Sara you seem like such a kind soul! Thank you for all of your input. I'll add mast cell to my list of possibilities to explore. And thank you Traveler I will look into possibility of mold as well. I...
It would actually be better to describe it as being strangled....
Hey everyone. I have been treating Lyme and bartonella for 3 years. I'm assuming I had it for about a year untreated but who knows. Anyway I saw an Llmd for 2 1\2 years and was on abx and supplements...
Hey nic. I was on rifampin for quite some time as you know. My throat would ache/ burn once a month for a few days and then go away. Bartonella can cause sore throats so I attributed it to that. It...
I'll keep you updated for sure. I'm most nervous about air hunger. Which i haven't had as of yet. That alone is increasing my anxiety. I'm only on day 1 so not much is happening yet. Sorry your...
Thanks for your input guys. Figured it'd be really bad. Been through so much pain and mental anguish already and it's been worth it so far. Hopefully this is the key I need to move forward....
My head pressure has been horrible lately. But I thought it was lyme. It's sometimes only on one side. I have some activated charcoal and will up my detox game. Thanks for the advice....
Hi Hannah. I had my wisdom teeth extracted months ago and they have been healing slowly. Ive heard lyme and co like to concentrate there since it is a weak spot. I didn't experience the heat on the...
This definitely looks like bartonella to me. I've gotten them before on my neck and my llmd said bartonella. Are you treating for bartonella?...
Girlie- the rash wasn't from allergic reaction. He attributed it to bartonella. Switched off to start babesia treatment anyways. Thanks!...
So my llmd thinks I might have babesia. Throughout my 10 months of treatment I've never noticed any hallmark signs. As of late I've been getting night sweats and anxiety which feels different than...
He told me to stop taking it as well. The burning makes me think Bart but you never know! Thanks!...
Hey everyone. I've been on a rifampin/plaquenil combo for 16 days. I'm currently 10 months into treatment. I've been on rifampin for months now and the plaquenil is new. I've developed a rash on my...
Thanks for the link I'll check it out tonight....
Smhse thank you as well. The food list will help I'm so glad you posted about that. That was my next researching venture. I've been on a pretty strict diet but have introduced more since I was losing...
Thank you traveler. It's only really just started to bother me this week. I've been researching but there are so many options. They started to swell in the morning as well. I have a toddler so I use...
Also do you know of anything besides pain meds to help with the arthritis pain?...
Thank you so much! I'll look into this brand! Also thank you for the tips it's always a little unnerving to start something new! I hope this helps!...
I've gotten my bartonella load down and now my lyme is kicking in. My biggest issue is lyme arthritis. I've decided to add teasel root into my treatment regime. Could anyone please direct me on which...
Thank you for putting it up lymesick!...
Is up on Dr Horowitz Facebook page. Very lengthy and informative! Thought I'd share. Not sure how to put the url on here though....
Hi red label. I understand where your coming from. I weighted 125 before getting sick. I gradually went down over a year's time frokm the lyme and co.. Since treating and going on the diet at one...
Thank you pirouette for your extensive knowledge. I will choose something for liver support. And check out a binder as well. I'm not responding to other treatments for my recurrent yi's. Hoping this...
What a great response thank you! I'm taking it every other day. Today was my first day on it. What's weird is I've been on it before and didn't have this reaction. I'm on omnicef and rifampin with it...
Hi Hoagie. I've been on omnicef for 7 months now. I was on it with zithromax for a few months. I saw great improvement with my lyme from the omnicef. My llmd had me pretty much symptom free besides...
Hey all im currently treating yeast with diflucan. It's making me feel like I've drank a ton of coffee. I cant sit still and feel a bit jittery. Just wondering if any of you have felt this with...
I was where you are not too long ago. I'm in my 7 month of treatment now. There was doubt of diagnosis because I didn't want it to be true. I was also scared about my future and treatment and felt...
Also more members are likely to respond if you title your posts....
Im so sorry you have to deal with your mom acting like this during this hard time. It's likely she's overwhelmed but that is no excuse. As for the microwave meals you should really be eating a...
I'll try taking it after breakfast tomm. See if there is a difference. I dont want to get taken off of the rifampin as it is working for me. Ill be seeing my llmd tomm just in case! Thanks, because I...
Taking it an hour before eating. Ive never had this symptom before so it's making me uneasy as it's so uncomfortable and new. I'll try eating more maybe that will help thanks for responding....
I also have some bloating and it feels as if my stomach wants to explode....
Im on second month rifampin and have been herxing for a good 2 weeks. It has subsided some. But now I have this burning discomfort in my lower abdomen. It gets pretty intnese. Is this from the...
Yeah I started on full dose. No gradual increase. I will try taking it with food and see if that helps. I literally am in so much pain and can barely walk around. Im tough and I will stick through....
Evanston thank you for letting me know you've experienced this herxing nightmare as well. I want to push through this if it will be worth it in the end. This is nothing like the herxing I've had...
Hey my llmd has checked my liver levels and they have been fine thus far. I will stop if it starts messing with my liver for sure. I was nervous to take it so far. Im on omnicef with it for right...
Hey all I'm on my 2nd month on rifampin I've been treating for 6 months total. I've herxed pretty good on other combos but this rifampin has me herxing non stop. I can barely walk which I expected...
Oh no sorry about that Girlie! I'll enable my email Mergirl....
Hi mergirl. I too live in RI and have been treating for about 6 months total now. I have lyme and clinically diagnosed bartonella. Feel free to email me im not a pro but I'm here to help with what I...