When I was on that my Dr. told me it was a reaction and I had to come off of them so I agree you should call your Dr. Good luck and GOD bless....
I have been fighting this illness for almost 6 years and trying to live my life as normal as I can. Some reason my husband always finds everything I cant do and has got that into my kids heads and...
Its me LOST how is everyone doing hope good. I went 36 weeks on pheresis symptom free and now I am in a terrible flare like never before. Need help to vent anyone avalible??...
Thats all I have today. Hoping to chat with Gretchen I chatted with you when I first came here and would love to chat again as usual I am lost!!!!...
Hello I just wanted to say hello and see how you are doing. Hope everything is doing better. Lost and Lost...
Ok update the pherisis worked so far so good. Thinking of you all and wondering how everyone is doing. I hope to check here and see you all are doing good. For now thats all I have not much but an...
I am so sorry you are going through this confusion. I know the not knowing is hard. I am not a Dr by any means but I do have MS and I understand the tingling and the heat sensitivity. I hope they are...
I have started Plasma Pheresis ( spelling is not my strong suit) and the surgery to put in the cath. in my neck and chest SUCKED!! I am so uncomfortable all I can hope is it works. My first round was...
Well here I go again back to the Dr. cuz I am going blind. I think I am going to talk to him about coming off all meds and treatments and just being done. I want to give my body a chance to fight on...
Hi this is Lost and I want to give an update so far a little improvement not much but I will take it. Gretchen I don't know how to get in contact with you other than here so hope you let us know how...
P.S. consider the chat room here I get on sometimes its nice to have a live chat. Hope to chat sometime. God Bless Lost and Lost...
Yes I have had relationship troubles. Mine was my husband. He decided 3 years in to my illness and 5 years in to marriage to have an affair and said it was because he could no long deal with my MS....
I know I need to rest but its finding the time that I can't seem to do. I am so far not getting my vision back but still hopeful. I am truly grateful for finding you guys for support. Thank you it...
well I just finished my second run of three straight days of the solumedrol so now its a waiting game. Very tired I run from work to treatment to school and then to bed so I am totally done. Thank...
Thank you Gretchen for your kind words. God bless! Lost and Lost...
Thank you both for your kind words. Yes I do the IV solumedrol just did a three day round 2 weeks ago and it didn't help so I have another 3 days this week. It makes me feel so yuck and I can't take...
I would like to say to the father in law. I was diagnosed a year into my marriage and I honestly thought I was going to die. With a new husband and two children I was so lost I didn't know what to...
As said before it does get better and worse all at the same time sometimes. STAND BY YOUR PARTNER that is the one thing you can do to really make a difference. The one thing for me is I have a hard...
I am just lost how else can I say it. I am 28 years old and I have been diagnosed for 4 years now. I always have optic neuitis (can't spell) and now it is making it hard for me to drive safely. I...