Doing pretty good. Slowly integrating MB back into my protocol with some good results thus far. I did receive devastating news last week that my beloved LLMD passed away. He was a friend and mentor...
I have been on Rifampin / Bactrim / Minocycline / Mepron for a while now. Seems to work the best for me. I am slowly integrating MB into the mix with good results. I have a strong herx every time I...
Interesting. I found that Azithromycin was not helpful for my Bart - I took it with Rifampin and Pyrazinamide. My symptoms came back very strongly on this combo....
Same here. It was intense herxing. I could only tolerate 25mg every 3 days or so. When I would increase the dose I would herx and I stepped it back down....
I have been using it for 6 months myself but I started at a very low dose. 25mg once every 3 days and have worked up to 25mg 2x a day every day. I'm now working my way up to 50mg in the morning and...
Girlie, did Dr. J combine Rifabutin with Claithromycin like Dr. M does? Also did he start you off with Rifampin and then work up the dose to get to Rifabutin? I felt like Rifabutin was going to...
Yes. I think I have cleared the Babesia - my FISH testing finally turned negative but when I stop the Mepron I get a ton of inflammation and I have a lot of trouble sleeping. So my LLMD said to...
Would you mind PMing me the info for Dr. AC in Phila? Thank you...
Hello JMF84, I'm doing very well. I'd say back to 95% of my health. The bad herx (or autoimmune response) I had to calithro / rifabutin / MB was insane. I was bed ridden for a week. I realized after...
Hello forum members, I was wondering if anyone has worked with a Bartonella literate LLMD in the PA / NJ / NY area? Specifically one who is familiar with Rifampin / Rifabutin / MB and up to date on...
I had eye floaters and floating spots in my eyes about 5 weeks into the whole ordeal. I also had all of the blood vessels around my eyes break and around my ankles. I assume it was Bartonella that...
Thing is, all those doctors have the same tools at their disposal: Clarithro, Ceftin, Doxy, Mino, Rifa, Dapsone, Azithro, Mepron, Malarone, Clindamycin, Flagyl, Tinidazole. Mix and match. I guess...
I’m sorry to hear this happened to you. I’ve been using binders alongside my Bart protocols. I plan on adding antifungals if my levels don’t go down due to colonization. The mold can grow inside of...
How did you make out on 1200mg a day of rifampin?...
Thank you Brian. Do you mind me asking what you treat it with?[/quote] I used Mino / Rifampin / Bactrim....
What herbs has everyone used to treat Bartonella?...
For me this is a classic Bartonella symptom. The more active the germ is the more floaters I get and I also get the flashing lights when my eyes are closed. As I have treated some of it has gone away...
Let us know how you make out. Good luck!...
No I’m still not back to my baseline yet. It really shook me hard. Been having a lot of trouble sleeping and tons of night sweats on my pillow case. I don’t know if it was the Rifabutin or the MB (or...
Gotcha - same for me. I was waking up thinking I was having a heart attack every night at 0200 before treatment. Went to the ER 2-3 times and nothing abnormal (according to them). I got the the point...
Girlie - at what point did your sleep improve or get better? I can't stand the 2AM WIDE AWAKE that Bart gives me....
I can give you my experience with a lot of these drugs. I am also fighting Bart primarily. I used Minocycline / Rifampin / Bactrim to get to about 90% of my capacity. Felt so good that we decided to...
My plan is to go back to Rifampin 300mg 2x a day to stabilize myself. Then work up from there. Ultimate goal would be 600mg 2x a day at some point…. Then maybe try the Rifabutin again wo MB....
Was thinking of using Stephania because the Bart impacts my eyes so much. I have a lot of floaters and spots going on....
I tried to take Cipro and I can confirm it was effective for Bart (drove it nuts) but I quickly developed the tendon pain on it and my LLMD had me stop taking it....
WalkingbyFaith - I have been using sida acuta and houtinniya along with my ABX protocols.... what other herbs have you found effective for Bartonella? Been thinking about adding Japanese Knotwood,...
Has anyone tried using some of the Buhner herbs to make their Bart ABX more effective? I read the study about how Japanense Knotwood and Crytolepsis were effective for persisters forms of Bart. I...
Did you try increasing your Rifampin doses to 600mg 2x a day instead of the normal 300mg? I also just tried Rifabutin and experienced the wiping out of my neurotransmitters that you referenced. It...
Nope - I'm not positive. It may well have been a mother herx - felt like I was dying to be honest. Never experienced anything like that before in my 3 years treating. I have gone back to Rifampin to...
Thanks for posting that Girlie. Wow talk about a journey. This all makes sense now why I got hit so hard by the MB and Rifabutin. Didn’t work my way up to either of them. I’m going back to Rifampin...
Yes MDL labs pcr testing is what I had done - twice....
Does Dr. M still see patients? When I looked on his website it looks like he will consult with doctors only....
Garzie thanks for the feedback. Yeah I think the doctor who suggested this protocol should have warned me about stepping the doses up. It was very weird because for the first 8-9 days I felt fine on...
Garzie - you are right I guess it’s more curiosity more than anything....
One other thing I should mention is my WBC and Platelet counts went into the toilet. I haven’t talked to my primary LLMD yet about it but I doubt very highly he would have me proceed on Rifabutin...
It’s very possible that it was a herx especially since I took the Rifabutin with MB at the same time. Really pushed some buttons that had never been pushed before. I am still feeling some after...
Yes I did. We think that I had an auto immune type reaction to it as I had a fever and very sore muscles and joints. It took a few days for the fever to go away and my muscles are still sore from it....
That’s kinda where I am at as well expect I know that I still have the infection as I have a big Bart rash on my back. Part of me just wants to identify the specific variety that I have (not that it...
I had Babesia and Bartonella testing done via NML labs in NJ for PCR and it was negative twice. My Igenex FISH Babesia testing was positive twice and the last time it was negative. Thus I concluded...
Can anyone who has used Galaxy Diagnostics ePCR or IFA Bartonella testing let me know if they found it to be accurate? I am also going to look into the Igenex Bartonella WB and IGXSpot testing. Most...
Garzie - I hear you. It can be maddening trying to figure out what you have. I had em all. Didn’t even know I had Babesia until my fish testing came back positive. I wasn’t really able to make much...
I absolutely noticed a lot of mental symptoms when I stopped the MB. I believe it stimulates the brain and makes you feel more jovial. Makes sense that when you stop it your body has to now produce...
Sunflower1920 - I had a lot of the same symptoms that you are listing along with bad diarrhea from taking Rifabutin and MB. Awful body aches, chills and a sore throat as well. My feeling is that the...
I'm in bed by 9:00 every night and up around 5:15 every morning for work. I have found that the consistent bedtime has helped me sleep better. I still wake up at 0200 every morning like clock work...
Not sure what's going on with me but as I recover from the MB / Rifabutin melt down I went back on my original protocol of Mino / Rifampin / Bactrim and I had a BIG bartonella rash appear on my back....
Just wanted to post a quick follow up to my original MB post. I’ve been off of MB for 5 days and Rifabutin for 4 days. I can’t say for certain which one gave me the trouble I had but the info I...
When I first got sick and was desperately trying to figure out what was wrong with me I went to one of the best hospitals in PA and met with the head of infectious disease. I showed her all of my...
JMF84 thank you! For me I didn’t make much progress with the babesia until I doubled my mepron dose from 1 tsp 2x a day to 2 tsp 2x a day. First week I did this I had very bad headaches that passed...
Wow that is fantastic! That’s certainly a great outcome and I know some other people he has been able to help as well. I’m curious how you did on the off med portions of his protocols? My symptoms...