Is there anyone out there who is bed bound or totally incapacitated by FMS? Peace, Elizabeth...
Has anyone tried Tramadol and if so did it do any good, did you like it, hate it or what? Thanks, Elizabeth...
Thank you all for sharing your info. I really appreciate it. Hope all of you have a good day today!!! Peace, Elizabeth...
Hey ya'll, I would like to know if anyone has tried trigger point injections and or acupuncture and if so was it successful or not? Thanks! Elizabeth...
Hello everyone, I want to know if any of you are on HRT for peri/menopause and if it helps with Fibromyalgia or do most opt for anti depressant and or anti anxiety meds instead? Also, which anti...
Thanks to all of you for your input. I really appreciate it!!! Peace, Elizabeth...
Hello everyone, I have multiple questions and need any feedback I can get. I am 45, have had Fibro for 20 yrs. Managed acceptable quality of life until I hit perimenopause hard. Questions...Does...
Hello All, I'm curious to know for those who suffer with nasty trigger points, what therapy has or has not worked for you? Massage, injections, stretching etc. Thanks, Elizabeth...
Thank you for your input to all who responded!!!! Elizabeth...
Hello to all, When stretching and you feel pain in an area other than the muscle that you are stretching, do you back off immediately or do you continue the stretch to range of motion? Example:...
Thanks everyone!!!! I appreciate the advice!!! Elizabeth...
Hey ya'll, Does anyone have suggestions for how to watch tv or ride in the car without causing spasms in the neck? Take care all !!! Elizabeth...
Hello to all, Have not been on for a while as I have been dealing with a very nasty flare up and very nasty depression. Need to check with others and see if there is anyone who has lost the ability...
Thanks for the replies!!! My FMS has been progressive as well especially since beginning perimenopause. My ability to sing went first due to muscle weakness then my inability to talk and eat has...
Hi, my name is Elizabeth. I am new to this group but not new to FMS/CFS. I am generally on the MS post as I also have a progressive neuro muscular disease as well. Both for over 20 years. My question...
Thanks Gretchen!!!! I really appreciate your response. I am so glad for you that your diagnosis was quick. You are really fortunate!!!! :smile: Take care, Elizabeth...
I miss being the person I use to be. I miss my confidence, being fearless, my independence, my dreams, waking up each day excited to see what it would bring and sounds silly but, my old clothes. I...
Hey Speedy, I think you mentioned in one of your previous posts that you had not been diagnosed with MS until it was secondary progressive which was '95. But I see that you had MS since you were a...
Hey again ya'll, PS attorney dude, thanks so much for the compliment and right back atcha!!!! :smilewinkgrin: Speedy, I am sending you positive mental waves of support and sooooo hope all goes well...
Hey ya'll, Here is a short list, a very short list, of some of the things I do that help with my fatigue, weakness, spasticity, tremors, stress, etc. Would love to hear from others and get this...
Hey Speedy, Yes, the specialized, individual program is definitely the way to go!!!! Yes, for the most part my balance is pretty good. I am impressed with all that you can do...stair stepper, cross...
Hey Speedy!!! Thanks for all of the wonderful info!!! :yeah: Most of my yoga is completely stationary and I do not hold any poses due to pain. I find that just doing the pose without hold is plenty...
Hello fellow MSers!!! :turn: Has anyone out there had a high Antistreptolysin O Ab blood test without any strep/illness? Would appreciate any feedback!!!! Peace to all, Elizabeth...
Hey Med student!!! It can be very difficult doing the limbo thing and you really aren't going to get any answers until you see the neuro, but even then a dx could come very slowly. Best advice I can...
Speedy, I have not heard of that type of yoga breathing and will definitely check it out!!! Most appreciative of the suggestion. Do you do yoga as well or just yoga breathing? I do a very tailored...
Thanks Speedy!!!! I so appreciate all of your helpful info and will let you know how the Magnesium thing is working out. The spring weather here in NC is gorgeous and I have been able to get out a...
Speedy, There is nothing worse than someone who tries to slow a fast woman down!!! :smilewinkgrin: Tell that little devil husband there are many things he can touch, just not your tires!!!! :yeah:...
Hello all, I think irritability just comes with chronic illness. Sometimes we are very hard on ourselves and expect too much when we deal with so much and don't allow ourselves to be human. I am a...
Hi Speedy, I have not heard of Progurt but appreciate the info and I will definitely look it up and check it out!!!! Did not have good success with the Baclofen, had some nasty nerve jumpy problems...
Thanks Speedy!!!!! Your input is so helpful and I really appreciate all of your words of wisdom!!!! I am trying a very low dose of Baclofen today so please keep me in your thoughts for a good...
Thanks Gretchen!!!! The info was most helpful !!!! :smilewinkgrin: Take care, Elizabeth...
Gretchen, Thanks for responding. I am actually on my 3rd mouth guard from the dentist. I have been grinding for as long as I have had MS...18 years. The mouth guards help some for awhile and then I...
Hello to all!!! Wanted to see if anyone else has a problem with jaw clenching with nighttime spasticity? If so, any tips, suggestions, or words of encouragement would be greatly appreciated. A happy...
Hey ya'll, Anyone out there tried Diazepam for night time spasticity/RLS/and attempts at prima ballerina moves we do in our sleep!!!! If so, has it helped? I know Baclofen is usually the drug of...
Speedy, I am totally hanging on and can definitely feel the breeze blowing through my hair, thanks for taking me along for the ride!!! If I can help you with any of your issues, do not hesitate to...
Hey, Sorry I can't help with a referral as I live in NC but just wanted you to know I hope things get better. Sometimes you can find referrals through the web. Also, maybe try your local MS society...
Hey New Dude, Best advice, you need to see a Neurologist. You also need to know that you may not get a confirmed diagnosis right away so you need to be prepared for that. Try to relax, it takes time...
Thanks Gretchen and Speedy aka Popsie for your input. It is very helpful. Gretchen, I had a very high level of functioning like you for about 8 years in. I have never taken disease modifying drugs as...
Hi ya'll, Does anybody remember that from schoolhouse rock? I am interested in finding out about everyone's functional ability if you care to respond. After 18 years in with my MS, I can stand for...
Hi and welcome!!! I'm so glad that you are seeking out support and wish you all the best in your journey!!! :smilewinkgrin: Peace, Elizabeth...
Popsie, I am soooo glad that your pain is better!!! :smilewinkgrin: :smile: :smilewinkgrin: Thanks so much for all of your input, I am really enjoying talking with you!!! Take care Speedy!!! Elizabeth...
Good luck Candy!!!! I will be praying for you and your daughter during this time as you search for answers. Stay in touch and stay strong!!! Peace, Elizabeth...
Popsie, I am glad that you are enjoying my posts as I am enjoying posting!!!! :smilewinkgrin: I will definitely keep everyone abreast, no pun intended, on my menopausal journey. Here is the newest...
Hi Gary, I have had MS for 18 years and just started this past year with the MS hug. It can either be in my chest or in my ribs with or without pain. Very scary but eases if I try to relax into it. I...
Popsie, I will have to try the wet face cloth, it sounds helpful as well as a new trend in fashion statements!!!! :smile: My grandmother hot flashed until she passed at 74, so I knew genetically I...
Thanks everyone for the input. I do have a family history of breast and uterine cancer so I will be continuing the natural thing. Oddly enough after the original posting, I went to the gyno, had my...
Thanks Dave!!!! The disease still progresses but I am fortunate after 18 years that I can stand and walk some and only have to use the wheelchair for outings. It is so nice to not have to deal with...
Hey, I also live on the East coast and have noticed an increase in my symptoms, even though the heat is just starting here. If you are heat sensitive it doesn't take much! My MS hugs occur at the...
Gretchen, I am 44 and have been perimenopausal for 7 years hoping to be through very soon!!! I do not take HRT etc. and do have difficult symptoms. My hormonal imbalance has affected my MS. But I am...
Thanks Gretchen!!!! Your words were very insightful !!!! It is always helpful especially for those of us "longtimers" to be reminded how well we are doing during down times. It is so easy to lose...