I would highly recommend getting your yeast levels tests as well as tested for food allergies. Most of my neuro issues ended up being from those two things. Sugar feed yeast so this may be why you...
I highly recommend getting tested for food allergies as that really helped me-especially with the neuro issues. Anyhoo I was NO dairy, eggs, yeast, sugar, wheat, lettuce and I could have small...
JB1994 - ya, this is where it is so important to have a doctor that understands how medicines interact with each other and with our diagnosis. Sometimes though it still takes a little trail and error...
Sandyfeet and Girlie -- Thanks for the suggestions, I will look into those. I do think the mold from the old rent house/ renovations played a large part in the relapse so hopefully soon that will be...
Brief backstory hi-lights: misdiagnosed for 10+ years, finally found correct diagnosis/ LLMD while on deathbed and after 2-3 years of intense treatments went into remission, stayed in remission for...
JB1994- I would check out mentalhealthdaily.com , they have a what appears to be a pretty good breakdown of what exactly over-methylation is and how it effects the body and possible medication...
Girlie- you're mighty welcome :) Running Wild-I agree that docs should do better about educating, or at least pointing us towards trusted websites. JB 1994 - do you mean that your body is naturally...
Hey Girlie! As far as I know methylated B's are great for everyone and especially those of us with lyme. The methylated just means that it is ready to use and the body doesn't have to work to process...
I found out about 2 years ago that I have homozygous C677T. My OBGYN and my LLMD worked together to figure out my diagnosis/ dosage. They had me slowly build up to taking what is now my current...
Ok so I had lyme and brain fog horribly when I was in college just a few years ago. So I completely get how hard it is to try to study with all of this going on. Firstly anytime I hear brain fog I...
Have you tried "working out" in the pool? The water helps to balance out the POTS so I found I was able to do more/for longer in the water. Just walking laps in the water seemed to help build up my...
Burbur and parsley both can help detox your kidneys and they help is several other ways as well (helps liver, dealing with nausea, ect.)...
Saraeli- thanks for the post. Stress is diffently one of the big triggers that caused my relapse. I think being in the midst of "shark week" has just made me a little more emotional about this topic...
Hello from the States! I'm sorry to hear that you are having such a rough time with things. I have the MTHFR gene mutation (2x) so I know a little bit about how things like that can effect lyme. You...
Thanks again for the encouragement! Girlie- thanks for the link, I will make sure to look into that....
Thank you for the posts. I think I'm just putting myself into a tailspin with all the what ifs. I think the thing that keeps circling in my mind is that before I was correctly diagnosed and treated I...
Ok so short backstory to all my questions...went into remission December 2012, got married that following fall, waited a few years before trying to grow our family. Tried everything we could (without...
Have you checked to see if you have any food allergies (google brain allergies)? Most of my pysch issues were due to / amplified by that. Something else you may want to consider doing is a joy...
dbwilco- have you been tested for food allergies/yeast levels? I highly recommend checking out brain allergies (basically how food allergies effect us). I've said it several times on here, and its...
I'm in the same boat as dbwilco-relapsed, but I'm hopeful to be posting remission status soon. I agree that FB doesn't have the same feel of community as here. Only reason I am even in one of those...
Yes my LLMD did the food allergy test and my insurance I had then did cover most if not all of it. For the yeast I stayed away from anything that would feed it including all types of sugar. I rarely...
Ok I know this will sound weird but hear me out-get your yeast levels checked out and get tested for food allergies. A lot of stuff I blamed on "lyme brain" was actually caused by those two things...
Thanks again everyone! I'm sorry it has taken me so long to respond, but we all know how crazy holidays and moving can be. I feel like I wouldn't be so stressed out on the house if we didn't have to...
Awwww, thank you. That means so much to me! My goal in life is to try to be the person my younger self needed. If I have been able to help anyone on this site just smile then I count myself blessed....
I have been where you are sooooo many times. While I was in college and still misdiagnosed I was seeing a doctor that was supposed to be the real life version of House. Yet after a few years with him...
I will also say babesia but I want to add most of mine was caused by yeast build-up/food allergies. This is something I find myself saying quiet often. My LLMD told me that even if you are on abx for...
I think that feeling better at just 3 months really depends on a lot of variables. Some of those would be: how quickly you were diagnosed, lyme vs lyme and co-infections, severity of symptoms, other...
To answer a few questions I saw in this thread--i personally will always have to take meds for this. However, because I found those multivitamin with methlyfolate I alternate between the multivitamin...
I have the C677T version and I didn't find out till I was 27 (I'm 28 now). My LLMD tested to see if I had it. All I do is try to stay away from foods that have the synthetic folic acid (enriched...
My first round with lyme had my hair falling out and just feeling brittle/dead. I have always taken really good care of my hair (hot oil treatments, deep conditioners, not overly using dye or heat)...
I'm a big fan of hot tea-green tea with pomegranate is one of my favorites. Alfalfa tea is better if its more sinus or allergy type issue. Raw honey- not only helps fight off bacteria but also coats...
DeadMan: questions: Do you think this time it will be harder to treat? Are you responding to Abx like you used to, or do you believe Abx is less effective now due to your previous history of...
DeadMan- I want to address the whole remission and relapse issue, because that is currently where I am at. I want to start off by saying that sierraDon is right-support group pages are not always the...
Sandyfeet- you will have to tell me how you like the book. One of my goals in life is to be the person I needed when I was younger. So many times we get caught up in life (especially when we are...
I was on a combo of abx and herbs between 2-3 years and then was in remission for close to 6 years. Just remember to take some really good probiotics!...
Thanks everyone! Your posts really uplifted me on a hard day. I've been trying to stay positive but its been really difficult lately. My husband and I have spent the last year cleaning out an old...
Well today used to be the day I celebrated the day my LLMD declared me to be in remission. Some of yall know, I relapsed back at the end of summer. Today is just a little hard to deal with...
YES! My LLMD is actually the one who also found out I had food allergies. I have told this story on a couple of other posts but the long story short is that abx can cause these when people don't take...
Have you tried going to a chiropractor? I noticed my migraines were more frequent / more severe if my body was 'out-of-whack'. Increasing water intake helps. Back in college mine were more light...
So a couple quick questions-could any of your meds be making you extra tired? One of mine does and I notice that I'll feel sleepy about 30 minutes after taking it, but then will 'catch a second wind'...
Here is a few things that helped with my diet: 1. food allergy test-abx builds up yeast and eventually your body stops trying to deal with it and the yeast will poke holes in your intestines and...
Thanks for all the responses. @girlie - I'll keep praying for your furbaby. It sounds like she is having a great time being spoiled :)...
@borrelioburgdoferii - I'm glad you like my sense of humor! :) I was still 80% on my "diet" when I got married and my father-in-love (who loves to cook) had a hard time understanding I couldn't just...
Its a long slow road, but just be really consistent with your probiotics and sticking to your diet. I still have some difficulty eating large amounts of dairy, but that basically is me ordering a...
Ya I wasn't too sure about it at first since I wasn't having a big reaction, until I started noticing I was having more good days. Still can't eat much at a time without feeling sick. Thank goodness...
I'm not sure if it is the Alinia or the combination of everything, but I have noticed more good days lately. Besides the brief headaches, nausea, and stomach discomfort I haven't had what I would...
My first bout with lyme my llmd discovered that I had food allergies due to taking abx over the years and not enough probiotics. So I had to cut out gluten, eggs, lettuce, dairy, wheat, almonds and...
Relationships always require work, the best ones have both partners working on the relationship together. The first time I had lyme I had gone 10ish years misdiagnosed and was basically playing ding...
Micro migraines- at least that is what I am calling it. Basically they hit super fast and intense and then usually go away in a minute or two. Usually its a smaller area and not the whole head that...
Thanks! Just a little taste of how things are going my uncle-in-law (it was his mother's house) came to check on how things were going and remarked that he liked our new fan/light in the kitchen. I...