2011! Same doctor since 2012. I hit a wall with maintenance meaning I wasn't making any progress in resolving symptoms and increasing time between weeks on. We started playing with protocol a 1.5...
Yes I am still with him. The reason why I did IV was I had become dysfunctional at work. I was bringing it home for my husband to do. I am embarrassed just thinking about what my coworkers thought...
Dr. Horowitz had an opinion on this on Facebook the other day. Here is just a small snippet: Then it went on with all the articles....
Lymie24, Sorry. I didn't mean to head down the IV rabbit hole. It was a lesson I learned about Lyme treatment and whenever I see anyone looking for a lyme doctor I tell them. I had no idea that it...
When I was being treated in 2013 the oversight fee was the monthly fee that he charges where you get a monthly appt with him, bandage change, and test infusions. Also different triage line. Wow was...
I did the IV abx with JSC in 2013. No complaints about his treatment. The cost of it was pretty high though - at least for me. Most of the cost, again just for me, was the oversight fee. IMO when...
He has a great youtube channel. A lot of informative videos. I need to watch more. https://www.youtube.com/c/JemsekSpecialtyClinic Recent one "Rationale for JSC Treatment Strategies (Part1)" might...
Girlie, I see the same doctor as you. I asked him a while ago about persisters and specifically about dapsone. He said we treated you for persisters. Of the meds you mention above I only have been on...
Is she taking any medications for MCAS? The diet for MCAS is complicated - at least for me. high/low histamine, Stabilizers, liberators, food prep, food storage, I found these sites helpful...
I have neck and trap pain from my cervical issues. Chiro didnt recommend the injections. He has me using a head weight to correct the muscles. He did give me a paper about how cervical instability...
For as long as he been at this, I am surprised that he didn't consider Fluoroquinolone toxicity. You cannot be the been the first patient that it happened to. Thinking about it I am even more...
Because of my chronic neck and trap pain, my llmd sent me to a chiro 2 years ago wanting me to do a digital motion x-ray which x-rayed my neck while in motion. I resisted doing this because of cost...
I will ask a stupid question but do you still see him? No judgement if you are as I did his IV protocol and it is/was really expensive. It is hard to walk away (at least for me) when you have spent...
I agree with the links Girlie posted. The Jarisch Herxheimer Reaction is caused by a spirochete like syphilis and Lyme. I don't know what die-off reactions from other bacteria/parasites are called....
this is who i thought of. She was in Kennett Square at the time. I cant remember why we didnt go with her - it was 11 years ago. She had a great reputation. Maybe it was price. [quote="And for philly...
have you found anyone? I have a name but since we aren't allowed to post doctors names, it isn't clear to me how I message it to you....
I will be interested to see if anything gets worse or if you get new "bad" symptoms on carnivore. Oxalates are responsible for so much of my pain. If all you are eating is lamb that eliminates high...
Recently the only supplements that I have reacted to is gaba and thiamine (if the form of TTFD). I know TTFD crosses the bbb. It isnt clear to me as to whether gaba supplement does. The gaba reaction...
I had no symptoms of babesia but was treated for it. And I reacted to the treatment. Most LLMD's (and I could be wrong) treat for all three: lyme, bart and babs....
The ivermectin reaction was interesting. malaise, flu like symptoms. On the couch. It was just like my first herx 10 years ago - only not as bad. I take ivermectin every two weeks for covid (10mg...
I have been with him since 2012. I did IV with him 2013 for 9 months. Orals since then. He put me on ivermectin this past spring for covid. I had never been on it before and reacted to it. Like the...
What a great resource! Thanks. A lot to read. At my appt in March 2021 he really reduced my protocol for reasons I too long to explain. Cutting the dose of almost all abx in half and removing one. I...
Mycoplasma in my brain is my doctor's latest theory as to what is causing my cognitive issues. I have sleep and pain issues also but they are probably collateral damage from lyme and its treatment....
Oh well. At least we may see how his protocol performs....
This may have been posted but his protocol may be eventually published:...
New here so I dont know your whole story but... Long story short. I also see Dr. J. Last February I was 1 week on maybe 6 off. I have been doing the maintenance/stretchy thing for what seems like...
With normal hgb and tsat I am not sure you are anemic. Usually tsat and hgb are also low. I have iron overload and your numbers would be a dream for me. For instance my goal is tsat 15% with ferritin...
I have gotten up to 150 mg of lipothiamine and it was suggested I try higher to resolve some of my issues. Next week I will go to 200 mg and then I am also going to mix in some benfo because of the...
No I have never used Cholestyramine. The toxins would be from whatever is growing in there? And then the abx reduce the inflammation caused by the toxins? He has said that the brain detoxes when you...
New here. I have been treating since 2011. IV and orals. At this point the big issue we cant seem to resolve is cognitive. I was on maintenance (1 week on 5or6or7 off - depending on how I felt). I...