Thanks for the link, Girlie. Just copied and sent to my parents and sister to get them on the same page as me....
He has slurred speech along with coughing/chocking episodes. He has been on IV abx since late Spring-no improvement at all. He’s unfortunately in a rapid decline. Hence my decision to reach out on...
Thank you for your response. Yes, I’m familiar with Martz. That’s part of what’s convinced me that my dad may not have ALS. Dr. C is Daniel Cameron. I’m posting his name now because he is very...
If you were just given a terminal diagnosis of ALS ( by a Cleveland Clinic neurologist) and have chronic Lyme ( not responding to current treatment) + bad fungal infection (histoplasmosis- also not...
Girlie, I’ll email you now..thanks!...
My dad has been in treatment for over a year for Lyme and is going downhill quickly due to ALS like symptoms. He Is working with a neurologist at Cleveland Clinic who has told him she is pretty sure...
Wow. Thanks for the great information everyone! My adrenals have been tested (multiple times) and are functioning normally. I do have hyothyroid and take 30mg Armour daily. I will look into...
Here's the list of everything from my doctor since I started seeing him this Spring: Inflammamax 1 scoop twice a day Chlorella Caps 1 pill twice a day with MC-drops Prescript-Assist Pro 1 pill at...
:confused: I am at my wits end dealing with fatigue & exhaustion. This appears to be the remaining constant Lyme side effect that I am experiencing. I have a LLMD who keeps selling me on different...
I've been on Tinidazole since January 12 (along w/200 mg of Minocin) and haven't noticed any new side effects or issues. My pain has definitely diminished. Biggest issue for me is extreme...
I am currently seeing Dr. M in Keego. During my initial visit w/him back in November, he didn't actually think I had Lyme based on my symptoms. However, I had already sent my blood work to IGeneX...
Db, The Diflucan was added at my request to combat any major yeast issues as I am prone to them when placed on abx. However, someone else on this forum directed me to a useful website by a doctor...
I just came across this supplement in the protocol book from Standard Process supplements as something to take when fighting Lyme. Is anyone on it/been on it and can you share your experience?...
Dancing Bear, It's good to know that what I am experiencing on Minocin is "normal". Thanks for posting your symptoms. I have been on this abx since 11/18/2014 and was feeling great until 12/4 when I...
Searching1, The $200 or $260 (which is the test I paid for at IGeneX) is worth it's weight in GOLD. I suffered for 4.5 years, thought I was crazy, husband/friends thought I was a hypochondriac...went...
BDL, I'm assuming you live in Michigan. If you need referrals for a LLMD doctor, private message me and I will send a couple your way. It sounds like you do have Lyme. This is coming from someone who...
??? Really? I would call them tomorrow to double-check that you can't do any of the tests. Yes, you need a doctor's prescription to have the tests run. I hope it's not the case for you!...
Sara3crows, If you want to be proactive while looking for a local LLMD, will your primary/family doctor order a round of blood tests for you (even though he will not be directly involved in your...
Kurry Kid, I consider the diagnosis a celebration! It's a major validation that I'm not crazy!! :turn: My blood tests w/my LLMD came back negative; he's following the results of the IGeneX tests that...
Traveler, I connected w/the nurse at my LLMD office and the MD concurred that I do have Lyme. They have phoned in a prescription for Minocin that I will start taking 2x day. I'm not sure of the mg...
Traveler, Thank you for moving this to its own thread. AND thank you for the detailed explanation of the bands and what they mean. So helpful. I don't have a game plan yet w/my LLMD. I am playing...
Hi there, I, too, just received my test results back from IGeneX and am trying to understand them. I'm waiting on a call back from my LLMD's nurse. I had my first appointment with this Dr. M...
Joey, How did it go Wednesday? I did call Saginaw and got myself on his schedule. I'm hoping for a cancellation....otherwise, I will continue with my other appt in December which is much closer to...
Joel, Please share in an email how today goes! Can't believe you got in that quickly. I was on the phone w/the office on Friday and was told February.... staceygar...
Joel, I did receive your email. Thank you. Just replied back to you. ~staceygar :smilewinkgrin:...
@ KK: Please share how it goes. I think I may know of the doctor you're seeing.....Please email name of him/her after your visit. Thanks!...
Girlie, Thank you. I just went in and updated my profile so hopefully I will receive some referrals soon. Yes, I did read the post you mention. Great info and I will be sure to follow it once I have...
Hi, I'm new to this forum and searching for help! I live in Michigan - northern Oakland County to be more precise and am seeking a qualified doctor to help diagnose what's wrong with me. RA, Lupus,...