Thank you for this post. I need to find a new doctor to deal with the EBV as well. I was diagnosed with EBV and CFS two years prior to finding out I had Lyme. I have since had recurring reactivated...
BTW, apologize if that is slightly off-topic. Just a thought....
Thanks for your post and all the information you provided. After getting Lyme Disease, I made a couple of friends who have Gulf War Illness. One of them pointed me to the Riegle Report. I'm not sure...
Chapelle & Mareish - I live in Columbia County, NY. I'm pretty desperate to find an LLMD in NY state. If anyone has a recommendation and could email me, I would truly appreciate it. My LLMD was out...
I hope you get some relief from the stress related to work. I'm in a similar dilemma. I've been sick for over five years. At one point, I had to quit the highest paying job I'd ever had. I couldn't...
Girlie - I think you are right. I found an LLMD who then prescribed long term Doxy/Amox. Doxy makes me feel pretty awful a lot of the time. I try to cheat and not take it on some days. I know that...
Running wild, Thanks for posting about your experience. It is very upsetting to see how many people are suffering from this. Are you in the northeast? I had a conversation with two people in the...
Saraeli -- Sounds good. I will send you an email too....
Thanks - I will do that. I'm pretty chemically sensitive. I've talked to a couple dentists about doing the replacements one or two at a time, at least at first. Then I can see what happens with my...
Thank you for posting this information. I have a lot of amalgam fillings. Some of them are very old and in need of replacement. I have had Lyme for 5 years (at least) but often have flare-ups of...
Hi everyone, Thank you to those who recommended doctors. This list has quite literally been a life saver. You are such a great help and support. Garion - I will be in DC to visit my brother, probably...
Sareli, If you could email a good Lyme doctor you know of in Boston, that would be great. Thanks again. *** Sorry - I edited your post to remove your email address - we’re not permitted to post our...
I have not been treated aggressively enough for Lyme, I believe. The doctor who had prescribed the Amox/Doxy has retired, leaving me with no LLMD at this point. I was told the EBV reactivation is...
Saraeli, I'm in Columbia County, NY. I'd like to join a support group or get-together. I can also host at my house if people are near me. I also thought about attending a support group in western...
Hi BJD55, Sorry I am just seeing your post. I meant Adirondack High Peaks, sorry for the abbreviation... I'm an ADK 46-er, which means I climbed all 46 Adirondack High Peaks (and some winter) right...
Hi Aerose, I live in eastern NY state, close to the Mass border near the Berkshires. I would like to join an in-person support group, or just an informal get together. It has been very isolating to...
After reading this I may try to switch from Augmentin to solo Amox. for a while. Maybe I could cycle between the two. I hate to give up the progress I've been making - yet worried about renal and...
I wanted to ask if anyone had experiences and/or knowledge about taking Augmentin for Lyme? I am having pretty good results but I heard it can lead to liver and kidney problems. I have no tolerance...
Augmentin is Amoxicillin with clavulanate potassium, which is added I believe to make the Amox more high profile....
Not sure where to post this - I began long-term antibiotic treatment for Lyme with Augmentin because Doxy made me vomit. I have noticed that my brain fog, severe headaches, fatigue and constant colds...
I began long-term antibiotic treatment for Lyme with Augmentin because Doxy made me vomit. I have noticed that my brain fog, severe headaches, fatigue and constant colds and infections are much...
If anyone has a recommendation for a LLMD in western Mass, I would also appreciate it. I am in eastern NY state near MA and also near northern CT. I am currently traveling 4 hours to PA to see a Lyme...
Would anyone have a recommendation for a western Mass or Eastern CT LLMD? I am traveling 4 hours to PA to see a Dr at this point. But I live in eastern NY state. Eery Lyme doctor here is extremely...
I have been taking Augmentin for what the doctor thinks is Lyme (I had a tick bite over 3 years ago, no rash, no antibiotics at the time -- then followed three years of hell, complete with several...
Loopy - thank you. I have been dealing with immune problems for so long I get depressed thinking about it. I am going to try to find a physician to look into this. I have had such bad fatigue and...
I've been to ENTs and Allergists and taken antihistamines and nasal sprays. What helped me the most so far was deep tissue massage to my face, neck, head, lymph glands and upper back. But this is...
Hi, I'm new to the forum. I have been dealing with allergies, auto-immune problems, and sinus problems for a decade. But this year was terrible. Recently (2015-2016) I have had a new kind of headache...