I did. 3 months of mepron and azithro and then a few more months of no meds just taking care of myself and healing. It does happen....
People always complain on this forum that no one ever gets better. Or that those who do get better go away and never post. Well here I am. I got better. A year ago in October was when it all started....
I just emailed you but I didnt read this post first! I'm so sorry you're having a rough patch. I had 5 negative babs tests after my positive so I think babs is behind me or was a false positive. I...
Every day is different for me and I actually see more good days off meds than on. All my recent babs tests (I had 5 of them since the initial positive) came up negative. So I went rogue and ditched...
Also I'm the most technologically illiterate millennial you'll ever meet and can't seem to figure out how to check messages. Sorry!...
I'm so sorry I have been inactive. I no longer believe I have Lyme and have been steadily improving since cutting my treatment short 2 weeks ago. I dont anticipate being active here any longer, but I...
I think in your case there are pro's and con's to getting the shot. There is a chance that the shot will affect your immune system, though a localized shot may not have as much of an effect as an...
I use Pure Encapsulations and I take between 200-400mg nightly. I've been taking this dose for years, pre-Lyme. Other advice I've received is "Take as much Magnesium as your bowels can handle." LOL!...
I know we don't often get encouraging posts here, so I wanted to post about a new development in my healing: My twitching has subsided a TON! This was my most worrisome symptom. It would distract me,...
Lacey, I am familiar with that area. Please PM me....
I will also echo babesia. I started babs-specific treatment a month ago and already see improvement in these two symptoms. The physical brain pressure does not sound like Alzheimers IMO....
FWIW I think the babesia study was specifically looking at B. Ducani. It seems to be more stubborn than B. Microti....
Do you have a photo you'd be willing to share?...
Omg I am having so many of these! I also just started treating babesia 2 and a half weeks ago. Many of these symptoms I knew was a herx but I get the throat closing feeling too! I didnt think that...
I share a lot of these same concerns. And I agree that these forums are a bit disheartening for someone who is in early treatment. I've reached out to other groups and talked to my LLMD about these...
I had this symptom, too, and my doc said it was babs-related. I got my eyes checked and actually got prism lenses for my glasses that are helping a lot. I wont need them forever, but it's a good...
Yes, you need to start treating. Many doctors just don't know how to treat Lyme and have outdated information about the disease. Please find a LLMD. You will be glad you did....
I'm more and more convinced it is reflux. I've never had reflux issues before, but I've also never put so much sh*t into my body before :D I keep burping and it feels a little better, a little less...
Trust that your body is smarter and will win out! There are tons of testimonies to that....
What doesnt kill the bacteria makes it weaker. What doesnt kill YOU makes you stronger. We are all rooting for you during this next cycle....
we always read about alkalizing the body, but thats outside the gut. The digestive tract needs to be acidic, to digest and keep overgrowth from getting out of control. Many people without thyroid...
Girlie, good to know your experience. The fasciculations are not new for me. The tremors are. Are they related? I am taking biaxin with the mepron. Doc is going to change it up or add to it next...
Astroman, thanks for the GERD info. I will look into this. I can easily try D Limonene. Do you think that my pH os affected by hydrocholorquine? It's supposed to make the body more basic so abx can...
What were the results that you got? The tests stink anyways, regardless of being on abx. Some people produce more antibodies to show up on the test after they start abx, but that doesnt mean your...
I could learn from that... don't freak out over every thing! My doc says I will have clear progress after the first month of babesia treatment. I am on week 2. I have noticed a lot of improvement,...
This is very helpful. Thabks for the hope, astroman. I am having a bad Lyme day. I will have my doc look into thyroid. I know I have a nodule and it's not time to get it checked yet, but I will see...
I've been in treatment for over a month. 3 weeks doxy and then switched to mepron/niacin when my babesia test came back positive. I've had muscle twitches as my primary symptom (along with joint...
Often vitamin C (along with magnesium, iron, and some others) is problematic when you take it at the same time as an antibiotic. Perhaps that was the case for these cases?...
So not to be an a-hole, but can you make your post titles more specific? E.g. "freaking out about swollen lymph nodes" I tend to not notice titles that are too general and you will get more views if...
I would say yes. Your symptoms are not gone yet. You need to keep treating. BUT I am not a doctor and there ARE risks to abx (like all medical treatments...) You did get an LLMD, correct? Maybe ask...
Yeah my fiance just told me that I can call them to write me a 1 or 2 day script. Things you never think of when you are recently diagnosed! Thank you, Girlie. And everyone!!...
Quin, I am really hesitant to do that. Is this a legit and reliable thing that people do? How can you trust the authenticity of the drug?...
Thanks, Girlie. I will take a chill pill in lieu of Biaxin :-D And I will call. Good idea....
My insurance wouldn't cover azithro for more than 15 days so another macrolide abx had to do. My LLMD is going to switch it out or add on next month depending on how I'm responding. I think I'm...
Ooo never thought about that. It's for babs and I still have my antimalarial so I will do some research to see what herbs I could take. Thanks!...
Due to the holiday and clinic closures, I had to make my LLMD appointment 31 days from my last. I have a script for 30 days of my antibiotic, so that means I'll be going over 24 hours before he can...
Good to know! Cant blame me for being skeptical. Especially about a diet as ulinflexible as the one mentioned....
I avoid FODMAPS, too! I've had stomach issues since before my bite, and this was the only thing that worked for me. Like you said, you can't recommend it to everyone, but if you think it would help,...
Before I had Lyme cleaning up my diet affected me tremendously. I didnt stick to anything strict, just "eat less crap and more good stuff." I very seldomly eat dairy and I would regularly skip...
I'd like to see the empirical support for this diet. For example, I never knee almonds were a no-no for viruses. Can you provide some studies that show that?...
Oh no, I know I have neuro symptoms. My legs are currently twitching as I type this. I just don't want to have to worry about Bell's palsy :(...
Ugh I have this, too. Sometimes, usually at night, I cant even swallow at all without a ton of effort. Not happy to hear it's a cranial nerve. Just hoping to avoid major neuro stuff :-/...
Mine was 1:80. Either way, my doc said 1:160 was still borderline. Of course it's going to depend on the doc. My friend who is an ER doc said that she sees patients with elevated ANA all the time...
I'm wondering what your titer was. I had a positive ANA with a pattern that mimicked scleroderma, but my titer was so low that my doc told me my symptoms were due to something else and my positive...
I had a borderline positive ANA before I knew I had Lyme. My primary doc pretty much said it could be caused by anything (including an active infection). Not everyone has a positive ANA. And...
I would always encourage one to be skeptical, but also get as much info from as many reputable sources as you can. A lot of the info on this website was challenged in empirical research. Dor...
Thanks, Daisies. Yeah I'm glad to have this community while dealing with some not-so-fun stuff....
Those are my lyme symptoms. And they have changed for me or moved within my body since I started having them. Just my two cents....
My LLMD has me on Plaquenil. I have been on it for over a month but I do think it is making me feel lightheaded. It's not so bad that I feel like I need to stop taking it. I told my LLMD about it and...
Not everyone has ANA come up, but it's just one piece of the puzzle....