Good afternoon Everyone, I have been treating bartonella aggressively since last November (from a tick bite 2 years ago). I am on methylene blue, bactrim, rifampin 1200 mg, and clarithromycin. Some...
Thank you all for your responses. Girlie -- I believe I saw in some of your posts that you took rifabutin, right? Did it help you? Can you write a bit about it to me? I think I may have seen you...
Girlie, or others, I need help. I've been treating bartonella since 3 weeks post tick bite August 2021. I have never recovered. I've been on bactrim, rifampin, methylene blue, and recently added...
Nattylev1126, I hope you see this. I just wondered if you could give me some feedback on your experience with tafenoquine. I took my first Arakoda (tafenoquine 100mg) tablet last Thursday 6/8. It is...
Hi everyone, good afternoon, hoping for a bit of advice... I have been sick since July 2021. I have been mostly focusing my treatment on Bart and Lyme. I did a 3 month stint of babesia treatment from...
Nattylev1126 that is so good. How many rifabutin a day are you on? Do you take adrenal support? I'm currently treating bart. May have babesia but don't have typical babesia symptoms if I do....
Nattylev1126 How are you now?...
Good morning everyone, Question: I am on my bartonella protocol since January: Bactrim, rifampin 600mg a day, MB 100 mg a day, liposomal cinnamon clove oregano oil. I felt like I was making progress....
Sam, are you using dapsone for lyme or for which bug?...
Are you only on ceftin?...
Sambernie, how are you doing? Do you think they were bartonella gut herxes you were having? I'm treating bart and getting gi symptoms also.......
Hi Quin, Good morning. I added minocycline to my protocol a week ago. I'm now on 100mg twice a day. My stomach is a mess. Could be herxing I guess. I'm on my usual tons and tons of probiotics. How...
Pirouette, I am not sure if you still see posts here - what did you use for babesia? I have several of the symptoms you mentioned above but attributed them to bartonella. Now I am not sure. I have...
Hiker331, how are you now? I'm treating bart right now and my symptoms sound like the ones you had. I also have gi symptoms. Let me know how you are:) I also live in MA...
Babesia in Boulder, Do you or did you also have bartonella? Do you mind my asking what your babesia symptoms are? I am having a hell of a time. I am currently treating bartonella and am on bactrim,...
Hi Breezzy, Thank you so much for writing back. Are the lower leg symptoms - tingling, etc. improved for you? I'm definitely going to start the boluoke. I already purchased a bottle of that brand the...
Hi Garzie, it's interesting you mention PEM. I'm having more of that lately but for me it is directly after doing exercise. I'm 41 and have always been into cardio exercise and even a few months ago...
Hi Garzie, Thank you so much for your reply. I will try to locate your microscopy thread. What is PEM? Katie...
Good afternoon everyone, I hope it's a good day for everyone. I am treating Bart right now with Bactrim, Rifampin, Methylene Blue, and Liposomal cinnamon clove and oregano oil. I get tingling in my...
Dear Quin and Garzie, Thank you both so much for writing back! I guess I will just need to accept that this is a part of getting better is getting it out of my gut and it will be uncomfortable. It...
Good morning. I have been sick since August 2021 with bartonella and lyme. I have had a lot of gi symptoms pretty consistently and I believe they are bart related. I am currently on bactrim,...
Quin, if you see this post, can we somehow connect? I wanted to pick your brain on gi symptoms with bart. I'm aggressively treating bart and it is making my existing gi issues even worse. Is this...
Richard57, What is your email? I'd like to contact you if possible to discuss rifing. Thank you!...
Hi everyone, I am entering this post because I need a little guidance. I am treating lyme/bartonella, and also dealing with MCAS issues. I have recently started ketotifen, pepcid, claritin, and...
Thank you for the responses. I believe I did what you did Bailey and ignored warning signs. I am definitely in a cataclysmic state. It was really just lots of rashes that I believed were die-off...
Thank you all for the responses, just seeing them today. It didn't alert me that there were responses! Saraeli -- I see that you have MCAS as well - what did/do you use to keep it under control? I'm...
Good morning, I know this is an old thread. I have bartonella and have been treating for 2 months with antibiotics. During this treatment time, I have gotten odd small round rashes when herxing. I...
Is pulsing rifabutin an accepted method? Thanks...
Hi Traveler and Girlie, I hope you two see this post. I wanted to check back in with you both on what is going on with me, and where I am at to try to get some feedback/thoughts from you both. I got...
Traveler, can I ask you a question? How did you mentally cope with reinfection? It is really messing with my head to have fought this battle once and then to get a new tick bite and have to fight...
Dear Girlie and Traveler, Thank you for writing to me. I really appreciate you two. I saw my lyme doctor this morning. While she doesn't know what is going on, she did prescribe biaxin and rifampin....
Hi Girlie, Thank you so much for writing to me. I found a scab on my back on August 4th. No tick but it was unusual and made me think twice. At the time I had a minor cold from one of my kids and so...
Dear Traveler and Girlie, I've never written here before but the posts you two were a part of several years ago were so helpful to me. I beat lyme and went symptom free for a year and a half after 13...