My daughter takes cordyceps capsules which I imagine are much easier to tolerate......
Thank you, Girlie - I am incredibly proud of her!! For a 21 year old who "should" be out having fun, dating, planning her future - she has remained amazingly centered through most of this. She is on...
Hi Nic, She only started on the clindamyacin/rifampin about 10 days ago. She's getting lots of side effects/herxing, including some major dizziness. She had been on Bicillin and zithro for over a...
Hi - I know that this post is several months old, but I want to weigh in and say that my daughter got all negative results with DNA Connexions, after having CDC + results for Lyme, Bartonella and...
Hi all, Thought I'd peak my head in for a brief update on DD (age 21) is was diagnosed (IgeneX & CDC +) with LD, babesia and bartonella approx 1 year after symptoms started. She has now been on...
Hi all - my 21 year old DD is coming up to her 2 year anniversary of her first symptoms, 1 year anniversary of diagnosis (CDC+ LD, Bartonella & Babesia), and nearly 7 month anniversary of treatment....
Also not a man, but I am a licensed clinical social worker. for 30 years.. and it sounds as if his symptoms could also be clinical depression manifesting in very physical ways. With Lyme, it is so...
Hey Traveler - thanks for bumping - much appreciated! @bomberg - I was hoping that eventually DD could learn to self-inject, but at this rate, not so sure! That's scary as all get out that you...
My friend sent me this: https://www.healthspiritbody.com/lyme-disease-treatment/...
Hi folks, I've been having a heck of a time injecting Bicillin into DD. I have read dozens of instruction documents, watched dozens of YouTube videos, had a very experienced RN friend try to help me...
Thanks for the encouragement! @Girlie - yes, a fair amount of detox in place (not as much as I would like), but hard go get her to do more than what she's already doing. If she does start to herx, it...
Good morning, Last night I gave DD the Bicillin for second time. I decided to keep her at half dose (1.2 mil) - we'll ramp up next time. The first time I injected her I really struggled to push the...
Thanks, Traveler! The bizarre thing about Bad Boss (perhaps not so bizarre, because he was probably projecting), is that he had his own serious, even life-threatening illness last summer....
DD (age 20) suddenly had terrible acne for the first time in her life starting about 6 months after probable tick bite, and 6 months before diagnosis and start of treatment. She is now on 2 different...
A few days late, but thank you all so much for the support. Things are feeling quite a bit better now. Agreed, the boss is a real piece of work, but he's out of our lives for now, thank goodness....
My daughter was prescribed Nystatin with her 2 antibiotics as a preventative for yeast. She takes it 3 times/day. I don't think there's much harm in taking it, from what I've read. Thank you...
Hi - My daughter sees Dr. A.S. (MD) in Sorrento Valley (near La Jolla). I don't think he's considered LLMD (he's not on the ilads list for whatever reason), but he is very familiar with Lyme and he...
Hi- Just writing in to say hello, and share a little. It was a tough week. I impulsively purchased Bicillin in Mexico last Saturday, because I wasn't sure how much insurance would cover (I later...
Good morning - packing up DDs dorm room to move her home, in the hopes that we'll get professors agreements after the fact! To answer Girlie's question about detox - yes, I have her doing dry...
I,f you're like me, you may be interested in the mechanism of different types of treatments, and if you're lucky, your MD will explain to you. I asked our LLMD why he prescribed Zithro instead of...
Hi Girlie - thanks for the support! I totally forgot to mention that DD's liver enzymes and ferritin were back to normal, and doc started her on zithro, nystatin, and plaquenil last week. Yay! He is...
Hi Ipaige (I think you have the same name as my DD - darling daughter) who has Lyme. She was just diagnosed in April after a year of symptoms - many similar to yours. We went to about 8 doctors...
Hi all - Thank you to the 2 members who emailed me offline :) It is much appreciated! Galaxy lab results came back.DD was tested for D.quintana and D.henselae. Both came back as IgG 1:32. Not CDC+,...
Hi elymenate (clever name), Welcome to the forum. I'm not the patient - my 20 year old daughter is. She had symptoms for a year - was diagnosed with fibromyalgia, and tested for MS before we found an...
Hi Scotharry, My daugther also has POTS - which only started 9 months after her Lyme symptoms first started. Her resting heart rate is around 90! (normal is 70). The LLMD says that POTS symptoms are...
Thanks so much BJD55! I ended up ordering the Now Foods powder for myself, and something called Ora prebiotics/probiotics 20 billion powder for DD. (I have no idea if she has candida, but I wouldn't...
Just wondering if anyone knows if positive CDC results get reported, and by whom. I hope someone is reporting!!...
There are multiple choices for Amazonsmile. Recommendations please!...
My daughter (3rd year undergrad) got accommodations. She got a golf cart to take her to classes. She also let each of her professors know that she's sick, and they've generally been really great...
My daughter is very sensitive to probiotics. I've had her on 1 billion multiple strain for a while, and want her to increase (I take 50 billion!) I want to increase her to 5 billion... any...
I think I was maxing out the info...lol. Sigh...she's eating dorm food. Will write a new post to ask about best probiotic. Thanks again for responses :turn:...
Thanks Girlie and Piroutte. I'm really working hard to wrap my head around all of this. I guess I wanted to believe that not being IgG positive (other than band 41) might mean she was less...
Yes, unfortunately, multiple systemic symptoms including some neurolyme symptoms. In Nov/Dec (9 months after first symptoms), she developed symptoms of POTS (tachycardia, vertigo)as well as...
Thanks Girlie - I think I had read this about IgM with Lyme (that it can persist for a long time). But does NOT having IgG positive results mean anything significant? No systemic infection? We don't...
Hi Denver! I suspected my daughter had Lyme a year ago. I really wish I had done the Igenex basic Lyme Panel for her. I ended up paying the $1200 for Borreliosis and co-infection panels. (See my post...
Hi folks, Hope you are having a good weekend. So, Igenex results back in, which conflict somewhat with LabCorp results. I'm glad we spent the extra money. Still waiting on GalaxyLab results for...
Hi genevieverusso. My daughter (age 20 - 21 in October) was just diagnosed with Lyme, and we are waiting for the Galaxy Lab results for Bart, which doctor strongly suspects, based on her symptoms....
Our doc plans to give DD zithro with Rifampin (no 'r' after the p... I think you're thinking of Pamprin... lol) for presumed Bart. Deep bone pain and generalized weakness were some of her first...
So, so sorry for your loss. My older cat (& first ever pet) is approaching 19 and declining. Before he joined the famiky, I never would have understood how much our pets become like family members. I...
Shout out to all of you for the wonderful responses! I felt better after yoga last night, and even better after the reassurance on here. @Girlie and others - I will most definitely share the Galaxy...
Can I just say that if that is your writing ability with severe brain fog, then I can only imagine how well you write "normally." I do not have LD (my 20 year old daughter does), but I'm glad you...
Hi Wesley38 - could you please send me an email with the name of your LLMD in San Diego? Thanks so much!...
Hello, wonderful group of people - I first posted a few weeks ago. Quick recap: DD (age 20) symptoms first started 3/2016 following a trip to Portland where we did a lot of hiking in wet, national...
Thanks for the links, Janet! Very helpful articles :)...
Hi - I don't have LD (my daughter does), but I am homozygous for MTHFR 1298C. I had testing done through 23andme, because there is a history of depression and anxiety in my family, which is connected...
Thank you B99 - super helpful reminders. Hugs to you. I'm exhausted from all my research over the last few days. Gotta remember my own self-care!...
Hi Liz, Thank you so very much for taking the time to respond. I am so sorry for everything you have been through, but I admit I am also very pleased that you have a boyfriend with whom you can share...
Hi - I know that anyone with children of any age (whether they're babies or grown) knows the helplessness of having a sick child. I am wondering how many of you have young adult children who have LD?...
Hi Traveler - I'm glad I found you too!!! Thanks for info on Bartonella; I didn't know that frequent urination is a symptom. I know the blood is on its way to Galaxy Lab. I was surprised at how...
Good morning - yes, correct, I meant she doesn't drink alcohol (should have been more specific), and, I keep encouraging fluids. One of her symptoms is frequent urination, so that's no fun. If I...