I have a lot of inflammation also and it manifests in different ways. In terms of my stomach, I feel a fullness in my upper abdomen that’s not related to eating. It also feels really stiff at times....
I’m so sorry you’re dealing with this and hope you start to feel better soon. I have an endoscopy scheduled for Wednesday so am feeling a bit nervous to be honest. It’s my first and I’m most nervous...
Huddie a friend of mine gave me this advice and it really helped (and I’m not very spiritual or good at listening to my body so I was really surprised this worked for me. And maybe it might be a good...
Huddie I still have Lyme symptoms- lots of gastro ones but also have neuropathy (pins and needles and weakness at times). So I still have symptoms but can function fairly well....
Huddle, Try not to worry. I know it’s easier said than done. I had both vaccinations in April/May and took Sara’s advice and loaded up on vit c and glutathione. I had no reaction to either jab. All...
Hi Huddie, I’m not sure if you were addressing this to Sara or me. Can you describe the type of pain and did you feel like it was organ pain or muscular? Mine feels more like internal organ pain....
Thanks Sara. I’m experiencing a lot of almost burning like pain in my back that got worse after a cup of herbal tea. The pain is in my mid back area- mostly on left side. Making me really nervous to...
Thanks Sara. Have you experienced this again or not since that time where it lasted 2 weeks?...
Sara how long did your pain discomfort last and did it go through to your back?...
Thanks Girlie and Sara, I’m hoping this goes away but looks like I’ll have to go back for more tests. Just hope it’s not my liver or pancreas since it’s really more in left mid back now....
Thanks Girlie! Did she have back pain on the left side and along the spine? This is newer for me so not sure it’s the gallbladder. Plus it’s a burning pain at times so I was wondering if lyme related....
I’ve been experiencing burning and dull pain that migrates all around my mid to upper back. Sometimes the pain is in my upper right abdomen and sometimes it’s in the upper left but it’s mostly in my...
Just wanted to check in and let you all know that I've had very mild symptoms since the vaccine. I drank lots of water (alkaline water mostly) and took vit c and gluthathione in good amounts. Had...
Thanks so much everyone! I’ll let you know how it goes...
Can anyone who’s had the vaccine give me any advice on what they did to make it as easy as possible. I’m nervous about getting it and kicking up my lyme symptoms. I get the Moderna one. Thanks in...
This is a newer symptom for me too. Started last fall the same way you describe— could feel it typing. It got intense after the new year — went into weakness in whole arm and some pain as well as...
I posted about the sweet taste in my mouth a few weeks ago. You can try to search that thread as there was good info. Mine went away after a week or so. I started taking NOW brand Candida...
It’s the Now brand “Candida Support”. Just started it yesterday so will have to see....
The weird taste has disappeared so I'm thinking it may have been neurological. I did get some candida support which I haven't tried yet but will soon. Thanks!...
Pots, is enteric more effective?...
That’s amazing! Good for you!!! Can you tell us what your major symptoms were, how long you’ve been treating and what abx/ supplements you took with disulfiram. I have neuropathy now so am nervous to...
I know what you mean Aerose. Everyone I know who got it responded well to Doxy. I’m the one stuck in the chronic phase. Thought I’d be done with it in a year max— 7 years later and I’m still dealing...
Thanks Hearts! I definitely have a white coating on my tongue. Will check this out further....
Panda, does hairy leukoplakia give you that sweet taste? Thanks...
Hearts just saw your Candida mention— why do you think that? Do you have this too and is it caused by Candida? Thanks!...
Thanks everyone, will definitely take all of this into account. Sweet taste is now being followed by a bitter taste. This stuff just doesn’t let up!...
Thanks Panda Fox, really interesting. I'm glad yours seems to have resolved. Not sure if this applies to me as I haven't changed my diet and have been having carbs but it's definitely worth thinking...
Thanks Girlie, just had bloodwork done about 2 weeks ago and A1C is normal. Think it’s lyme related but don’t see much about it. WBF so the salty taste has resolved for you?...
Anyone else get this? It just started happening the last couple of days and is not related to food. I started taking Body Bio PC a few days ago. Does anyone think it’s related to this or some weird...
Happy Birthday to you both!...
I’m so sorry you’re dealing with this. I don’t have experience with this symptom but wanted to bump your post up in case anyone else does. I really hope the acupuncturist can help. All the best....
Thanks Sara! All really good suggestions. You’re compassion and calm is so helpful and I’m really grateful to you. What’s so unnerving is the weakness I’m feeling when typing. It’s not as bad if I...
My pins and needles in hand/arm and some slight numbness and burning sensations are driving me crazy. Getting harder to type on keyboard. Anyone have and suggestions to help with this? I’m back in...
Sara, I’m sure you’ve thought about this but are your new mattresses free of fire retardants etc.? I had extremely high levels of fire retardant from a memory foam mattress (I was ignorant at the...
k07 I will try those forms, thank you! Do you notice a decrease in the numbness vibrations when your b12 levels are good? Also I forgot that there is b12 in the Rawl’s protocol. It’s hydroxocolbamin...
dcd, if I don’t have pots and only have the pins and needles in my left hand/arm is is it still considered sfn? And my vibrations are body wide and like I’m plugged into an electrical socket....
Orbiting can you tell me what your symptoms are? And how long have you been drinking the cistus? I get mine from Dr K’s associated co. In Germany. Interesting side note. My mom who does not have lyme...
I don’t have POTS. Is that a symptom? I have to try to find one that’s lyme literate or at least open to chronic Lyme ....
k07, that's really interesting. I'm taking a bcomplex from Solgar. The b12 is 50mcg (cyanocobalamin). Sounds like you are taking a much higher dose. I only took it for about a week before I had the...
Sara, have you thought about disulfiram or BVT? I'm seriously considering one or the other. Sorry you're having neuro symptoms lately too, it's just stinks!...
Thanks dcd, this isn't something I want to believe is true but I should probably look into it. I appreciate your help. I've been to two neurologists in the past 5 years. The first time when I...
dcd2103 feels like I'm vibrating, yes like a cell phone but all over my body. Sometimes, under stress it's worse than other times. Every once in a while it will shut off and I feel somewhat normal...
Thanks k07, appreciate your reply. I just got my b checked last week and it was 725 (B12) and the Folate, serum was >24.0. I had been supplementing with a B complex (started taking it when the pins...
Thanks Sara! Question, why would I be getting this symptom now though? As I stated I've been at this for 6+ years and this is a new one so that's why I'm concerned. Would love to avoid the neuro if...
Yes, I had that last spring but it started a year before that. It was the strangest sensation. Felt like I was on a rollercoaster. I was treating pretty heavily with oral then iv abx at the time. I...
Looking for advice. I’ve been at this for over 6 years. Done conventional abx and herbs over the years. I think I hit lyme pretty hard (few months of iv rocephin last spring). But now I have a new...
I know it's really easy to go down the dark rabbit hole, especially when your symptoms are flaring or your getting new ones but please try not to go to that dark place. We've all been there and I...
There’s Dr C in Mt Kisco and Dr Horowitz in Hyde Park and Dr L in Pawling. I wrote out their full names because these guys are practicing LLMDs and don’t hide it ( so hope it’s ok ). Dr L is the one...
Thanks JB, I've heard about that with benzos, that's an interesting theory about the wine....