Oh yes and NO TRIPTANS. I took A TRIPTAN ONCE after a doctor who thought I had somatoform disorder prescribed it for me. To make a long story short. She nearly killed me. The only thing that stopped...
Hi N&C I am sorry your boyfriend suffered for so long without a doctor him seriously. I know how upsetting and discouraging that can be. I only went through it for a couple of years so I can’t...
Hello Everone, I’m sorry I haven’t written you all back who have commented. Thank you for your kind words and inquiring about how I am doing. I am here, stil hanging in there. My birthday was...
Hey clamourous, I can relate to a lot of what you wrote, especially about thinking negative thoughts when in a lot of pain. I have noticed myself doing that often. That is really when I am most...
Hey sherri0120, I thought about taking up swimming. There is something calming and serene about being in the water. I am sorry about your health interfering with something that you love. I do my best...
Hey penguin14, I hope you are doing better now. I know things were really hard for you the last time you posted. I have not tried anything new. My doctor wants me to takeLyrica. I am very weary...
Oh look at that. You wrote To Ajax. All I saw was Ajax. So I can't even see/read properly anyway with these cursed migraines. So no worries :-)....
Wickedcrazy, you’re back! I was wondering about you. I’m sorry you haven’t been well. Have the doctors finally fixed that spinal leak? I remember you had to go back to have another blood patch placed...
Ok, I'm over here dying with laughter. I was wondering what medication could possibly be called Ajax. I was almost on my way to google it. Too funny and cute!! But back to your question. I take...
That's great!! . I was worried and yeah that is pretty uncommon. I'm sorta mad that had you WALKING around with a spinal leak though for what was it, weeks on end. But I am glad that it is patched up...
Hey wickedcrazy , HemiL here. Thanks for keeping us posted. Whoa so they haven't ruled out the spinal leak yet. Uggh I hate Lumbar punctures. I had 1 attempted at bedside 4 times. It was the worst...
Hi wickedcrazy, HemiL here! I am happy that you are making progress. It sounds like you have a lot going on there. Possible CSF leakage, Full body tremors Wow! Yeah I’m kind of weary of that Topamax...
Hi Wickedcrazy, I bought Butterbur a couple of weeks ago after finding info on it in a NYTimes article and doing research on the supplement. I however, decided to wait until I received my doctor’s ok...
Hey BonitaLuv, I just wanted to post a little more to your thread. I've had hempleigc migraines since 2007 so it will be 4 years in July. I, like you, went through a whole battery of tests and had...
Hi BonitaLuv, I have had hemiplegic migraines for 3 1/2 years. I'm sorry to hear what you're going through. I applied for disability and I was initially rejected. I have a hearing and I am getting a...
I am right here with you Steve. I have been having daily hemiplegic migraines for almost 2 years now. I seriously believe I am having some type of memory damage because of it. I used to have a...
Hey Tj HemiL here I have Hemiplegic migraines too. July 2011 is my 4th year anniversary of sorts. Sorry to hear about all you're going through. That episode sounded really scary. I don't know if that...
Hey Penguin, I would like to know how that 400mg Topamax is working for you? I currently take 200mg. I am in the states and I would like to bump it up . . My physicians is kinda of against it since I...
HI Tstout, Congratulations on your new baby. That is a wonderful blessing. I have had Hemiplegic migraines for about 3 going on 4 years . I experience visual disturbances, slurred speech, numbness,...
Hi ujimmm I'm sorry to hear about your hemiplegic migraine diagnosis. Oh I I know all about that crazy look! I have received that and more plenty of times. What medications have you tried so far? I...
Hi Tmjpain That's a long time to be suffering with no relief. I'm sorry to hear it. Thanks for your prayers and for your understanding. I will be praying for you too. I agree there must be some...
Hi catlou1 I'm currently taking verapamil, When I first started taking it I was really hopeful because it made a noticeable difference. But then my doctor made adjustments to the medication and that...
Wow smurfyshadow That sounds really rough what you went through. I can't even imagine... I managed to see a doctor. It seems that the culprit is the drug nortriptyline. I started it last year to...
Hey Mariposita I used to keep a really detailed migraine log including triggers, headaches, etc. But it was the same thing everyday so I said “Ehh why bother!”Oh everyone slips up . I slipped up the...
Hi everyone, I've got 1 year 2 months and counting..... Mine is going on right now too. I think that's the longest running migraine spell I've had. I could be wrong though....
HI SouthernWoman, I'm sorry to hear about your situation. I can understand what you are going through. As I stated earlier in this thread I have had Right-sided hemiplegic migraines for 3 years ago...
Hey SmurfyShadow and Mariposita, You both have been great responding to my thread. I've contacted my doctor. He is out of town, but I set up an appointment to see him when he gets back. I 'm hanging...
Hi StopThinkFeel, I have Right-sided hemiplegic migraines. I've had them for 3 years. Over the past 3 years there were 2 brief 6 month periods where I was almost symptom free. Then my headaches would...
Thanks so much for replying and for all your positive words and well wishes Mariposita. I will definately check about the medication. I'm taking Topomax as well and have been on it for about 3 years....
There was a previous thread about hemiplegic migraines and suicidal thoughts and I posted there giving words of encouragement and advice. But now I find I need some help myself. I been feeling really...
I wasn't aware of Topamax and its link to memory loss. I have been on Topamax since October 2007 so that's approaching three years. I have noticed that my memory has gotten pretty bad. I used to have...
Neurontin was not a very good medication option for me. I was on it for only 2 1/2 months to treat my hemiplegic migraines (it was the first medication I ever took) and I gained 40 pounds while on...
HI penguin14, I have browsed the boards for a while but I had to sign up tonight just to respond to your thread, because I can really relate to what you're going through. I am so sorry to hear about...