I am quite certain I received mine from a bad flea infestation. I've not seen too much documentation to back that up, but my LLMD believes that and said he's had other patients who are quite certain...
What kind of treatment do they do there? I'm having trouble understanding their program just from their website....
I've been waiting to post an update because I'm only 4 weeks out of the clinic. I have been holding off to see how I am doing after detoxing. Preliminarily, although I had a very rough experience...
I know it's been a long time since you posted this, but I recently went to the St. Georg Klinik in Germany and would be happy to answer any questions or tell you about my experience. Feel free to...
I too have had seizures but clear testing. I had several this year while I was on Flagyl. I don't know if it's a coincidence or not, but I haven't had one since I stopped the Flagyl....
Although I don't believe I had the severity of what you've had, I have had some similar symptoms. My suggestions: 1) pick up a copy of Dr. Ginger Savely's book, "Morgellons, the Legitimization of a...
Thanks for your update. I've been wondering how you've been doing. I'm glad to hear your daughter has made significant improvements. I am in the process of discerning whether I should go to the...
Doing alright. Thank you!...
What there's "no such thing as" is a place in this world that has not be affected by Lyme. I'm sick of doctor's dismissing people because they think Lyme is not in this area. I got the same crap from...
CALLING ALL MORGELLONS COMRADES! Please consider participating, it is absolutely VITAL to this cause... Taking the time to fill this out this registry will help legitimize this disease as it will get...
It is crazy expensive, but it's to the point for me where I feel like it's time for my "Hail Mary." And this is it. I also have a spouse with Lyme, but he is not at all as affected as I am. It...
I just sent my medical records and paperwork to the St. Georg Klinik. In my research, I've talked to several people who have went there in the last few years and all of them I've spoken to have...
I've read this before (or something similar) and I think it does bring up some good points. I have used Ivermectin and Albendazole at times as it's the only thing that improved my skin issues...
Thanks for the info Girlie. I think I did see that post. I would just love to hear about how they're feeling a couple of months later....
I'm wondering if anyone has heard from Evanston and the trip to the St. Georg Klinik in Germany a couple of months ago? Anxious to hear how you're doing after treatment Evanston? And your daughter?...
I normally am predisposed to sunburn as I am fair skinned and freckled, and I had to be super cautious with both minocycline and doxycycline. I basically didn't venture out without cover or heavy...
Well crap....
I don't have any answers for you, but I too have experienced this since I've contracted Lyme and Bartonella and Morgellons. I've been treating w/ ABX for almost a year now and have seen no...
I am also happy with my LLMD in central Missouri. Send me an email and I can share info....
I have Morgellons as well. I am treating according to methods in Savely's book, "Morgellon's: the legitimization of a disease" that I think someone mentioned already. It was through her book that I...
Can't wait to hear an update. Safe travels home!...
Thanks for the updates. They are appreciated. Hoping the treatment goes well for your daughter tomorrow....
As someone who is also considering this treatment, I anxiously await to hear how it works for you and your daughter. I hope this does the trick for you and Lyme soon becomes a distant memory. Best of...
I have not yet, it's next on my list of things to have done as I can afford it. My LLMD gave me some names of biological DDS's. I've had heavy metal testing so I need to get these fillings taken...
Try addressing parasites in your gut then. See if that helps. That's the route I took and now I'm morgellons symptom free.[/quote] Thanks for the reply. Can you give me some suggestions for...
Well, I don't have and haven't recently had any dental problems. I do have anagram fillings that need replaced, but I haven't had actual identifiable dental problems. Prior to my LLMD beginning...
I'm wondering if you can elaborate on the dental issues you treated?...
I too would love to hear about how you respond to treatment from the St George Klinik. I have also recently looked into going there and would love to hear your first hand experience. I wish you good...
I would love for someone who has been to the St George Klinik in Germany to contact me if willing, to share information about costs and your experiences there. It would be much appreciated as I am...
I've been using it for about six month and it works great for me. I have tried to eliminate heavy chemicals and artificial fragrances from anything that comes near my body (cleaning products, laundry...
My LLMD has had me on Doxy and Rifampin for a couple of months now to treat Lyme and Bart. I've seen the most significant improvements while on both of these meds together. My doctor said one of the...
Sounds like you've seen the best of what Nebraska has to offer! I am actually doing the Beyond Balance protocol exactly as Savely suggests in her book. I've only been on it about three weeks as...
I'm in the middle of nowhere... Nebraska. I couldn't get a doctor near me to take me seriously on either Lyme or Morgellons. Most of the doctors here are clueless on both of these. When I figured it...
Thank you both for your replies. Honestly I'm a little overwhelmed with all the treatment information. I suppose I have to get better at understanding all the treatment language and lingo before it...
Would you be able to share more about your yeast/fungal focus and/or protocol? I've had Morgellons for approximately six months and recently started Doxy, Rifampican, and Nystatin. I'm sporadically...
I am near Omaha too and had to find one out of state. I go to my first appointment with one near Columbia, MO next week. The Lyme Association of greater Kansas City was helpful for me in finding...
I agree with some of the other posters in regards to Morgellons. Dr. Ginger Savely's Morgellons book helped me to understand what it was and it's connection with Lyme. Most people have reported that...
Chicken - Have you read Dr. Ginger Savely's Morgellon's Book? It sounds as if you're treating much in the same way she recommends. I recognized the Morgellon's symptoms I had first and after reading...
I would love to hear an update as to how you're feeling almost a month later. Is this the center in Wichita?...