Medical Nerd sounds exactly the same as me - stiffjoints, tooth extractions, strecthy skin etc. Sorry to hear your suffering also its hellish is it. Thanks will listen to podcast...
Is this the buhner collagen protocol? Teasel, glucosamine sulfate, biosil, vitamin c, pregnenolone...
Thanks for all the messages. I was diagnosed by the top EDS consultant here in UK without genetic tests he said was no point as he is 100% confident based on symptoms that I have EDS Classic....
I have been sick the last 5 years with lyme and coinfection. I got into remission 2016 for 6 months then relapsed bad. When i relapsed I ignored everything lyme, treatment etc and watchd my body...
Me too...
Sorry to hear your getting burning pain too it's wild is it 😢...
Thanks guys. Had the worst sleep ever like j had the flu burning spine pain etc. I think I need to back off with metronidazole! I have babesia symptoms so like you say metro might be hitting that. I...
I've been on no lyme treatment for a year as I was in a very dark place just curled up into a ball and watched life go by. Yesterday I had to take metronidazole for gum infection I had 200mg...
Thanks all. Ive got some buhner herbs here so I will start very low dose. Will start with CSA for couple weeks then add the buhner core protocol i think. I already drink goats milk but i do need to...
Cost inst an issue now thankfully - I was hoping for advice on what is the recommended option when one hasnt treated for so long and now 100% worse. Is it safe to take either obviously just be...
Im happy to do antibiotics but my concern is i havent treated in nearly a year and now that im so sick im concerned antibiotics herx will be dangerous since bacterial load high. But im so sick i need...
I tested positive for Lyme, Mycoplasma, Yersinia, Chlamydia Pneumonia and suspected babesia in 2016 I did four months antibiotics early 2017 which practically worked miracles on my symptoms. Went...
I have read that while back but always wary about more products as my cupboard has so many supplements like most of us with lyme do lol I will definitely give it a try so thank you so much for...
Only cramps thankfully. I did worry it was start if cdif. Im looking at Buhner herbs now but I may need to o get on antibiotics to get load down first perhaps? Bought Probiotics with 20 billion in it...
I was handling the herx ok this time round. Was doing my best to detox and was feeling ok but the stomach cramps and abdominal pain started so i stopped them. Worried about cdif etc. Pain still there...
I thought alka was for herx? This is obviously lyme coming back I would have thought?...
Been on and off antibiotics for 7 months. Started and stopped alot due to herx. I now have stomach cramps, abdominal pain etc which I assume means I have to stop antibiotics which u did for four...
So I spoke to doc again. And he said since my chlamydia pneumonia markers are really high I need to go on rifampicin. Still think it's babesia the main issues personally but I guess I just have to go...
Was azitromycin and minocycline seen good results. Doctor added in malerone and herx was crazy so put me on artimisia. Now wants me on rifampicin. My concern was my symptoms are chills, chest...
Just want to say thanks for the support on this forum. The knowledge on here is incredible. I think the majority of people that answer my questions are from USA. I'm from UK and knowledge not the...
I'm going to stop artimisia for a few days until herx reduces. Will stay on azitromycin and minocycline. It's pain all over like flu pain but lost the pain I get is spine pain...
its Artemisia and Monolaurin 2 x a day so thats 400 artemisia and 200 monolaurin from make well nutrionals http://makewell.de/app-plus?lang=en I am getting sever chills and pain. Not slept in few...
I've been on 400mg artimisia for over four weeks now. I've had bad insomnia, pain whilst sleeping and chills. Could be herx if babesia or side effects from artimesia?...
Thanks ks loutucky appreciate the support. Th clinic I get treatment is so busy that it's difficult to get dedicated support constantly. They have me in many supplements and a few herbs to try reduce...
I keep starting and stop antibiotics as I can't handle herx reactions so I'm never going to get better unless I power through it I imagine. I'm such a wimp I'm only on small doses 200 Mino a day and...
I use my sauna mat at 60 degrees to sweat but as son as I lie down in bed the chills come on full force. Think it's maybe babesia rather than a herx...
Just realised I get chills more so when lying down?...
I tested negative for babesia but doctor thought I had it so put me in malerone. The herx was unreal so they swapped malerone with artimisia 400 a day. I've never really recovered from the herx so I...
I'm taking 600mg azitromycin Monday Wednesday and Friday. I take 200mg minocycline every day. I have so many detox supplements, sauna baths etc I've really been focusing on detox well as I herx very...
Before lyme treatment I used to get extreme chills. When I started treatment the chills went away. I took a month break from antibiotics after five months on them. Now two weeks into antibiotic...
That makes sense then as I have alot of inflammation at the moment and have done so for a months now. Hopefully it reduces soon...
Thanks for info. I did the red cell plasma mineral profile four weeks ago. All was in the normal range apart from zinc which is really low. My copper also used to be low but it's just above normal...
I've always had slight higher cholesterol but last few reading are extremely high. Is this lyme or coinfection? What can I do to bring it down? I'm eating plenty veg. Mostly paleo diet. Taking...
Im getting alot of nerve pain lately so perhaps I should be on it. Burning nerve spine legs etc...
I was on magnesium at the start but not on it anymore since changed protocol. . Should I ask for it?...
I'm on vit b, Q10, omega 3, glutathione, nac, lipoic acid, Probiotics, mushroom extract, ginseng, opc. Will ask for zinc!...
Yes thanks! Any idea the best dosage of zinc?...
I'm reading minocycline can cause low neutrophil. I also read babesia can cause this too so perhaps not just lyme?...
before lyme diagnoses and treatment my neutrophil count was always lower than normal. Lately its been really low at 1.42. Range should be 2.0 - 7.5 Whats causing this? Ive always got infections...
Coming to end if erythromycin. I'm assuming it's ok to start my azitromycin and minocycline t next day even though I imagine erythromycin still in my system?...
I was on the dtc and tbb herbs at the start but they changed them when treating babesia. I've been on and off antibiotics so many times my body is in a mess I imagine. I need a structured protocol to...
OK I will activate my email just now. Thanks for your help!...
Sorry I did not realise the rules about naming practices. You can delete this thread if inappropriate. I will know for next time I was treated with azitromycin 600mg Monday Wednesday and Friday and...
I'm in Scotland. When I first started antibiotics with bca azitromycin and minocycline I did really well felt great. When they added in malerone and then later rifampicin I went down hill rapidly. I...
I've consulted few clinics in Europe and not came across one that pulsed antibiotics. I will post a new topic asking hopefully there is somewhere. Wish I coukd go to Dr j in Washington!...
Im currently being treated in Europe for lyme and coinfections but my doctor doesn't pulse antibiotics. My body can't handle continuous antibiotics. Unfortunately I don't have the finances to go to...
My doctor won't add them so I can just add them. What's the best dose?...
So I treated lyme for three months with azitromycin and minocycline. I had three really bad symptoms at end of three months which were chills, air hunger and base of skull pain so my lyme doc...
Worried my protocol doesn't cover all three forms of borrelia I started on azitromycin and minocycline Then azitromycin minocycline and malerone Then azitromycin minocycline and rifampicin since I...
Wow thanks for all that info! I need to look into it. Just one more question...does it matter what antibiotics you are or can you take the binder with any?...