advice and sharing your experience with that shot. By the way, even though I tested negative for bartonella and babesia, I think that I have those too. I was also positive for...
Sure thing, I keep an eye on him. He also takes good care of himself, has a healthy diet and been taking many general antioxidants for years. I have been doing the same by the way but looks like it...
I have been taking NAC for years, 2x 500mg. Originally I started taking it as general antioxidant but now I know I have lyme surely I carry on. Never caused any problems....
My results: Borrelia burgdorferi Blot Blot IgG p18 - negative Blot IgG p19 - negative Blot IgG p20 - negative Blot IgG p21 - negative Blot IgG p58 - negative Blot IgG OspC - negative Blot IgG p39 -...
Hello, As some of you may remember I was going to have Lyme and co-infections tests to have confirmation of my clinical diagnosis. My boyfriend also got tested but only for Lyme. He appears to be...
Hi, I took a saliva test and all 4 results were terribly low. I have secondary adrenal insufficiency so my ACTH is also low. I'm on hydrocortisone for life. I hope you will be able to recover your...
Silly sheep, thanks for the kind words! Glad you understand why I’m taking my time. Sorry about my late response, I have had some rough time…Wish I could be more active on this forum! But when...
Hi PeteZa, First of all, I wish you all the success with your treatment! Even a weak positive would make me feel better. Well, probably I should rather say sure instead of better because the whole...
The very same here! I also developed germophobia and it really is horrible......
Thanks for the responses! @ silly sheep, The tests are only for confirmation. I know diagnosis is clinical but to be honest it would be better to see it on paper as well. Not that I want to be...
Hi Laker, I'm already on the Lyme diet just no specific treatment like abx, herbals etc. My question was about testing like I wrote in my opening post. Do I need to avoid any activity, supplements,...
Hello, I am clinically diagnosed but not treated yet. I will have tests for Lyme and co and might have some silly questions but thought it is better to ask. Is there anything that could have an...
Hi, Yesterday I was playing with a friend’s kid and he accidentally punched the centre of my stomach right where the esophagus ends. I felt quite a bit of pain but more like muscle pain. After a few...
I have secondary adrenal insufficiency and used to take Cortef but now I live in the Netherlands where Cortef as tablet does not exist (only Solu-Cortef for adrenal crisis). No pharmacy can order it....
My tongue is tingly too and sometimes numb. Also the last time my B12 was checked it was well above the range....
I never used to crave salt until started having problems with adrenals. I licked salt and drank loads of water. I drank lots of water even before eating more salt. All 4 cortisol saliva results were...
I used to be very fit and exercised a lot before getting sick but now I go only once a week to the gym. I do walking on the treadmill (30 mins, at about 6 km/h) and some weights like leg press. I...
Last year when I went for a routine blood and urine test the nurse gave me the urine cup and after I was done I threw it in the toilet. Flushed and then realised…I just told her I accidentally...
I get something similar before I'm even fully awake...just waking up...eyes still shut...wave of anxiety. I also sweat and my pulsatile tinnitus starts. Mine stops when I get up out of bed. And if I...
Hi Antonio, I have managed to find something positive. I have been getting a bit more sleep, around 5 hours. Not much but better than nothing....
VCL – I know Lyme may be sexually transmitted. My husband is healthy, touch wood! He goes to the gym and sleeps like a baby etc. He is not against of getting tested but he doesn’t have any symptoms...
I emailed my husband 4 documentaries but he only watched two about 30min long interviews. He didn’t watch Under our skin and Emergence. I asked a few times why not then he just said he had watched...