Hi neilfin!! I am so sorry that your son was diagnosed with HM, i to have it and was searching all over the world for more info about this sickness, beacuse it is very rare it was hard to find that....
Hi Stop Think Feel!!! I too have FHM, i have had them since June 2006 and that first 7 month before they new what was wrong with me i had attacks almost every day really bad onces Often they could...
HI bsamom!! OK depakote for 5 weeks and increasing it, Yes it can show up to be a good preventive for him, i am keeping my fingers crossed here, i saw he had tried Maxalt and that didn´t help, well...
Hi bsamom!! I have HM and have the same problems with a terrible headache many times a week, my paralysis, speech problems etc etc. have changed dramatically since i started with a preventive called...
Hi JimL!!! Nope you are not alone and not a nutcase!!! That´s for sure, it is difficult for us to no why you have experiensed this, but well i think that maybe the thing that you stop taking the...
Hi Verhelst!! I have sent you some tips over E-Mail of where to look and where to go and get more support and info, so i hope you´ll got it. If not send me a new message and i´ll try again. I now it...
Hi Pancake 22!!! Well i have had regular migraine over 20 years, but in 2006 i got paralysed and then i got the diagnosis FHM. I have in those 20 years had much of the symptoms we HM.ers have but...
Hi Tommy South!!! We are no doctors here, but for me and many of us one trigger is stress and when we do too much so we get tired!!! And it seems to me that you are working out really hard and...
Hi iliv4god2!!! I am very sorry to here what you are going throw, and yes HM is a very scarry disease it take long time to get use to it ( if ever? ) Well i have HM too and had it for a couple of...
Hi again art chick!!!! /community/emoticons/smile.gif That´s good that you have a migraine specialist. how often and how long are your seizures when you get them? When you were in the hospital, why...
Hi art chick!!! I´m with Ben here, it is important that you get investigated by a neurologist, to rule out other diseases. I have FHM and all of us who has it, have done many test to rule out other...
Hi Vickabee and Lady Nebula!!! and everyone else with HM!!!! I too have HM and had them for 3 years, i too get fully paralysed from my neck down to my feet ( can´t move at all ) but always on my...
Hi Southern_mom!!! First i have to say that what kind of Doctor gives a MS diagnosis right away?? good that youre family said that it wasn´t good enough!! I have Familial Hemiplegic migraine ( runs...
HI!!! I have only found that stress triggers me, but even if i taken it easy they come so......i don´t no but i also have just the migraine pain often and ´that is triggered by wheater changes too...
Hi Mimandpawpaw!! Yes thats what i am talking about , how should we now when it´s really a stroke or just a HM attack???? The symptoms are the same, and beacuse we are in a bigger risk so....???? I...
Hi Dizzyme!! I am glad that you found us!! Since i got my diagnosis i was looking for others who suffers from this disease. I started around migraine forums in Sweden ( Where i live ) but couldn´t...
Hi everyone!! I too have FHM and had it since 2006 before that i have had " normal" migraine for about 20 years something. The first time i got it i went compleatly paralysed my whole left and right...
Hi Jen Jen!! Often migraine changes and the medicines stops working, so that we have to change them too, and as you say your preventive doesn´t work. If i was you i´ll turn to a neurologist and (...
Hi Bongobear!!! I am so sorry to hear the situation you´re in having HM attacks mostly every day that´s HARD!! Are you on any medication now? Yes many of us has been in exactly the situation you are...
Sorry i wrote nerve pain in head it should be nerve pain in my neck!!!...
Hi everyone!! Yes me too, 2-3 times a year when my headache gets so bad that nothing helps i end up in the ER where they give me morphine injections and primperan it´s to help me from not throwing up...
Hi everyone!! I´ve just read that the Basilar migraine can give you tinnitus and also loss of hearing ( going deaf ) and when i read it i remembered that someone asked about it. I too have FHM and...
Hi First i have to say that i no this was a topic about stupid doctors and so on, well bealive me i have met many of them too. I have had migraine for over 20-25 years and in those years have been...
Hi akhiker!!! I too have tremors when i have my migraine, often before i get one attack of aura followed by the headache and often i barely have none headache just the aura witch in mine case is...
Hi alwayssomething!!! FHM= Familial Hemiplegic Migraine = A rare kind of migraine that gives seizures with paralysis Speech problems etc etc. In my neck i have something called cervikal Disk...
Hi alwayssomething! For about 10 years ago i started to have problems with my neck so i went to a chiropractor, after every time i visit him i was in the beginning ok for 2 weeks, but then it got...
Hi vickabee!!! I often get paralysed at one side of my face 10-15 minutes before i get paralysed at my right side of my body, i too often have difficulties with my speech i start vomiting, and...
Hi everyone!!! No i don´t mind at all that you correct me Kala Uk , it´s good for me to write in english and get a little practice It´s been over 20 years sice i wrote something in english so..... (...
Hi Vickabee!!! I am so sorry to hear about your daughters problems!!! But the problems with doctors many times is that they all give different diagnosis!? So i understand that you have a lot of...
Exuse ME!!! What are the DEVIL doing there in the corner. I pushed on the emotion where it is a TUMB UP!!!!?????????...
Hi everyone!!! Summer 77 i have somewhere read that being deaf in HM attacks is one of the Auras ( I´don´t remember where i read it thou ) but i remember that there was nothing about tinnitus. OK...
I forgot!!! Calcium channel blockers was the first suggestion for me from my neuro, but i ca´nt take them beacuse i have tried them before and i got an allergic reaction from them so...thats why, i...
Hi mtngirl 74 !!! That´s good that you have discussed having another baby with your neuro, and often when you get pregnant the migraine gets much better, i saw that your father and grandpa has...
[2]Hi!! Yes i have read that the hormones is one of the triggers in normal migraine attacks so why shouldnt it be that for [b][2]HM attacks. I had for 7 months in 2006 attacks 4-6 times a week that...
Hi everyone!!! I have had an attack for 2 days now, with my speech gone and trouble walking, and everything going in slowmotion, however when i woke up this morning i was okey. I haven´t started...
Hi Summer 77!!!! Nice that you found theese pages, i could feel your pain throw your letter. I can amaging that´s really hard to get it as young as you was, in theese days doctors properly ( didn´t...
Hi i have been doing really good, i saw my neuro on thursday and i´m going to get Topimax to ( for the migrain pain ) Beacuse the antiepileptic med almost only helps to prevent the aura, and it have...
Hi boriquamama!! Sorry i misunderstod you, I have a different kind of medical alert bracelet its one there you push a button on it and my phone calls a certain number where nurses take the signal...
Hi everyone!! Kala i dont have pain when i get the attacks, but i´ve heard that some can have it, i don´t remember its name either, its too bad you also have that , it is really enough having...
P.s Sometimes i wonder why its called Hemiplegic migraine??? Beacuse normal migraine has nothing to do with calcium channels!!! And this rare form of migraine isn´t anything near ( normal migraine )...
Hi everyone!!! I am glad you found these pages, i was too when i found them. [img]/community/emoticons/smile.gif momonthego it is hard being a single mom [b]i have been it since my sons was 2 and 4...
Hi kala and mimipawpaw!! That´s too bad that you have to wait one year before you can have the operation kala!!! I am 45 years old and have had normal migraine since i was 20 something, without the...
Hi mimandpawpaw!!! First i have to say that i´m truly sorry that your husband have this disease, what kind of doctor do you go too?? If it´s not a headache specialist then i really think you should...
Hi Teens dad!!! I am so sorry that your daughter have this diagnos, You write that it started 6 months ago and that´s not so serious?? Well if you are lucky it wont get worse, but it can be after...
Hi everyone!!! Kala have you got the ONSI yet? And if, does it work for you so that you get some relife?? Headache from 8-10 / 10 is really awful!!!! When i have 9 or 10 then i only want to die!! At...
Hi rich!! What you describes here sounds a lot like Sporadic Hemiplegic migraine, but of course there is many other diseases it could be who has the same symptoms. It is good that you are going to...
Hi wwise!! Okey good that you have put the ball rolling ( probably doesnt spell that right lol ) Its´god that you are going to have a ct scan, everyone of us have had one. There are many other...
Hi wwise!! Yes Lamictal is one of many medications that people use for FHM or Hemiplegic migraine= Sporadic migraine all these are the same disease the different between them are that if you have FHM...
Hi J_Rene!! I think that you should talk this over with a neurologist, and i am certain that he/ she can help you to test something that can help you with your problems. Hope you get better soon!!!...
Hi wwise!! It not easy to have this disease, but there is help to get! First i have to say that i havent heard of anyone who have had some help from some herbal remidies, and the medications that are...