////////////////////////////////////////////////////////////////// That’s great news that Dr J is using Or allowing patients to take DSF and MB. His opinion along with Dr H means it must actually be...
What kind of dose of MB are people taking on the Facebook group? I have no idea what dose we are supposed to take. I took MB while on disulfiram and it definitely seems to do something to Bartonella...
Rainy Cloud is 100% correct don't take MB if on Psych meds. Some people are showing promising results at high dosages in the MB group on facebook that's why I was wondering. Since, it seems DSF does...
Any of you planning on combining the DSF with MB for Bart treatment?...
It essential says DSF reduced/cleared Borrelia in Mice. It also reduced inflammation markers and antibodies. Dr R and his team backing all the hype for sure....
Traveling is the one I use to do that I haven’t been able to do since I got sick. I also miss being more social and having a nightlife which is age appropriate. On the bright side I re-discovered...
Jova, people are combining dsf with any of the before mentioned Bartonella drugs. Just go easy like girlie and Sebreg said. Gauge your response to treatment first. Also most of the prominent llmd’s...
Jova, you can take it orally and Dr H is using a compounding pharmacy in Florida I believe. He combines it with other anti Bart treatments Like rifampin/rifabutin/Pyrazinamide/bactrim/Minocycline...
For those of you bad mouthing ABX, you should read in the crucible of Lyme disease by Kenneth Liegner. The lady in that story is the lady in this study. She would get better while taking IV ABX but...
I’m with Girlie on this one, ABX long term are way less scary to what these infections are doing to my body. That being said I still haven’t found something to reverse my worse symptoms but I’m...
NIH just released its new TBD plan. Seems to be a step in the right direction if they do what’s written, only big disappointment is it doesn’t include Bartonella as a TBD....
Unfortunately only way to keep advancing is through the courts and more laws being passed. There was also a segment in the Bay Are about parents fighting schools about ticks on sport fields....
There is a set of answers out there and over the passed few years major strides have been made in research, we just need to keep going in the same direction with tests for each of the three B’s,...
I agree with all of you, we need drugs that penetrate the CNS/BBB. that eradicate each of the three B’s and preferably bacteriosidal not bacteriostatic. It’ll take at least one drug for each is my...
Yeah I’m very interested in it as well, hopefully they find some novel drugs for Babesia and Bartonella as well, since most of us have all trifecta....
I think it happens to all of us and then as our bodies become ours again it’s reversed. It’s psychological nature to react that way, we want to have some influence on our situation so we become real...
That is one reason to do IV abx - it really is easier on the GI I’m surprised Dr H clinic doesn’t prescribe them for some of his patients. Must not want the hassle... I guess? They are more work - I...
Girlie, not according to what his NP said. Dr. H thinks the persister protocols are just as effective as IV’s. Cappuccinocurls, they take new patients off and on based on current patients leaving....
Girlie, he’s close to NY city in NJ and yes his initials are BR. Rainycloud, that’s the book....
For members that have experience with both, did IV’s get you closer to remission vs orals? I’m currently seeing Dr. Horowitz NP John and he said that doc hasn’t put anyone on IV abx for a while...
Very good new book by Dr Raxlen (any one seen him?), it’s the first book that mentions the psychological and self esteem problems faced by Lyme patients prior to achieving a treatment that works. How...
Methylene blue, doctor H is using it based on Zhangs study....
Charlie, this scares me from all animals. Imagine the number of people carrying Bartonella around. Scary stuff....
I’m sorry to hear that girlie and I can relate. It’s been rough on my relationship as well, I believe you did the right thing standing up for yourself though. As more and more comes out about the...
Thanks Girlie, I’m still waiting for them to post his presentation at Lyme Disease UK as well....
The documentary looks very good, hopefully it comes out soon. Looking forward to hear Jemsek speak. Girlie do you have any recent presentations of Jemsek? I couldn’t find any newer than 2017....
Hello Toddpaul, could you share the DSF Facebook group link with us please? Regards...
Hello Limewire, Curious about the sleep study and what type of head MRI? I haven’t had a sleep study since this whole process started, a numerologist did give me a head MRI before I knew it was Lyme...
Yeah libido, energy and drive go way down. Welcome! Regards,...
Thank for the response, so seems very similar to what Dr H does for Babesia. Do you take 2 probiotics a day every day or just on days you take abx? Cause they’re pulsed correct? Regards...
Thanks you for posting! I’m wondering how exactly he attacks babesia 🤔. What’s his best combo protocol? Also, average length of Babesia treatment? Besides the pulsing and probiotic, how does he help...
Welcome Astronomer!...
Fantastic video lectures by Kim Lewis. Keep giving this guy $ he seems to be getting somewhere....
I’m now seeing JF, Dr H’s PA. I’ve had two appointments and it seems to be worth it so far. H does get way more publicity than anyone else and I went to Dr SP in CT before and the prices were...
Dr H’s office is 3k for the initial appointment of 4 hours and 525 after that. That’s all with a PA, not sure what it is for Dr H himself. Doesn’t cover testing or medications. That’s all handled...
Hi, have you tried Dr. H’s clinic? I believe they’re taking new patients. If not I’d give Dr J’s Clinic in DC a shot....
Anyone know if Dr. H or J are using this? Anyone outside of Leigner? Seems quite promising for Lyme itself, hope we can find drug/combinations for Babesia and Bartonella as well. Since chronically...
Mostly plant based diet with good quality animal protein thrown in. Forget sugar, yeast and simple carbs. As said above a combo of Paleo, Keto and plant based seems to be best. Stay away from sugary...
Welcome Hunt, I felt the same way except I was 26. I’d find a good LLMD and work with them but also educate yourself as much as you can. Through books and medical literature you can guide your own...
Happy for you! What combos did you use or who were you seeing? Pulsed or continuous? So many questions haha....
Dr. H’s office uses Plaquenil and Stevia....
How about liposomal melatonin? Works much better than the normal one....
Negative, I went with host defense after I read about Paul Stamets....
Girlie, with the caps I was taking 2 twice a day which was 1g per day total and now I’m doing a dropper-full twice a day. Which should be equivalent I believe just with better absorption I hope....
Hello all, I took the Host defense pills for about 2 months and now on the third month decided to switch to drops for better absorption. I’ve not seen anything positive or negative but pledged to...
Congrats! Happy for you! Hopefully your baseline goes back to symptom free 💪🏽....
Welcome friend! I’ve had almost mirror symptoms and my doctor thinks Lyme and bartonella are my main issues. Interestingly enough my reaction to treatment has been very similar, rough first few...
I've taken it in combination with tetra and oragano oil. Biggest herx I've had so far....
Ljohn23, sorry to hear about your struggle. Sounds like all of the treatment options have been offered but it also sounds like you need some inspiration. I’m not sure what your current capabilities...
I’d start with stretching, that alone should give you immense relief. Walking and then slowly move to body weight exercises. Top docs say to do it no more than every other day....