Who are some of your favorite figures in the community. I'm not talking about practitioners/doctors that just work with patients. I'm talking about people who might work with individuals but do more....
Thanks Saraeli, im going to go to Sophia health. I just like Dr. Klinghardts approach/work more than ive seen from others. Plus there center is wifi free and offer wifi free place to stay. I feel it...
Dcd i might have sfn based on what i said very well could be but it did die down and there have been long period of times where its been not existant really. It seemed to get under control alot after...
Im not going to go in specifics but 4 or 5 days ago all of a sudden I started to have what it seems like a complete reverse in something that isn't me one bit and never was. Ive posted about...
Looking at past posts Small Fiber Neuropathy is exactly what I'm dealing with. Whole body is burning/stinging, when things touch skin it gets way worse etc. Super Scary. Thanks dcd2103 for the call....
I'm in Wisconsin...
Im in the States and thanks so much for all the info. Looking into possible IVIG and Plaquenil options and will consider the person you mentioned if needed....
dcd103 your response is what prompted me to type this. Just was curious of all things that can help possibly....
I don't really think I have MCAS but at times I wouldn't be surprised if there was issues here or there, thanks....
I think a huge part of my battle is my immune system is severely overactivated. Any suggestions to get it to calm and quiet down? Usually people ask for the opposite and most times want to boost it....
Hey guys sorry I didn't get back and I might not get back for awhile but I will read any responses for some help when I can. I'm worse than ever. I think what happened is that I took an adrenal...
Thanks everyone, not dealing with mold in the house currently we think. Done many tests that came back negative or very low. Multiple ERMI and Hertsmi tests and an EMMA test. I got a significant...
Recently i've been dealing with these burning/stinging sensations as well as other sensations that are really bad that are hard to describe but run through my body. Any advice? I think this is Lyme...
The last few days I go from feeling like close to deaths door in many ways to then feeling better than I have for brief moments in over a year or 2. I live on a lake and this morning I actually went...
I'm sure the doctor i'm seeing will have recommendations and will prescribe what he thinks best but he does listen and takes your considerations and options you think might be best. Many here have...
Somewhat in a sense but I don't think it's the reason. I was already heading downhill fast. Couldn't work, drive, move in with my parents before i did get them out. I just think as time progressed so...
I have had amalgams taken out but can't remember all other dental stuff. Everything dental in my life was done conventionally except when they were taken out....
I haven't...
Tried Xanax and Gabapentin to no effect....
I have a phone appointment coming up with an LLMD or atleast someone that has experience treating Lyme and other problems. Im at point where im ready to try some big stuff and hope my body responds...
Thank you, pretty sure im out of a moldy environment as ERMI came back really low. The thing is binders haven't done a whole lot yet. I think my bodies detox process is really compromised that the...
I think I mentioned before that previously I felt like things were around my head with pressure/pain etc. Turns out it's way more than I thought. This stuff is full not only throughout my entire head...
I have, but it wasn't a good experience. Buhner herbs were too much even at pretty low doses....
Anyone know of or recommend any good lymph support/drainage supplements to add to my regimen? Looking for good options in this form besides dry brushing/massage....
I want to try it as I think it's one of the few things that could really clear my issues efficiently but I could imagine it could do so much even at low levels I couldn't take it....
Thanks everyone, with the mentions on here and a few in general otherwise earthing might be the way to go getting started!...
I was really sensitive to EMF at one point. I'm not sensitive as far as physically reacting around it nealry but Ive seen many things how being chronically ill in the Lyme and mold community that EMF...
Thanks saraeli you gave me alot to think about and ponder. Really good insight. My mom has a friend/coworker who has Lyme around my age and sometimes has to take time off so that could be a good...
There is no Lyme groups in the area that I know of. I haven't really seeked any out though. Small town area but an endemic area so there could be. I guess I don't really feel like texting cause being...
How many of you have maintained a social life while being sick? Are you able to go out much if at all? Do you keep in contact with friends? Or has your sickness just about flipped it around? For me I...
Binders pull things from your tissue, fat and into your GI tract, it doesn't start there. If you have high toxic burden/methylation issues when you take binders it leaves where the toxin was sitting...
The true answer is I don't know. The only thing I know 100% sure is very high mold. Also just being so chronically ill I think Lyme, Bartonella are more likely factors than not. Just like I think...
I'm not trying to scare anyone but I was already heading down hill from mold exposure and possible Lyme and co/other infections. I went to the ER after I had a huge sinus infection and was prescribed...
I'm not in Texas but seen good things about Dr. Taylor from Texas Intergrative medicine when it comes to chronic/environmental illnesses....
Cignet I think we are truly canaries in the coal mine. With Lyme being more prevalent and all the rise of chemicals, mold, mast cell, it's going to be a point in the next 20 years where people are...
saraeli I wish I could lol. I really find for me personally eliminating grains really helps my body push things out. Previously eating even gluten free grains and legumes my body would still convert...
I'm not an expert or anything but I heard Kefir is more better from what I've seen at least if you have a pretty weak immune system. I got this from a book that was called Body Ecology, it's a diet...
Exactly! Now it's like turn your life around doing a 180, but still hold on tight for the ride cause you might make it out but you won't know until you get there....
Before I got sick I didn't have a care in the world and did anything I wanted when I wanted. I drank close to every day in some degree, smoked cigarettes, ate whatever I wanted when I wanted, I...
I have dealt with something similar and still deal with like vibaration sensations in the feet/calf area. It can make it hard at times to tolerate certain socks at times, intesifies the feelings and...
This isn't Lyme specific but I watched some videos of Jodi Cohen of Blue Vibrant oils and was really impressed if your looking at other aspects in which EOs can help too. I actually purchased a...
It could be any of bacterial, mold, or yeast die off. I get this whenever I detox. For me it's coming from sinuses as stuff drops down my throat as post nasal drip then getting the smell.. Mold likes...
Good to know! dcd2103...
Thanks Girlie...
Anyone here deal with this? This is relatively new to me and there's a possibility I have it. I'm going to be doing the Cunningham panel soon. As I've mentioned before I have developed intrusive...
When detoxing maybe try minuscule doses/methods if you don't already. That's what many have to do until they can handle medications/supplements better without feeling sicker and can make medications...
Thanks for the info! Never heard of racetams or the combination mentioned. Going to really look into it....
Yeah, I'm glad we both discovered it can help us. I find the info/people on here very helpful and that's why I joined. Thanks! Hopefully I can help a few as well as the journey continues....
I've posted something earlier about caffeine/coffee. It can really help if you have lower amounts of acetylcholine which many chronically ill people from biotoxins usually have....
Might have to check purity just to be safe. I would of probably wanted to try Bulletproof but don't think I want any MCT oil or anything added for now....