Hey Casinokid80: I was wondering how you are doing with the Betaseron and how things are going in general. I haven't seen you in a while and was wondering how the Summer is going....
I was hoping you wouldn't be gone long. We need you input and thanks for posting....
Hey Thank You 20 years for sharing some of those moments before you had a dx. It is helpful to know some of the things that happen years before. I am someone who writes off a lot the past few years...
Thank you so much for sharing this. It is much clearer for me and I realize whatever I am feeling is probably not a flare. It is very helpful for us new here to know this. I wonder what people felt...
When you get a flare what is it like. I know they are all different but can you descibe it? For the past few weeks I have had pain, extreme fatigue no energy to do anything except sit on the...
Hi Twin: I am in the place where the docs are trying to figure out what is going on. The girls here really know alot and this is a great place to come and ask questions. There are alot of people in...
Hi Thank you for the replys. Does the spinal tap tell them for sure yes or no if you have MS?...
Hi I was wondering if anyone has has this elevated in their bloodwork. I am getting B12 injections because the fatigue is beyond crazy and this has been linked to low B12. I do not have any energy...
hi I am not sure if you were on other meds before Avonex but it seems like most of the MS meds will give you one year free if you are just starting their med and have limited resources. Maybe you can...
Hi Do you have medicare? I heard that if you get shots in the doctors office the Avonex is covered under part B medicare.everything needs to be done in the Doc office once a week....
Hi I had the ANA test and just looked at it. It looks like mine took 4 days to report. I have not been dx but just thought you might want the info....
Hi kid: I am still in limbo but I just wanted to tell you that I read some positive things about starting treatment. I hope you have an easy time. Someone will be along soon to give you more...
Hi20 years; Down here in Florida there are a lot of those rollators and they look great to help keep balance. I am glad there is this forum to discuss things with others and get help too. Wow 20...
Hi please keep us posted to let us know how this helps you. i am going to ask my neuro for something tomorrow for fatigue. I really need something i can hardly stay awake. I took Prozac in the past...
Oh see gretchen is here. she is wonderful. I spaced out and didn't see her post....
hi Monique:you are in the right place. I am still trying to figure out what the heck is wrong with me too the doctor said the MRI looks like MS. The moderators here are very helpful and help everyone...
hi cathy, i was reading you posts from a couple of years ago and I could tell by hospitals you mentioned you are near where i live in florida. I was wondering how you made out with the docs and was...
hi 20 years; It must be so hard when you need to decide if it is time to break out the cane. I saw some of the girls talk about decorating theirs to make it unique. I live in Florida and see a lot of...
hi staciesmom; While you are going through your testing and need support you are in the right place. Gretchen and other users are very knowledgable and supportive and you can post all your questions...
Hi Wow that must have been hard. How do you feel today? I am new here and just wanted to say I am thinking of you. I am sure the others can give some input here....
Hi wow I know Summer is a hard time for most people. I live in Florida and it is hot hot hot. Whenever I have to go somewhere I hate to get out of the car and shut it off. This is the place to vent...
Hey Colee: How are you feeling? I am new here and was reading your post and was wondering how things are now?...
On this one there was a smily face in the middle of the checkerboard and for some reason it was making me laugh because it seemed like the smile was changing to a frown. so weird lol....
Has anyone gone to see any of the Doctors at Johns Hopkins in the process of searching for anwers or diagnosis of MS. If so please share the experience....
Wow Thank You everyone for sharing it really helps. So Gretchen is a teacher. I knew she was good at it. LOL...
Does anyone else have hearing problem in one ear. Is this common?...
I went for the BAER and they also did the vision test that you look at the checker board. So now I will wait a week for the results. I noticed that I have difficulty hearing slightly out of left ear....
woohoo sounds great. I will get one too. I also started using those swiffter pads. You can use one to do the whole place when you do it on a regular basis. At first they were expensive I thought but...
Hi How are you feeling now? I hope things have gotten a little better. I was wondering how long the fatigue was. Did you have it for years?...
Hi Heather: I am sorry you are having a hard time. The advice Gretchen gave is wonderful. She is Is the best and helps everyone here. Everyone here is really helpful. I am new but wanted to show some...
I hope you get through it as best you can. It must be so hard having to do that all the time. It would be great to take a pill. Maybe one day. A girl can hope....
I am having the Brain stem one Tuesday....
Take one day at a time. Be thankful you didn't throw anything it wouldn't have helped you get together. I think cutting back is a good idea but I also know it is hard and you are young. I know...
Thanks Gretchen: I will get them all onboard so they know about the MRI and workup. I guess what I was wondering about was the stress on the body having surgery or spinal injections. Right now I am...
When you go for this test do they give the results right away from the tech?...
Hey 20years: If you want to repley to someone when they ask you something just hit quick reply at the bottom. The person then has to go back and look when they read the posts. I have been reading...
Hi I had an accident and that is how it all began. I have herniated discs in my back and the ortho suggested going to a neurosurgeon about steroid injections /surgery eval. Ortho doesn't know the...
Thank You It was very informative....
Thank you Spikes I appreciate the support. I will continue to plug along next week and do some more tests another visual field and the Evoked Potential BAER. Meanwhile I will try to relax. I thnk I...
Hi Free: I am new to this too and was wondering how you are doing? What is going on now? I would like to hear from you. Did you get the MRI? I saw a website where you can get help....
Well I am glad that you are feeling better right now. Just thinking last year I was in Amsterdam and had a really relaxing time. Place is amazing....
WHOOPS I just broke a rule here. I just checked.I am sorry and it will not happen again....
Hey Casinokid: I am glad you are feeling better and able to enjoy your life. I read in another post you were talking about smoking. Does that help you symptoms? I read it does and curious?...
Hi I hope you feel better soon. I had something like that a while back. They finally gave me Clarinex and it worked....
Hi Just wanted to say hi and tell you your post made me chuckle. are you still sewing? I like to sew as well....
Gretchen: This is awesome. Thank You for sharing.You are a great teacher. This is especially helpful for us new to this. Little lessons at a time. When I try to teach something I sound like Charlie...
Hi Spikes: Thank You for helping. Anyone jump in here too. How do you know if the lesions are active? The MRI doesn't say how many lesions. The fatigue I have is overwhelming like hit by a truck and...
Gretchen: Thank you so much you are the best! I went to an Opthalmologist that the Neuro sent me to. He told me to return in one week for another visual field I didn't see the little lights and my...
Is the visual field problem ever one identified in MS?...
Hi John and everyone> I went to the eye doctor today and he said everything looks okay there. I had a visual field test that they want to repeat in one week. The lest eye didn't go well and he...