Thank you everyone. <3...
I just wanted to let you all know that my Mom passed away yesterday after a long battle with ALS/Lyme Disease, whichever she actually had, probably both. I wanted to say thank you for all of your...
Hey everyone, it's been quite a while since I last posted. I just wanted to give you all an update for those of you who have followed my mom's story... So maybe a month ago, she started going...
K07-She was diagnosed with ALS. She is not taking any bind toxins/metals that I know of. She is on IV rocephin and IV Bactrim which I think are the best she can get? Cake-she has had testing for B12...
Girlie - she has last week off all abx to give her body some recovery time. She did not seem to get any better at all. She started abx again yesterday and they are going to do mon/wed/fri going...
So as most of you know, my mom is getting continuously worse. She took a week off of antibiotics but it didn't seem to help at all. I informed the doctor and this is what she said: "if she is clearly...
Thanks everyone for the kind words - I did find out yesterday when I went to the nursing home that they were wanting to give my mom morphine because while it can suppress breathing, it can also relax...
My mom has been having a lot of swelling in her knuckles lately along with her hands and sometimes her feet turning blue, very strange. My dad is there with her now, me and my sister are both...
So my mom is taking a week off from the antibiotics this week to let her body recover a little bit. Next week she will go to 3 days/week instead of the 5 that she was at. Her talking seems to be...
Pete - Thank you for the kind words. Things are rough right now. I am trying to stay upbeat and encourage her to keep going, but when I'm the only one that truly believes she has Lyme disease, it's...
I am desperate. Most of you know my mom's story, and I am feeling so hopeless. We were seeing some changes at the start of her treatment, but she has now gone backwards and she is ready to give up....
Cake-yes, she was positive on a few, the two important ones being 18 & 23. Girlie-yes, she's still on IV. She receives IV rocephin and IV bactrim 5 days/week and she is also receiving fluids in there...
So my mom is not doing good at all. She has not developed neck weakness, and her speech is started to become affected. I'm sure the neck weakness could be a symptom, but what about the speech issues?...
1000- my mom is very close to giving up. She told me recently that she has made the decision that if she doesn't see any improvement by her next 6 week follow up, which is August 1st, she is going to...
Kaitlan-Yes, I do believe they accept some insurance. The do not, however, accept Medicare or Medicaid which is what my mom has. But I do remember reading that they accept some insurance. I would say...
Hi everyone, I haven't been on here in awhile. Over the past couple of days, we have noticed something new that my mom is experiencing. Her knuckles on both hands and her finger tips have been...
Thanks everyone for the responses and thoughts on this. We first have to see if the nursing home will allow my mom to use this. If so, they offer it in a few different ways which we will discuss with...
The Stram Center for Integrative Medicine in Albany includes several doctors that have trained with Dr H. My mom is currently seeing one of them, and so far they seem like they really know what...
I feel totally crazy even writing about this. My mom had a follow up phone conference with her Dr yesterday. The Dr actually highly suggested that my mom consider Medical Marijuana as part of her...
Girlie - She's doing IV antibiotics 3x/week, IV Rocephin & now IV Bactrim. Blue - She's worried that even the infection is stopped, she will be stuck like this....and that is probably the scariest...
Girlie- the thing is, it's not about the treatment. She's extremely depressed and does not want to live in general. With her breathing the way it is, she needs a machine to help her breathe 24/7, so...
Girlie - Yes, I have. She has told me I'm the only reason she's still holding on. That she's doing it for me. She really is in rough shape and I honestly don't know if she can beat this :(...
K07 - No more improvements with the rocephin/rest of the treatment :( She is very discouraged and ready to give up. Not really ready to face losing my mom. -Kari...
Girlie - Thanks! She tested positive on bands IgM 23, IgG 18, & IgG 66. I am already convinced she has Lyme, I have been from the beginning...but I'm hoping this test showing a POSITIVE for...
Hi everyone! Most of you know my mom's story, so we took her to the Stram Center where they sent a coinfection test out to a Galaxy Lab that they use. We just got the test results back, she tested...
I'm trying to keep her going, but I know it isn't easy. She's worried she's going to be stuck like this, that she won't regain any function back. I'm just at a loss right now :/...
Girlie - she's not really herxing. It's just a lot of medicine she has to take...and all of the medicine is giving her diarrhea (TMI, sorry). If she could see some obvious improvement, it would give...
So as I had stated in a previous thread, my mom's feet felt "normal" for the first time in months. That lasted a couple of days, now they're back to feeling like they did before. While I told my mom...
The doctor at the nursing home thinks that it is because of her upset stomach that she feels she cannot swallow. He has ordered something for her to take to help with her stomach. I am going to look...
My mom is undergoing an aggressive Lyme treatment currently as most of you know. She has been complaining of being sick to her stomach for the past week. As of today, she is finding it hard to...
Traveler - Thank you! You guys have seriously been so helpful throughout this journey. I can't wait to see how she's doing 6 weeks from now! -Kari...
Blue - yes 2 grams of rocephin. I'm not sure we'll do the dna connexions test yet as we can't really afford an extra test right now. I am so hoping she continues to go on an uphill path as she...
Girlie - I know; I actually told my mom that. I told her they might go back to how they were, but that she needs to remember the change. Because that small change is significant. Her feet haven't...
So update on that - her feet were tingling and then they stopped...when I touched them we both started crying...her feet feel normal, all except the big toe. She's always had a neuropathy feeling in...
My moms second treatment of the IV rocephin was today - she said one thing she has noticed since the first treatment and into today is her left side feels tingly almost like when your hand falls...
I'm thinking the cloudy/mucousy urine is a combination from the abx and the detox. I'm sure her body is just getting rid of "junk". She had her second IV rocephin today.... -Kari...
Girlie - Yes, she took actigall right before she got the IV antibiotics. BeKind - We actually purchased NAC through the center she's getting treated at. It is part of her treatment plan. She has been...
Has anyone ever used this? It's supposed to be like a detoxifer or something. My mom had her first IV Rocephin treatment yesterday and they also gave her a shot of Glutathione too. Today she feels...
I will have to think of some detox things I can do with her this weekend, as I will be with her all weekend. I know you guys have suggested things before, but is there anything that would be a good...
So I just wanted to let everyone know - I finally heard from the stram center today about when we could start treatment, etc. It will possibly be Monday that we go down to start the treatment. After...
So I'm pretty sure I've asked this before, but when I told my mom that she said "well can you just ask again?" :) she's starting to get the hang of this Lyme thing I think lol. She has been having a...
Thank you everyone! I know you guys are just looking out for us. Without you guys, I honestly don't know where we would be right now! I am going to let the doctors do what they feel is right, but I...
Thanks everyone for the responses. The time frame they are looking at right now is 6-8 weeks. As long as she shows some sort of change that indicates that the treatment is working, they will continue...
Blue-she will be starting the oral bactrim first I think, but I'm not sure how long it will be in between. They will be monitoring her closely at first, and I'm sure they'll switch things up if need...
Girlie - my mom is nervous, but I think this place offered her more hope. We will be traveling out to Albany 3 times/week for two weeks for the IV antibiotics. They want to monitor her there, then...
So for everyone that has helped me so far with my mom's story, we went to the Stram Center today in Albany and I wanted to let you all know how we made out. So I was sooo much more impressed with...
July - I'm definitely not saying that's why she was infected or anything. Just that her smoking causes a Lower immune system, so maybe once she was bitten by the tick, her body wasn't able to fight...
It hit me today the reason that maybe this happened so quickly for my mom....she was a smoker. Since she was like 17. So that would mean her immune system was probably already weak which made it easy...
Blue - did you moms friend die from complications of Lyme disease? I worry about that happening with my own mom :(...
Just wondering what some suggestions are to help manage pain other than pain medicine? My mom is almost always in a lot of pain. She had a bad day today because she was aching all over. She often has...