Hi all, thought i'd give an update as it's been a while. Drugs I'm taking atm - epilim 1400mg, propranolol 160mg. Am also taking feverfew and finally due to spending Christmas in hospital i've been...
Hi HemiL, I'm just wondering how you are feeling now and if you have found any success in treatments for your hemiplegic migraines? Botox is worth a try as it works wonders for some people, sadly not...
Hi HemiL, As an acute sufferer I haven't found topamax a benefit to me so my neurolost has started adding other drugs along side it, gabapentin and propranalol. At 400mg the only side effect I have...
JYP hi there, definately not overreacting as anybody suffering with a hemiplegic migraine or even a normal migraine will tell you! Andybody suffering with a hemiplegic migraine is advised to wear a...
hi there minnie75 sorry to hear you have been suffering the way you say but sounds like you have a doctor who is willing to try all sorts of different options to help you out. I wonder what country...
Hi all, Finally got to see the new neurologist this week and he is going to give me botox. Not sure how good or bad this is but at this point I will try anything Sam...
hi there shannon, she said i couldnt have it as they are so regular and she feels that i couldnt just use it everytime i had one (even though i see why not). thats why i am trying to find out if...
hi everyone, i was wondering if anyone could help on this. ive been hospitalized a few times due to my hemiplegic migraines and it's the high flow oxygen that really makes the difference (im sure the...
Hi Ann, you are absolutely correct, you shouldn't really be using triptans with hemiplegic migraines as they can induce stroke. I had one TIA due to this 9 years ago but my neurologist felt that i...
hi there, i am a long term hemiplegic migraine sufferer and i take topamax as a preventative. unfortunately it has very little effect so im also taking propranolol and due to start a new pill to see...
Hi everyone, thanks for your comments and advice, it's great to know i'm not alone in this. At the moment i am on topamax, propranolol and maxalt but unfortunately none of them have any effect. I saw...
i have been on topamax for a while now and the side affects that are harsh at the beginning trully do subside once you have been taking them for a while. i have no side affects at all now wooh!...
i am currently on topamax and although it sometimes takes me longer than usual to find a word i can honestly say i have had no other side affect, everybody appears to react differently to it...
I've been suffering hemiplegic migraines since i was 18, now 25. At first they would be every 3 to 6 months but now they are daily to the point I am disabled with no life. The neurologist has...