Thank you for the advice BlueLyme. Interesting about starting slow in the lower limbs. I have only been stung in my lower legs and lumbar region. Next time I will have him sting me in my arms and...
I was thinking about pm Bluelyme, but I was hoping to get a response from some active members. I wait to hear from Bluelyme. I'm pretty sure this is a Herx. If it is, BVT is the best thing I have...
Hello all, This is a question for any members that have done BVT. I started this treatment a few weeks ago. I have only done it once a week 3-4 stings each time in order to build up my tolerance. The...
I would call their customer service department. I called them and they put a doctor on the line to speak to me....
Is this Lumbrokinase? If so, my LLMD has me take it as a biofilm buster. He asks me if I am still taking it everytime I see him, so it must have some merit....
We are definitely in the same boat. It's amazing how so many different doctors can diagnose these things without ever coming to a consensus. I was told by my infusion nurse that a doctor should be...
I am in the same boat regarding the red bumps. I get them on my butt cheeks and the upper back of both my legs. They look like little bug bites and itch. I have seen multiple doctors regarding these...
This is an interesting topic. I was going to post a new thread because I noticed I experience extreme itching around my lower back, upper butt cheeks, and the upper back part of my legs. I notice it...
Hi oldsalty, Don't mean to hijack this thread, but wanted to respond t9 something you posted in another thread about doxycycline causing you neuropathy. I suspect this might be my issue. If i take...
I have heard about supplementing with Collagen. I guess it can't hurt to try it. Thank you....
Starting to see it on my hands and arms now too....
Crazy creepy little wrinkles with some indentations. It's almost like what your legs look like after a goods long hike where they are Kind of crusty dirty, but it all washes off after a nice shower....
Have you been diagnosed w neuropathy? Small fiber neuropathy for me. I wonder if this is a variant of ACA?...
http://s1067.photobucket.com/user/oddity11/story...
So strange you can't see the images. When I cut and paste the link from my desktop I am able to see them. Maybe it has something to do with it being my account on imgur. Hmm. :( I will try to include...
The skin on the back of my legs in the bilateral calf regions appears to be dying. The skin has become very wrinkled if that's what one would call it. It scares me to death because this is where most...
Honestly, I would have followed your doctor's advice on this. Remember - more is not necessarily better, and 3.0ATA is on the higher end. As a follow-up to my prior post, I am positive for lyme/etc,...
Hi, I appreciate the response. Your experience sounds interesting and informative. Today will be my sixth day. I think I will tell them only to take me to 2.5atm this week. The equivalent of a 10...
Lyme and Bart for me. I've come a long way in the two years since this started. It just takes time to figure out what works and to accept the fact that one may never be the way they were. I hate...
There is a doctor in Seattle that, I believe, will do a phone consult on your initial assessment. We can't give names on here, but you can find him by doing a google search or by looking him up on...
For me its the soft padding around the joints. The soft padding on the wrist has greatly reduced and my elbows are extra nobby, similiar to how my knees looked almost a year ago when it was...
My symptoms were/are very similar to yours. The twitching and crawling feeling in my calves was the first sign that something was seriously wrong and that this was not just in my head as a few of the...
I'm sorry to hear that you may be relapsing. This is unsettling to hear for many of us. I'm curious when you say you had collagen loss. I have had strange wrinkling appearance in my bilateral calf...
I'm hoping someone can chime in that has experience with HBOT. This is my first experience with HBOT. I did 5 hard chamber dives at 3ATM breathing 100% O2 for 60 minutes each over 5 consecutive days....
I'm coming off Rocephin in several days. I just started hard chamber hbot at 3ATM 60 minutes for 40 dives. Hout, doxy, rifampin, and others will continue. Bvt will probably be started after hbot....
I found a place online that is close to where I live. There website says they can help w bvt. I appreciate your help....
Hi BlueLyme, I read your thread on BVT. It sounds very interesting. A friend of mine was telling about a friend of his that does BVT for MS. It sounds like it is working well for his friend. You...
I have noticed some people mention bee venom treatment (bvt). Where does one go about getting this? I live on the West Coast....
Caramba, may I ask your age range?...
I have numerous small lesions scattered bilaterally in the subcortical region. This is highly abnormal for a middle aged person. The neurologist I saw were a complete waste of time and money only...
I use a vape pen one to two puffs before I go to bed and one puff if i wake in the middle of the night. It puts me right back to sleep. I now use something w high thc level preferably Indica because...
You are lucky you do not have small fiber neuropathy. This is my biggest challenge. It feels like I always am wearing a pair of socks. Very unsettling. :(...
That's great news! One last question, Did you have any nerve issues like peripheral neuropathy? If so, has that resided for you?...
Hey Pirouette, Wow 2years? Do you feel that you are starting to see the light at the end of the tunnell?...
Yep, Ursodiol is Actigall. I'm sorry to hear you stalled out with Bart. It's like we are all fighting battles with aliens. This is madness. Life is not fair!...
Ursodiol is for gb stones when on IV Rocephin. For some reason I thought you had mentioned that pharmacy to me, but it must have been someone else. I'm hoping this is just a herx. Are you having any...
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Girlie, I also changed my Ursodiol to ADC pharmacy out of India. I noticed since i started taking this my leg issues have intensified. I wonder if that has anything to do with this as well?...
Doxy is an interesting drug. I remember 1.5 + years ago an ID doc put me on 100mg a day for what he said was folliculitis on my bum. I noticed right away it helped with the odd sensations in my legs....
I have been treating lyme and Bart since Jan. IV antibiotics and oral antibiotics with herbs and lots of detoxing. I recently increased my doxy to 400mg a day -2x200mg. Since i have done this my leg...
I'm more concerned about getting counterfeit meds....
Hi Caramba, Pinella, lemon water, foot baths and some regular baths, deep breathing exercises, dry brushing, occasional activated charcoal, and try to exercise if I can. I may have to take an...
A DC takes a long time for delivery and you have to pay by wire transfer, just more fun issues to deal with. I'll check out some of the Canadian pharms....
Two Aleve seem to help knock back the pain plus one 300 mg gabapentin at night. I appreciate your support....
I was just looking at that. I'll talk to my doc....
I can get a prescription. I just bought some Ursodiol from AllDayChemist....
I will order them from anywhere. Are you recommending AllDayChemist for antibiotics?...
Yes, when I switched to 600mg once a day is when I noticed this deep bone pain. Doxy is fairly cheap about $30/month....
I recently switched to 600 mg once a day. I take it around noon each day and around 1:30-2pm my legs have a deep bone pain in my thighs. I'm pretty sure the pain is directly related to the Rifampin....
I have an appointment with my LLMD next week. I have a bit of a candida rash in my privates that I need to discuss with MD. I appreciate your help. Thank you....