Inosine is popular in CFS circles as an OTC anti-viral. http://livewithcfs.blogspot.nl/2014/05/inosine-vs-imunovir-for-mecfs.html I use a lot of coconut oil. I'd say about 3 tbs per day or so. In my...
Well, I went to the sauna again last evening. Didn't stay quite so long in the dry sauna, but stayed a minute or so past the point where my ears hurting and feeling the blood pound in my head. I feel...
I've been taking cat's claw, but I'm still cold, unfortunately. I appreciate you mentioning it though. I'm kinda in a weird place. I search the internet to find things to help me but....all the...
Part 2 of that thread https://www.healingwell.com/community/default.aspx?f=30&m=3623316 So I already do some immune-supporting things. But I came across inosine in a CFS discussion. Anyone with lyme...
Thanks! I knew there had to be something buried down in the history, but I wasn't having luck getting google to fetch anything I wanted. Reading through it now... Yeah, I never got flu symptoms when...
Some members here have both fibro and CFS, yes? Can you help me think about this a bit? I go back to my rheumy next week. Last time I saw him he said that if the bloodwork he ordered didn't show...
So my kids have come down sick a few times this winter. They go to school, and pick up stuff, ya'know. Recently, my oldest came down with the bad thing that's going around, sick for a week with...
I'm not really questioning, just trying to understand what's going on. I thought IgM=Active and IgG=Past was clear, so I guess now I know why my doctors were always so vague and non-enthusiastic...
And a new blog post http://lymemd.blogspot.nl/2017/12/all-i-got-was-41-band-all-i-got-were.html So he's saying that I may have some IgG bands, but they're under 60%, and therefore not counted? Hmpf....
This Dr J? http://lymemd.blogspot.nl/2009/12/igm-question-is-it-chronic-lyme-disease.html I'm in the 20%! I guess I am extra-special! lol. But, I developed IgG to EBV, so.... ???? Maybe not a genetic...
I'm googling, but it's not answering my questions. So here goes: 9/16/2016 - EM documented. Started doxy (100mg 1x day, 12 days). 9/20/2016 - B.B.s.l.(EIA) IgM 2.46 [Positive], IgM blot [Positive]...
Just an FYI - most "regular" cinnamon is toxic at high amounts. If you want to supplement powder cinnamon you have to get ceylon cinnamon. A tablespoon every once in a while is fine, I think. But it...
Checked my blood tests paperwork - and don't see homocysteine anywhere. There's so many abbreviations, have to look up what most of them are every time. Don't know if the rheumy I saw last week...
Wait, wait,wait. I have a sulfa allergy. Whole body rash from Bactrim. Not life threatening, but I was told to never take a sulfa again. Just fell down the rabbit hole of cbs gene mutation and...
Maybe try amitriptyline. It's like trazodone as it's an old anti-depressant, but you may have better luck with it. I've been on 25mg for a year and no weight gain or other issues. Going up to 50mg...
Oh, and my sleep this past week hasn't been good either. "Trouble sleeping" is another rare side effect. And I have rather low ferritin, should I be taking something that can cause anemia? I think...
The rheumy who thinks I probably have fibromyalgia prescribed me meloxicam (brand name Mobic). NSAIDs don't really do much for me, even high doses of ibuprofen only take the edge off my...
Curious about a few things in your protocol. Why the blueberries? I know they're healthy, but I can't find out if they have any nitrates. The highest nitrate level in fruit seems to be strawberries,...
Yes. PTLDS and PLDS is used pretty interchangeably in the literature. My point in the other thread is that people who have many of the same complaints we have, but can't point to a cause, get a label...
So a few days ago I posted in another thread about fitting PLDS to a T and joking about "Fibromyalgia Type 2." So get this, I went to see another rheumy the other day because my GP and I were...
Just curious - Do lots of people with chronic or PLDS Lyme have had previous EBV? I know that the majority of the population will end up having EBV antibodies, but just wondering if this combo of...
Do what your body tells you and what makes you feel best. You have my permission. :D The only thing is to watch your protein. There's calculators online that tell you what is too much. Boneless,...
I asked if there was a reason you did keto because some people do keto diets for psychiatric seizures or to control diabetes or whatever. Diets are personal things, but I was wondering if there was a...
Just to add on to my previous post - I was googling last night and found that the chronic tendinitis I have also sometimes shows up among fibro people (interesting....). So I was poking around on...
I'm not sure if grains are easier to digest. If they are heavily processed, like a cracker, then yes, it's easier to eat. But that goes for all things, hot dogs are easier to eat than a steak. White...
I wonder what the finger vibration test is. Or how I would do on it. I got my nerves all checked out last summer and those came up fine. I do know that sitting in the car with its vibration have...
::hugs:: I feel you. To top it all off, the PT I saw was convinced that my problems all stemmed from laying around in bed all day (not true) and was determined to "whip me back into shape" (really...
Yes, this is something I'm dealing with. My symptoms, starting a few weeks after my initial doxy Rx, started with tendinitis in my hand. I'd had tendinitis in it before, so it initially got waved...
I agree that 3 meals a day is a modern phenomenon. 6 small meals a day is a whack idea. The idea that our ancient ancestors "grazed" all day is probably even more whack. I also agree that fasting can...
Thanks for investigating this astroman. My issue basically boils down to chronic tendinitis everywhere. Has my GP utterly flummoxed. Just to clarify - did you ever have noticeable inflammation or...
Yes, yes, yes, yes.... TMJ not so much, but the rest is yes. I had EM and positive blood test, so yes, I have definitely had Lyme. So you could, too. Stress and burnout are crap diagnosis. It's...
There's a condition called costochondritis - maybe look it up and see if what you feel matches. I'm pretty sure I have it - but I have all over tendinitis, so that's just another part of the same...
Toxaprevent is this https://www.internetdrogisterij.nl/p/froximum-toxaprevent-pure-180ca-835810.html It contains Cinoptilolite (MANC) 400 mg. Looking that up - isn't that just a form of zeolite?...
Whole Foods has probiotic kefir in the refrigerator in their supplements section. There's a tasty one in a purple bottle - the name escapes me. I used it with my son when he seemed to be having...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2939615/ I took ALA last summer, along with some NAC, for all the tingling pain in my extremities. It didn't make the pain go away, and then I got nerve...
To clarify - there's is no GMO popcorn. Popcorn is very different from field corn and sweet corn, and there's no plans (or incentive) to GMO mess with it. And Organic does not mean not-GMO....
I found some organic super-dark chocolate on sale the other day. Got home and unpacked the bag. Later that night I thought "Yum, I'll treat myself to some of my dark chocolate!" I couldn't find my...
I'm in NL, so my vendor name may not be very useful to most English speakers. But the name in Dutch is "discount drugstore." Mal is Malate. I think it was some fibro forums where people were saying...
Oh, yes, bone broth as well! I have some sitting in the fridge and freezer. Gotta remember to take it. More drinking potions! Ha, I was pricing out BCAA with my cheap online supplements company and I...
So I've been reading up on this approach some more. Found this other old thread https://www.healingwell.com/community/default.aspx?f=30&m=3934933 The suggestion of silica led me to...
Ooooh, yeah, you had a previous post in November - https://www.healingwell.com/community/default.aspx?f=30&m=3945648 I missed that. Maybe because it had morgellons in the title and I was like "I...
Hmmm - In all the blood work I've had over the past year and half, the only thing that really popped up (other than WB thinks that maybe possibly your obvious EM was real) was borderline low iron and...
I think what your rheumy is thinking of is the "original" cases of Lyme in Lyme, CT were noted for causing knee swelling. I have heard of people saying that they noticed a swollen knee, but in...
Just chiming in here to say that I did, absolutely, get lyme, and pain in my fingers and toes, and up from those to my body, are my main complaint. It's also in my chest. There is no swelling....
Look up costochondritis. Does that seem to fit? A few months ago I ended up in the ER on a Saturday night because I had all the "go to the ER right now for a heart attack" signs. I got two EKG's...
Just want to offer a general correction - Nutramedix actually only has 100mg serrapeptase in each pill. The other 400mg is Jerusalem artichoke. I'm not sure what the reasoning is behind that mixture...
Good advice everyone! Yeah, maybe find someone else. I'm concerned that if they don't consider the tendons I might sprain something trying to follow their program. I'll ask them about foam roller...
So, I'm stuck now just mostly treating myself. Cat's Claw seems to be giving me a good deal of improvement, but yeah, I'm not better. The only doctor I've met in the journey so far who seems to...
Just bumping this back up to say... I did try out simply dropping the Banderol under my tongue (look in a mirror to count the drops). I think there's a reason you dilute it in water - "clean" it...