Sunfun, thank you so very much for sharing what you’re going through. It makes me feel less alone. I hope the Gupta program helps you! I’ll look into it too! I will talk to my doctor about MCAS too....
Thank you so much Garzie! Have you ever seen someone who is hypersensitive on this board find some sort of way forward with treatment btw?...
Saraeli, which DNRS program did you do and which do you recommend? The original Annie Hopper one?...
Garzie and Saraeli, oh my gosh, thank you so much for your guidance and help!! My LLMD means well and is a very nice person but she admits it’s hard with sensitive patients & I really needed guidance...
I have chronic Lyme and coinfections and have had the hardest time finding treatment I can tolerate. I just started taking Beyond Balance MC BB-1 about two weeks ago (kind members here recommended I...
Thank you both so much! Sara, how do you treat the MCAS? What are some of your MCAS symptoms? I’ve been extremely sensitive to medicines of any kind since I was a child. The medications I’m taking...
Hi, I haven’t used this forum in a really long time so hopefully I’ll make this post correctly. My LLMD has offered me some herbal options and I don’t know which to choose. I’m extremely sensitive to...
Girlie, I would love to know who your LLMD is. I remember reading your posts in the past. It sounds like this doctor really know what they’re doing and I’m considering antibiotics again. I don’t know...
Hi, it’s been a long time since I’ve posted here. I am wondering if you all have any experience using cell core/microbe formulas products lines? Do you feel these are safe products? I’ve read that...
You’re welcome! :)...
I’m updating in case it helps others. The tubes do expire, I don’t know why I didn’t know that! Anyway if that happens to you, all you have to do is go to your phlebotomist and ask them to use their...
You know, I really don't know what expires in it! I guess the blood collection tubes. Although I've never heard of a blood collection tube expiring before even in my previous profession. I'm going to...
Hi, I have an igenex kit that just expired 10/31/18 and we really need to get the blood work done for my husband. I can't call them until tomorrow but I just wondered if anyone knows if it's...
Hi everyone, I don't know if this is ok to ask here. But I am searching for a wonderful pediatric LLMD/ND/NP who can: -order blood work -is knowledgeable about PANS -can clinically diagnose Lyme and...
Thank you so much Babs! I'm so sorry for what you suffer through!!...
Jrpsf, thank you so much! Do any coinfections jump out specifically when you read the symptoms? Also, why is it so severe before and during my periods? Do you know if periods shut down the immune...
Hi, I'm not sure how many will remember me. I've been off antibiotics for several months and I was feeling so horrible when I first stopped them, I was scared I would die. Then I gradually started...
Thank you all so much!! Yes everything you have each shared has been so very helpful!! I will start with diet. Pirouette, thank you for believing that at some point it will all be under control for...
Thank you so much!! I find it absolutely crazy that I went from Lyme and coinfections to dealing with a systemic infection caused by treating those infections!! This is crazy!! Now I will have to...
Hi Traveler, thank you so much! Like a systemic yeast infection? Like all through my body? By he way before the antibiotics I never reacted this way to probiotics!! I did read her post but I will...
Can anyone shed any light on this for me? When I stopped taking amoxicillin back in December I was staying on my probiotic to try to help my gut but I kept having the following: -irritability (so...
I mean, Pirouette, do you think Lyme and co can be passed through breast milk? I just went to a Lyme conference and the famous Dr. H said he's never told a breastfeeding mom not to nurse and he...
Thank you so much! My feeling is that Bartonella is likely to blame for the tendon pain and I have shin pain too. But I think you could be right that a lot of the rest could be candida. Floragen3 is...
Thank you so much! Would candida cause those types of symptoms? I'm currently not treating. Taking a break from antibiotics. Having a hard time distinguishing between Lyme and co and possible yeast...
Can yeast overgrowth cause worsening symptoms (like pain in tendons - Achilles and wrist, joints, random depressed feelings unattached to any cause, exhaustion, weakness, sore throat/tightness in...
Wow thank you so much Pirouette!! I often wonder if some of my son's symptoms are honestly from nursing while I was taking 4.5 months of antibiotics. I don't know. But I can say he started having...
Jinna, I just saw your post! Thank you so much!! Did you see Dr. K as your LLMD? My LLMD thinks I have candida - two months into taking antibiotics I started having severe pregnant looking bloating...
Wow, thank you all so much! I spoke to the supplements person and she was saying we could just start with the Researched Nutritionals BLT microbalancer. I'm not sure what it does but they said it...
Hi Girlie, Pirouette, and Jinna, thank you all so much for your help and support!! Girlie, igenex says under 40 igg for Bartonella is an inactive past infection. I am going from memory but I think it...
Thank you so very much Jo <3 I so appreciate your thoughts & the bump!!...
Hi, I haven't posted here in some time. I was treated for Lyme and had to stop my amoxicillin due to severe uncomfortable bloating and constipated stools at 4.5 months into treatment. That was back...
Thank you all so much. Jo, what you wrote was so sweet and means so much to me. Girlie, thank you for your patience so much! July, you have RMSF too? That's interesting about the ginger (mentioned by...
Thank you both so much. I am just realizing I need to treat. I need time to think about it all. I'm sure you're right. Do you think my symptoms sound only like Lyme? RMSF? Any other possible...
Ok thank you all so much!!...
Hi all, I wanted to post an update and also see what you all think or if anyone has advice. I am coming to the realization that this stuff isn't going away and that I will need to treat somehow. I...
Hi, has anyone read the Medical Medium book by Anthony Williams and followed what he suggests and healed from Lyme? The weird thing is he doesn't say how much to take of anything, just lists what...
Hi again, So I'm having some new symptoms (since stopping the amoxicillin - which I have now come to expect). I wanted to see if you guys think they sound only like Lyme or if they sound particular...
After I had my son I kept having what I described as anxiety running through my body and I believe that was when my Lyme symptoms started to come out. I would get this feeling coursing down my arms...
Yes, that's exactly what I was thinking, I would herx badly. I made it through to Christmas without taking the amoxicillin and I am just waiting for whatever symptoms will hit me today. Gosh I wish...
Also, Chapelle, that sounds exactly like what I'm experiencing and have been for so long until the antibiotic. Good God it's terrifying and just unbelievable. I feel like I made it so much worse just...
Chapelle, I've been taking florajen3 the entire time I've taken an antibiotic. I suspected amoxicillin was just keeping the Lyme at bay but did not know how long I'd had Lyme and possible...
You guys, thank you so much. It's bizarre but it's like I need someone to sit me down and slap me and tell me this is real even though I already know it is. Since I can't reach my doctor until...
Good God, now I read about syphilus and I'm like omg what if it's not Lyme? What if it's that? But I don't have risk of exposure to that unless you count vaginal doctor checks when pregnant or giving...
July, do you mean you thought you had syphilus as a result of what that doctor said? Thank you all so much. It is logical, the only logical explanation that Lyme and or cos are what's happening since...
Ok thank you so much Girlie! I feel like I'm living in some bizarre science fiction nightmare. Can I ask though I'm sure I've asked before: are there ever false positive western blots? I am in denial...
Thank you so much! Do you think it's logical that my increasing symptoms now that I'm off antibiotic are due to Lyme and or coinfections rather than candida? Or can candida symptoms increase once...
Hi Roku, is the test available to NYS residents or no since you said the test is not in NY?...
Hi, is the DNA connexions test effected by being on treatment such as antibiotics or herbs?...
Does it make logical sense that since my symptoms are worsening by the day since I chose to stop taking amoxicillin that my symptoms are due to Lyme or coinfections going out of control? Or could it...
Blueberry, did you mean why do I not think antibiotics are an option? If so, I have gotten really bad gut issues on the antibiotic. Despite taking a probiotic. And the more I read the more I keeep...