Sorry you're having to deal with this. There are several things you can try. 1. FL-41 tinted glasses 2. individually tinted glasses (eg irlen lenses, intuitive colorimeter) 3. bilberry extract 4....
The brain is "overly excited" during migraine and when this happens we migraineurs often get photophobic. If we successfully treat the migraine with a preventative (e.g. amytriptaline or topamax) or...
Well you're in luck notsosicklygirl. As it turns out, one of the countries big headache gurus, Alan Rapoport, recently relocated to Santa Monica from the east coast. If you end up giving him a try I...
Hi Lexique, If your referring to tingling in the face and feet, that's fairly typical with topamax and will likely go away in time. There are some supplements you can take to help (vitamin b12, zinc,...
Hi Kaylee, I'm sorry you're in so much pain. NDPH is certainly a tough one. It's a relatively new diagnosis in the headache world and so treatment protocols are still being worked out. Different...
http://migrainepage.forumotion.net/t445-menopause-meds...
Were you able to get any good recommendations? I was in another forum and came across this thread: http://migrainepage.forumotion.net/t445-menopause-meds Migrainegirl's comments were interesting and...
Whoa Mercyme that is very expensive (it should cost about 1000-1400 out of pocket from a physician who has A LOT of experience giving the injections). Botox is now approved by the FDA (this is a...
Good for you. It sounds like a great first step! Are you getting a hard mouth guard made by your dentist? They're moderately expensive, but tend the work quite well for bruxism (teeth grinding)....
It seems very odd that you would both have the same exact Migraine. Sex migraine alone is very rare (and very much so in women). I wonder if something viral or environmental is causing this....
Have you had a sleep study (polysomnography) Julie?...
Neurofeedback, GARD Diet, Migraine Elimination Diet, Ketogenic Diet, Memantine, Depakote, Lyrica, VitB2, Feverfew, 5HTP....
When your back gets rubbed, it probably eases up the tension in your upper trapezius muscles (between the neck and shoulders) right? If your neck gets a good deep message does this help at all? If...
Hmmm... The big west coast center is up at in San Francisco at UCSF. Peter Goadsby, a world renowned headache specialist, heads up the clinic. Not sure if you want to make the 7/8(?) hr drive, but...
Nope, not a stupid question at all. Most big metro areas will have a one if not several headache specialists. I would just put your city + headache specialist into google and see what comes up. Most...
One of the more effective meds they prescribe to try to prevent orgasmic cephalgia is propranolol, an old school blood pressure med. It may be worth getting a script....
Sorry about the delay in replying. Yes, menstrual cycles can definitely be a huge trigger. I would suggest (actually highly recommend) finding a Headache Specialist (specialized neurologist)......
Paracetomol (sp?) is the British name for tylenol. If it's combined with codeine, you'll need a script to get it in the states. I've found, for me (everyone is different), the most effective triptan...
Has Axert worked for you in the past? if so, and your doctor allows you to take multiple doses , it may be worth it to take another. Sometimes you have to cycle through multiple triptans (and...
No, it doesn't sound dramatic. Mine used to be that bad until I found my current preventative cocktail (i'd say they're about 50% better). I'm working with a physical therapist who specializes in...
Hi wantmylife back. I was reading over your post again and noticed that a neurosurgeon is doing the prescribing. Did you have neck or back surgery? If so when did that happen and when did these sex...
Well, I think I have told a grand total of four people (2 doctors, my GF and a family member), so I haven't run into the issue of people not believing me. That's unfortunate that someone so close to...
Yeah, these really suck. I get the same and the following is what I have read and been told: 1. try taking the passive role during intercourse. 2. Meds that are commonly used for orgasmic cephalgia:...
Hi Daniel, I know it's a rough situation to be in. Schools have to take these types of things VERY VERY seriously. I think you will be surprised what a strong and supportive response you will get...
Hi Daniel, I'm sorry the boy was hitting you in school. It sounds like a very traumatic experience. It was clearly inappropriate and unacceptable. Is there someone you can talk to? Your teacher,...
You may want to look up two types of headache and see if either of these seem to fit you (extremely well): 1. Cluster Headache 2. Ice Pick Headache...
Hi Brianna, Nothing comes to mind... I don't know what could be causing this. Tylenol (pain killer), ibuprofen (NSAID with several mechanisms of action), vicodin (opiate), morphene (opiate) have...
Yeah, it's a tough and personal decision. Botox certainly doesn't come cheap. But months of extra drug trials (and lost productivity) also cost money. Usually if you see results it will be after the...
Hi Krissy, I would strongly advise you to consult a neurologist, as it could be any number of things (including migraine). The tingling could be a migraine aura, the stiff neck and headache is...
Hi Cindy, I'm not surprised. Lamictal is a double edged sword when it comes to migraine. Some people find it helps (I've heard it helps those most who: are sensitive to MSG (glutamate) and who have...
Hi Emma, I'm sorry your having to deal with this. Migraine is one of those things that there is no easy answer to. The "proper" treatment is something that is very unique to each migraineur. That's...
Hi Emma, You are very welcome and you're probably right. It's likely the caffeine (completely forgot about that.... woops) is helping. The chelation occurs pretty slowly (many, many years of drinking...
Hi Emma, Yep, if you have migraine without headache with aura (aka painless or acephalgic migraine), vertigo can most certainly be your aura (aka vertiginous migraine or MAV). Most women find that,...
Yep, I've heard that if you get botox from someone who is very experienced with giving the injections for migraine(this is absolutely key) and you have chronic migraine, the success rate is between...
It could be a lot of things. The bowel movement could point to a food sensitivity. I would try to remember what I ate that day (even new brands of the same type of food, if pre-prepared), and pay...
That's pretty normal. Having something like this happen, changing your routines, putting things on hold, etc. definitely isn't fun. It can be crazy/anxiety making. If you read that link, you'll see...
There are a few things that could be going on. My first thought is post traumatic headache. Here is a link to a thread from a while back:...
It's a different drug than I was thinking (it's an abortive, not a preventative). It looks like, the company that designed (torrey pines pharma) the drug merged with another company(raptor pharma)....
Yes, It's one that I have been wondering about also. It seems it was moving ahead through clinical trials a couple of years ago and achieving some decent results. I haven't heard anything about it...
Hi poppy, Your doctor is encouraging you to get up to 50mgs because it is considered the minimum effective dose. If 25 mg is working for you, then by all means, talk with your doctor and suggest that...
Hi swild, Wild guess? You're photosensitive to direct sunlight. Do you find that you are more or less likely to get a migraine when it is sunny vs. partly cloudy vs completely cloudy? Do stripped...
"Lying down makes it worse and sleeping is almost impossible." Hi Bri, whickedcrazy is right. The description you gave almost screams cerebrospinal (CS) issue. It could be alignment related or, more...
Hey Batman, Glad to hear you've started the meds. Sorry day one was such a let down. Unfortunately meds are often not such a fun experience and especially so at the very beginning. I would give the...
400 mg, WOW! That's an ... ehem.... impressive... dose for migraine. How do you like it? I'm trying it out now and am so far undecided. We'll see when I get up to an effective dose. That's very...
Sorry you're having to deal with these. I believe more often than not they lessen in frequency as you enter into the second trimester. For some they do stick around, but this is definitely the vast...
Migraine is pretty individualized. Magnesium helps many people. For some it helps just a little, for some it makes a huge difference, for others it doesn't do much of anything. In short much to gain,...
Wow, I must be getting tired. I completely skipped over where you mentioned birth control. You need to see a migraine specialist. Migraines and birth control are tricky. Some types of birth control...
Fingers turning blue?! wow! Sorry I didn't reply earlier. What did the doctor say? I'm very curious. Unfortunately, there is a correlation between heart disease and migraine with aura (no matter how...
A high white count could mean a lot of things, but it makes sense and certainly narrows down things. I hope the antibiotics help. A lot of times simply being sick lowers our migraine threshold (poor...
Hi Daisy, Sorry you've had such rough time. To directly answer your question, it does not sound like migraine with aura without headache (acephalgic migraine). It sounds like there are several things...