Wow, what an answer ! I left my house because I was so sick and in pain I cry all day long and my ex partner became angry with me. He was just so tired of all of this and didnt consider me as a...
Hi. Sick for 4 years and worse than never. 8 months ago I left my house because my partner couldn t bear me anymore and I wanted to protect my children of the monster I have become. But I love my ex...
When these sensations are very potent, I can feel it in my brain too and it is painful. I sometimes have the heart skipped beats, but it is different. My heart goes crazy for a few seconds, and then...
Hi Saraeli. I suspected for a long time that this sensation was an adrenaline surge. It has nothing to do with the heart, I have it every 2 minutes, it is very disturbing and even painful. My heart...
I have this sensation. It is where I think my gallbladder settles, just under the rib cage, in my right side. And several times a day ( in fact every few minutes), I seem to ride down a roller...
Hi Evanston.. I don t lnow if you remember me, I am the young French girl who was alone in the hyperthermia clinic in january 2018. Here in France, we are a lot of lymies with very probable covid. I...
Thank you all. I stopped all my meds, just took mino and clarithro. Things were a little better wednesday, but all came with a vengeance yesterday. I can t move, I am bedridden and nobody believes me...
Hello. My lyme is roaring, as my bart too. I am currently on mino, biaxin, methylene blue and dapsone, 50mg for 3 weeks and 100mg the last 5 days, plus hout, siada and crypto. I am switching to a...
Hello. I hate myself, I hate this disease and wznt just to die. I have lost my job, my husband, live in a unbearable of nerve pain everywhere in my body, can t walk, cry all day long. I feel so...
My Engmish is not good enough to express my thoughts but I totaly agree with all that. One week before being hit by this shit, I told to my daughter that her mom was young and nothing could happen to...
In fact all my right side is tight and it pinches the.nerves that go out of the spi.al cord. Occipital and trigeminal neuralgia are nerve pain in all the half of my face and scalp. I can t even rest...
Hello. Some members know me now with all my complaining posts.. I have lyme and bart, very deep in my nervous system. A naturopath diagnosed me with these two, very active, and a awful load of heavy...
Same here, with a sort of short epilepsy and shot of adrenaline. Since I take some gabapentine for nerve pain ( not very effective ), it seems help this symptom....
Hello. I am currently treating babesia with cryptolepis and sida acuta, and zith/mepron. I always reacted very strong to antimalarial drugs ( even suicidal trying ). And now, zero reactions. I...
No help here but I have the exact same horrible thing for 2 years now, in the right side. MS "hug" is definitively not a good word, I agree !...
Hi all and happy to see you bluelyme.. How are you ? 5 days of genta and mino were 5 days of hell and it is still hell. I take mino and dapsone now (25mg). A new llmd tries to ease my pain and thinks...
Hi. I feel like death and my bart is reaaly bad. I took 100mg mino for 3 weeks and have bart rashes every 6 or 7 days. My llmd ( France) put me on IV gentamicin since yesterday. I feel horrible, can...
Thank you Elizka and so sorry for ypur suffering. I saw my post is one week old and like clockwork I got bart rashes after my IR sauna this evening ( it is 9pm where I live). Damned Bart !! I took...
My nerve pain is trigeminal and occipital neuralgia. In my arms and legs, it is triggered by movement, for example packaging the chrismas gifts is a torture. Vibrations in car, walking etc...the...
Hi. I have lyme bab and bart. Everytime I take something against bart, I flare up in a really bad way, like being electrocuted in my arms and legs, back spasm worse etc... It is so horrible that I...
Yes oil of oregano in gel caps, 125mg of carvacrol per caps. Essential oil of ceylan cinnamon bark. I have not tried an electric heating pad but my electric blanket last year gave me full body...
Bump...
Can we herx with 4 drops of cinnamon HE and a caps of OoO ( zane hellas) per day ? I was quite fine one month ago when I started this and now things are much worse, I am in the same shape that I was...
[img]thanks Saraeli, I was sure you will respond ! Yes, it is very hard, and on the dvd they speak a lot about MCS condition but not lyme. So hard to apply this to our case. Have you make progresses...
Hi all. I begab the dnrs program last week end, with the dvds. I do my reprogramming steps, listen to my recorded voice witg positive affirmations, but I am in an horrible state of anxiety aln the...
I treated parasites but rope worms aren t real parasites. I am stucked in this hospital totaly drugged, can t walk, just e in a sort of coma.all day. And always the same pains. Nighmare...
Yes my neuropathy is awful. I can t handle my clothes and each vibration or moving like walking is terrible because I feel like I am electrocuted. My back is terrible too, I can t lay on it because...
I have dsf pills of 500mg so I began with 125mg every 3 days and was ar 250mg per day for 2 weeks before stopping it. I asked to take a break of the 2 antibiotics yesterday because I am stucked in...
Thank you for all these usefull answers. Yes, my body couldn t handle the dsf followed by my bart atb ( mino and bactrim). I stopped them yesterday for a few days, to see if it get better. I was...
I took dsf for 2 month, slowly ramped up and I am way worse. I just need a relief in pain....
I don t speak a very good English. It would br wonderful if you could have some informations about dr J. Thank you very much for your help pandasmile. I am alone in my hospital room screaming with...
I am in France. Yes I am overloaded of borrelia, bart and probably bab and can t detox ( bad HLA and cbs mutation). I don t take lyrica now, it didn t touch it before. I have 60mg of tranxillium =...
I try to do a gofundme to eventualy could see dr J.bit I am in so bad shape that travel is nearlu impossible....
It sounds to me like it is a sort of epilepsy yes. But no help in my country....
I tried everything possible on earth, lyrica, klonopin, ketamin kratom oxycodone... I just restarted my atb on monday after a break of dsf as I just got worse. I dpn t understand why all treatments...
Helllo. As usual, I am in very bad shape. Allodynia, occipital and trigeminal pain, left side weak and in nerve pain... I am in psych ward again, with high doses of benzo ( I am scared). But an...
Hi, I am alive ! I ended in the ER the 22th of july, 3 days in neurology with spinal tap and horrible headaches, and when they saw me screaming in my pillow because of the allodynia and all over...
I have some Kratom, it was hard but I have it. It doesn t cut the pain but vanish a little the electric feeling in arms and legs, and help with the depression. But days as yesterday or even today,...
Thank you for your answers, really. I am at 3 months, and took this week off but just spiralling. At ten since mid may. I am lost because we are said that oil of oregano negages the venom, for...
Hello the Bvters. Sorry for complaining but I am in a really dark place. New neuropathies ( burning feet legs), trigeminal and arnold neuralgia, and paralysis of half face,arm and leg ( right side)....
Really interesting. I am in a very bad situation and saw my gp this morning. 3 years of lyme, a lot of failed treatments and just got worse. I began bvt 3 months ago and was very hopeful about it....
Yes I checked all and my diet is quite well, vegetables, turkey ( which has b6 but not in awful levels), and my supps are american ( Iherb 😅). I dont understand. My GP said nothing, it was her...
Hello I heard somewhere that lymies could have high vit B6 level and b6 is toxic in too high dose. I never took a Bs supp, my B12 were fine and folate are very high too. I remembered this B6 thing...
Thank you all, a lot of interesting answers ! Ahah, there should be a " epsom salt bath is hell" club !!! I think thatbto listen to my body is what I need, and I will research about the cystein....
Hello. I am homozygote for the cbs mutation which means that I have to avoid sulfur products and foods. Treating a very very bad lyme with bart and bab for 3 years now, with antibiotics,...
Hi. I am doing bvt since nearly 3 months. I have a dark field microscope too and can see my blood as needed. I am in a very bad shape, pain of all type, muscular, joints, nerves... Every parts of my...
Oh I forget. Could you recommand a good brand of fish oil, epa thing ? On Iherb ? I am lost with all the pbs of heavy metals in them, bad quality.... And your amazon products never deliver in France,...
Thank you all for your answers. I do 10 stings along the spine, and I am so tired of all this pain that I do stings where it hurts. I stung my knees, my shoulders, the horrible trigger point I have...
Old pist I know, but I have the exact same symptom. When I am hot ( hot weather or exercise), I am hitten by waves of nerve pain in my torso and it comes in my head, arm, abdomen ( just one side, I...