Thanks for the input. I have no idea about confections. Girlie are you making progress with taking flagyl twice a month ? Only twice per month is a little less intimidating to me than taking a second...
First I'd like to thank everyone here for your advice over the past year! I am probably at about 40% recovered and for the past month have been able to fairly comfortably shower again after over a...
One more question for you guys, I know you aren't doctors but I'd like opinions since my options here for treatment are rather limited. I got doxycycline from the pharmacy a few days ago and have...
Hi Nick, I have seen the DNAconnexions test it is something I will keep in mind thank you! My balance issues are best described as feeling as though I'm standing on a floating dock and/or boat all...
Thanks that is also an idea! I am going to send an e-mail out to inquire about the online consult and get a price. I guess I will then go from there. I just don't know what else this could be at this...
So, one of the great things about Taiwan is that there is universal healthcare here. But, in this situation that would likely keep me from finding a doctor that would follow his recommendations....
It seems unlikely that I could have any other Lyme testing here, there is a center that I could pay out of pocket at a research hospital in the south for different types of testing, but I don't have...
Hi Girlie, Thanks that seems to match what I've been reading. I think I can safely rule out syphilis(with the 2 negative tests), Yaws, Pintas, and Relapsing-Fever... my symptoms don't seem to match...
My pain has remained more or less the same. The balance issue has never stopped. The only new symptom I've developed recently is pressure in my left eye, but no abnormal findings on eye exams,...
Hello all long time no see! I'll post a brief summary of what's been going on so far. I haven't posted on this forum for quite a while because I had a negative ELISA test and then was later diagnosed...
I'll keep taking them at the very least until I run out of the new order I placed this week (added eleurtho and Chinese CC). I did some more research on sulfasalazine. It apparently combines aspirin...
No worries! My symptoms to me did seem like Lyme as well as the timing of the symptoms starting being a month after I was back home and in an area confirmed to have ticks (removed ticks from a...
Sorry I keep calling it my pelvic bone apparently it's called the sacroiliac joint....
Thanks for the info! The sclerosis of the pelvis is the other indicating factor, although the spine is normal that damage can be seen on my pelvic bone. (He called it sclerosis but that may have been...
Hi Girlie, I never had a positive lyme test but only had the 1 negative ELISA. Was treating Lyme based on symptoms, being around ticks 1 month prior to symptoms, and the teledoctor suggesting it...
Hello all, First I want to thank everyone for the support they've given me on here it's been great! I went to the rheumatologist today and he did diagnose me with AS. The blood test came back...
I don't have any positive test results as of now, but have also had this symptom on and off however, I don't really consider it a "symptom" for me. I think in my case it's because of all the...
Lvg123, If you are based in the states and planning to go back to school I'd recommend checking out your local OVR office. They provide some financial assistance for job training (which includes...
Thanks for the info Yellowcat and Girlie! Yellowcat- I started seeing a chiropractor once a month about 4-5 months into developing symptoms (when symptoms progressed from just balance...
Hmm if it's more positive I'll think I'll give it a watch right now. I could use some reassurance!...
I didn't realize there was a second one. I'll have to watch it at some point... though not right now. When I watched the first one I was hoping for reassurance about what I was getting into if Lyme...
Thanks! Do you know what to do for the andro though? I've seen here http://buhnerhealinglyme.com/the-protocols/#LD the dosages for JK and CC as tincture ,but the dosage for andro is only listed as a...
I've looked into work at home things from time to time just to supplement income though not as a main gig. I've done and still do on occasion amazon mturk, but you definitely can't make a living...
I don't know anything about it, but I also noticed on the link you posted Astroman that many of the reviewers only left 1 review (for that product)....
Amy- So sorry about your husband but it's good that his pain is gone. I do fit the statistic (26y/o man) but my other symptoms just don't seem to align with it. I do have a slight vision problem...
Yellow Cat, So sorry your pain is still the same 13 months in. With the positive HLA-B27 were you diagnosed with AS? I'm not sure the rheumatologist ran this test, I don't believe he did. Honestly...
Thanks for all the responses everyone! 1000Daisies I'm very sorry to hear about your friend. My back pain occasionally is in my lower back when it is it kind of feels like it radiates from the...
Astroman, if you don't mind were you tested before finding out that you had Lyme or were you tested after already knowing you had Lyme? Also I wonder what exactly this doctor is looking into with...
Hello again all, I went to the rheumatologist today and all blood work was normal. The doctor ordered an x-ray of my spine and pelvis and ordered nephelometry blood work (I had never heard of this...
Thanks for the information! I'll have to see what I can do. I'm thinking that if I don't have any positives on any of the other testing I have done that Lyme is probably the most likely culprit. I...
I see. I think that perhaps that'd be possible. I don't know if this infection doctor would sign off though, she's pretty adamant about looking for other causes (though she hasn't said it for sure is...
Thanks for the info, I'll maybe go ahead and start with 2 capsules tonight then (the packaging says to take 2) I don't think I can do Igenix from overseas as I think you need to have it ordered by a...
Kat- so you take 4 capsules/ day? I just read the package it's 300mg. And interesting about your LLMD, I think the lack of diagnosis so far is what lead me to Lyme. It would be nice to be absolutely...
Update : found activated charcoal at another pharmacy. I think its either 200 of 250mg/capsule . How often should I take it and how many? I already know not to take it with the herbals or food. I...
I'll check into ordering MSM, went to the pharmacy, they don't have activated charcoal. I'm also taking curcumin in case it is herxing I'm experiencing. I also started taking a supplement containing...
Sorry to hear my condolences! Wishing you and your family well as you heal during such a difficult time....
Thanks for your responses! Kat1000 - Would you suggest I stick it out with the herbals and not ask for more abx (not even sure the doctor would prescribe, there's very little understanding of Lyme...
I have not been able to find an LLMD in Taiwan. The only cases in Taiwan of Lyme are all imported (and only 17 cases since 2007) so I don't think there are any LLMDs here....
My symptoms started in December 2016. I was home for a visit in western PA October-November 2016 which is when I believe I would have been bitten if this is Lyme (I was at a bonfire near the woods,...
Well I finish a month of doxycycline tomorrow and see the infection doctor again on Thursday (supposed to, we are expecting a typhoon here in Taiwan Wednesday or Thursday so I may need to...
Jinna, I am unsure the exact type of test it looked like they ran if as and western blots on all of the different types of samples. Though one said it was a culture I don't recall which test they run...
I'll admit I didn't read all the posts (reading from my phone again) but dizziness is my worst symptom. Like you it varies in intensity but is constant. I wouldn't describe mine as vertigo because I...
I'm writing from my phone I will try to activate at home. These are available online though ? I live in Taiwan so that's why I was looking for an online consult to show my Taiwanese doctor. Also, my...
Thank you for digging up the information ! And thanks for the price estimate sheeks! Jinna are you talking about the same online consultation I am or a different one ?...
That link you provided I don't think was the machine I was talking about(it looked interesting though). It could have been a mouth piece like Girlie was mentioning. I really can't remember sorry :/...
Hey all, I'm on my last week of doxycycline right now. I haven't yet decided if I'm going to be continuing to treat for Lyme or not. The last 2 days I felt like I was maybe feeling a little better,...
Of the ones I'm familiar with I would suggest the trazodone. I agree with girlie on the seroquel. I'm unfamiliar with neurotin (gabapentin) being used for sleep. As far as I know that is usually...
Thanks again! I think the lemon juice and dry skin brushing has been helping a little. I still feel far from ideal, but not nearly as bad as I did on Saturday/Sunday. I'm still taking the doxy...
None exist here from what I've been able to find. I'm from the United States but live in Taiwan. Otherwise, I'd be giving one a try I think....
Ok thank you I'll keep up with it! Another random question, is it possible to sleep too much when dealing with fatigue from Lyme? I know in general oversleeping is bad but I would assume that while...