Hi Lika, I am a 32 year old male with MS also. I have been on Ty now for almost 2 years, and have seen great improvements. Although as Gretchen did say, the PML is always a scare, actually a real...
Good luck with everything, sounds very scary and frustrating. We are thinking and praying for you!...
I just tested positive for celiac sprue? My pcp said its not 100% for sure yet, I have to meet with a gastro-something doc and get tested again in a little while to make sure. But I have to say, i...
Hey, welcome keds. I just wanted to let you know, I have serious fatigue also and take Provigil. just an fyi I don't know what kind of insurance you have but I'm on medicaid and they did not cover...
Thanks for the comments guys. I unfortunately haven't felt any better yet but I do have an appointment with my therapist on Wed. I agree with you Lildaisy, It is very hard to say that today is going...
Hi all, I haven't really been around for a little bit but some of you might remember that I'm getting a divorce, found out wife was cheating on me....anyways things haven't gotten any better for me....
What a small world.... Anyways I am doing a little better. I don't think about the whole thing as much, maybe it's because she has her little boyfriend. but the only thing i think that is really...
I am on it and doing well, I've had about 4 infusions and I seem to really be doing better. Good luck on whatever you chose....
Thanks guys I really appreciate it!...
Hi everyone, just wanted to check in and say that I am not liking life right now. I am going through a separation with my wife right now and actually went to the court house and filed for divorce...
I am on it and it is a life saver. If I don't take it I'll feel like I'm sleep walking all day.................great stuff...
Thanks, but it doesn't look that way. She is looking for a place to live and I am not really feeling very good. I know its the stress. I can feel my legs getting weaker and shaking more. I almost...
Thanks guy's, I'm trying very hard......
So my problems started the day I got my first infusion on Tysabri, I was one day out of the hospital from falling and getting a concussion. My wife and I were sitting there during the whole infusion,...
Hi all, I got my first Tysabri Infusion this month. I would have posted earlier this month when I got it done but its been really hectic around here.... Anyways, I am about 3 weeks into this and am...
Pepichar I've been on disability now for about a year and have never had any problems, I thought I saw a guy looking through binoculars once when I was taking the trash out but I was a little drugged...
Yea, I need to relax now and decide. It's to bad that Copaxone isn't working for me. The PLM or whatever that brain disease is from Tysabri is called kinda scares me a little. I guess I'll just have...
Got good new's this morning. The blood test for NMO came back Negative!!!! I feel so much better about it. Now the decision is what meds to switch to Tysabri or Rituxan. Oh well the prayers and...
Thanks guys I appreciate it!!...
Well, I went to a checkup with my Neuro yesterday. He has been in contact with a MS specialist who I am actually seeing tomorrow morning. Anyways my neuro said they are looking into this NMO or...
Well, I wanted to update everyone on my ON issues. Its been a few weeks now that I'm off the Steroids and my left eye is alot better. Not 100% but it's pretty good. I still have blurriness and a...
I also agree, exercise is very important. I own a really nice stationary bike and also a knockoff of the Bowflex. I have just recently strarted to ride the bike again for about 5-10 min. then I do...
I went to see my neuro today, and he is thinking about changing my therapy. Maybe to Tysabri or one other one that just got released, I can't remember the name. But I'm not sure how I feel about it,...
Thanks for the inspiration ms. daughter. I really need it about now. On Super Bowl Sunday, we had some friends over and their son was just getting over strep..... and guess who got it. Yea me, so I...
Thanks again everyone, your right when I think about my kids or look at them and get hugs and kisses from them, it all goes away temporarily. I'm now on my 2nd night of these steroids, and I almost...
Thanks everyone, I'm going to do my best at taking it one day at a time. But that is hard also, I have 2 wonderful children ages 4 and 2 and they always keep my running, And right now its hard...
So for the past week I have been noticing that my left eye was acting funny, I was basically having tunnel vision and it really sucked because I have ON in my right eye already. I went to the eye doc...
Hey Psoup, welcome to HW. There are alot of people here that know alot of stuff so don't ever feel discouraged to ask a ? Anyways I am on SSDI and it only took me 4 months to get approved. Way faster...
Hey Hockeymom, I know your getting lot's of feeback here so I"ll try not to repeat things you already heard. One thing is I filed back in Feb and was pretty much going in blind. I did come here for a...
Hey Barb, Just to let you know I'm thinking about you and hope you feel better soon and hopefully the lesions stay calm....
Cindy, I have read a handful of books, one in particular that I think everyone should have is "MS for Dummies". also another is "Facing the Cognitive Challenges of Multiple Sclerosis" by: Jeffrey N....
Kas, My story is almost identical to Katie's, my ON is in my right eye. I also thought something was wrong with my prescription. Went to get that checked out and they told me I had a large growth...
Hi Teresa, Sorry to hear your not doing well, I actually just got done with a 3 day infusion of Steroids. There not fun at all, never heard of the oral kind. I do know that I had to do a 5 day...
Gretchen Hey, I got some good news and some bad, the good news is that I've been taking my shot everyday since I last talked to you. The bad news is that I started having a flare during this time...
Gretchen, The party went good, pretty hectic for awhile, we had quite a few people here. Also about 10 little kids so you can imagine. Overall it went good, my son made out well, "spoiled rotten"...
Gretchen, That wasn't to long, you had a lot of good stuff in there. I agree, I should probably get into some kind of therapy, One big thing that I should tell you is that my father passed away from...
Gretchen, How long did it take you get over that slap in the face? I think another slap is when I take all my pills in the morning. That is actually a big one for me, I take about 5 prescriptions and...
I just took my shot Gretchen!!!!!!! That's a start....
Thanks Gretchen I'm not quite sure what the reason is, maybe a combination of a few. I know that the slap in the face thought is one of them. Maybe I also think that it is a inconvenience? Whatever...
I have been on Copaxone now for about 6 months after a switch from Betaseron. My question and concern is that I am getting pretty much sick of shooting myself up everyday that I have purposely...
Thanks Gretchen and Rhondab I agree, i am going to talk her into going to the doc with this. Although is will be very scary if that is the outcome, we both need to be strong or we will both be...
I keep thinking what if.......When my wife was pregnant with my son a little over 2 years ago, she had a total blackout in one of her eye's, I can't remember which one. It lasted for about three days...
Hey CasinoKid, I was on Provigil but kept getting really bad headaches. My doc thought this was from the Provigil so he switched me to Amantadine(not sure how to spell off hand) but this is different...
Well, i don't have to worry anymore about the insurance part, I got approved for some medical assistance called Badgercare here in WI, for the whole family. So now I can focus on my health and kids.....
Hey all, I haven't been posting in a while but I was checking in periodically. I just got some really good news yesterday, I was approved for benefits, even on my first try. This is great news seeing...
I am applying for SSDI now, my doc wants me to try and get approved, My leg is still pretty bad and I'm having undescribable fatigue. The Gabapentin is helping but not quit enough. They raised my...
Yea, pretty gross, How did you do that Sunny? I feel like a computer dummy!!!! just kidding....
Well I don't know how to put the link on here so you can just click on it....
I guess that didn't work the way I wanted http://www.madison.com/wsj/topstories/275998...
In Today's Wisconsin State Newspaper there is an article on a new study the UW is trying, it's a cocktail of worm eggs harvested from pigs.. Sounds good. They are starting the study next month. The...