I understand completely. My 83 yo mil runs circles around me and thinks “sickly” people are just lazy and feel sorry for themselves. They won’t ever understand until they experience their own...
My mom’s labs came in and she has different confections than I do so I need help until we get to our LLDO this Weds. IgG is old, maybe resolved, right? So she has elevated IgG, but normal IgM on...
Four of us in the family have improved over 4 years with Dr S in Hermitage. We feel plateaued, though, and while this might be the best we will feel, I find myself wondering if a consult with Dr J...
I’m so much better after 4 years of treatment but I have 2 symptoms that are driving me nuts lately. 1) Temperature dysregulation. My poor family: I keep the thermostat turned to 66 degrees when I...
Another resource is a new book from Neil Nathan, MD titled “Toxic: Healing Your Body from Mold, Lyme and...”....
My functional med/LLDO pays attention to and tests for molds and heavy metals. She learns her stuff on mold from this guy https://www.survivingmold.com/treatment. Richie Shoemaker There is testing...
I held out for years thinking there’s no way a Vitamix was worth the price. At Costco about 5 years ago there was a live Vitamix demo and I think it included a special of $100 off. It has run...
When I suddenly became sick for the first time in 2014, I was supposed to be leaving for a week of camping for our son’s 13th birthday. It was a hugely anticipated vacation and even though the family...
My LLMD advised me a couple years ago to pace myself by working to 75% and then resting. I apparently have no clue how to do this. I need to hear if you have figured this out. I think most of us are...
Good that you reached out. You are not alone. Incredibly difficult situation - can you find a counselor to work though this with you? Too hard to keep thoughts rational with neuro Lyme and it will...
Everything you said is very familiar and I wish I could change it for you. I, too, am influenced by the myriad of productivity blogs and articles and (note to self) those can be very counter...
I turn to food for comfort when my joints hurt, or when my energy is shot, or when I'm down in the dumps because my life changed with a tick bite four years ago. I'm functioning at 70-80% after a...
I have never had trouble taking tablets/capsules, but recently feel like things are not traveling along my lower esophagus as smoothly as before. I notice the feeling longer, even after swigging most...
My LLdoc said not to overdo it and stick to 15 minutes 3 times a week. We own a sauna and I had been inclined to take them longer and more frequently and started to feel washed out as a result. A 10...
I think you're right, it must have been 500 mg once a day. I threw the bottle away. Still, should the side effects be so strong?...
Hi - Is anyone familiar with bad reactions to fluoro antibiotics to shed some light on my situation? My backround: Dx Lyme positive 2014, 2 years on Biaxin under care of LLMD in Western Pa, enjoying...
Hi, if you still need LLMD info around Pittsburgh, I'd be happy to share. Just send me an email, and welcome to the forum!...
I'm picking new health insurance for our family and need some input. Our Blue Cross Blue Shield policy has increased to $2,200/month for three of us. We are self-employed and have always paid for our...
LLMD wrote us a prescription recently for an infrared sauna which we just got and started using yesterday. Any opinions about submitting this to our insurance for durable medical equipment or...
Yes, I had a very intense itching experience that lasted at least 6 weeks. That was in September, I think. I had never experienced it before Lyme. It eventually went away. I was diagnosed later with...
Thank you, Traveler....
So the nurse practitioner who I see for thyroid/adrenals, etc. went through my latest blood results and said the reason I've been coughing miserably for the last three months is asthma induced by...
My mother swears by oil of oregano and Cass Ingram has been speaking in our area a lot lately about his Lyme protocol. I asked my LLMD recently what he thought of Cass Ingram and he quipped "If...
bluelyme, my heart goes out to you. I'm sorry you are in so much pain. Big hug to you....
When I feel really lousy like I do now, I'm too tired to prepare healthy meals. Can you share your ideas for clean eating when you barely have the energy to get off the couch? I am supposed to be...
Is your tummy a mess because of the new supplements? The zinc in higher doses can cause a metallic taste in your mouth, but I don't know how much you're taking. I take methylated B vitamins like...
Several of our extended family members stayed home this year from Christmas brunch and dinner get-togethers with us becaue they had stomach flu or sore throats. Several other family members staying...
I've been a patient of Dr. S since being diagnosed in July 2014 and it would help if I could "compare notes" with your experience and progress. Thanks! Seems best for you to email me....
Moderators, what's the right way to do this? I have been wondering about some aspects of my treatment plan and would like to talk to others under the care of the LLMD who I've been seeing for the...
Tilly, I don't know whether to blame it on Lyme or "the 50's." I just saw a photo of myself on my 57th birthday last week with our family at the local Japanese steak house and oh my gosh, I grabbed...
I'm glad to see my outrage is shared. Today my husband asked me if I agree with him that it's time to sue the government over this travesty. That's how angry he is. I see that as a losing...
There are four of us in the family ages 14 to 80 yrs. with Lyme, plus our Yorkie. I already had seen how quickly our dog was diagnosed earlier this year but merely found it to be an interesting fact...
This post really caught my eye and I have to add my experience. For a year and 1/2 I have been taking a giant mix of supplements and some herbals along with Clarithromycin. I am under the care of a...
Four of us in our family have LD: my husband, son and mother. We all see the same LLMD. He had my husband and mother on Doxy through the spring and switched them to Clarithromycin to tolerate summer...
I was dx with LD June 2014. LLMD has had me on Clarithromycin ever since. I still have various symptoms and I never know what to blame on Lyme. In April I had sudden onset in both eyes of crazy...
I started Doxy in July 2014 when I received my positive ELISA and immediately got hives. LLMD switched me to Biaxin which I've been on ever since, 500 mg bid. I can't reach him tonight so I need to...
Mangaka, I was also dx a year ago with Lyme. Before that I had thyroid issues for several years and am now being treated for adrenal fatigue along with Lyme. I am homozygous for the MTHFR C677T...
My friend's 12 year old daughter was very sick for a long time and about 2 years ago ended up in Pittsburgh Children's Hospital. When the docs couldn't identify the cause after many days of tests,...
My doc included a Gluten IgG test in my recent routine labs from Quest. I'm 2.9 where negative is less than 2.0 mcg/ml. I see references on these boards to IgA/Antigliadin tests, but I'm not clear...
There are 4 of us in the family who are lyme positive, confirmed by Igenex over the last several months. My mother received a phone call this morning from our county health dept. stating that they...