A nice video on CCSVI. Touches on all parts of it. Untangling CCSVI from MS: The Stories, The Science, and the Need for Action http://www.youtube.com/watch?v=Jikh7O8nr_E ...
You can read about my procedure on my blog. http://mylifewms.blogspot.com/2011/02/plugged-in.html ...
Doing some reflection this week and wanted to stop in to say hi. Hope all is well with everyone. Have to say when you start adding up the years...wow. 4.5 years since my original DX. 2 years since my...
One year post CCSVi blog entry is up. What a great year!!!...
Just wanted to pass along a blog update. 7 months after CCSVI! Feeling great hope everyone is doing well. http://mylifewms.blogspot.com/...
Just wanted to pass this along. I was a die hard swanker(3 years) until I had my CCSVI surgery in Feb (BEST thing I ever did for my MS). I noticed some changes once the blood flow opened up and...
Best of luck to you. All types have seen improvements! Great site that ids tracking things from first hand reports. http://www.ccsvi-tracking.com/...
I am living proof. 4 months post op, all my symptoms but my optic neuritis are gone. Fatigue, cognitive, all of it.... I had a friend get treated last week and I quote. Two days after treatment....
Great video put up on CCSVI featuring my doc. http://directory.sirweb.org/videos/index.cfm?vid=SIR_CCSVI_5_5_11&title=CCSVI Doing awesome 3 months+ after surgery. Do yourself a favor and take a...
18 day review up on my blog. Thanks for the emails...
Added some videos and pics of my procedure on my CCSVI site. My blog will be updated sometime today with a link if you don't have it. If you aren't to squeamish check them out. Its amazing. Feeling...
If anyone is or has been treated please take a look at and participate in http://www.ccsvi-tracking.com/....
Please take a serious look at CCSVI. I was treated last Friday and my fatigue is gone. It was my worst symptom. If you are interested and want some resources to look over just ask....
Just put up my complete story. Feeling great! SO NICE to be clear headed and not have the fatigue. Especially in the morning. :) Best to everyone....
Hello all just wanted to let everyone know I made it back from NY. I am doing really REALLY good and keep seeing new things everyday...:D. I started writing my entire story up on the plane ride back...
It VERY unfortunate how close minded the neuro's are but it is taking MS people away from them and the meds so I guess it makes sense....
My surgery is 25 days off now. This report is from my friend who had his surgery last week. It's long but very detailed and very encouraging. I can't wait for my turn.....soon...very soon....
This is a very interesting article on FB. "Published online in Neurology, their findings were based on genomic analyses of more than 7,000 members of 1,055 families affected by MS. Ebers and...
Please look at the Swank Diet. It has been a huge help for me...and many others. http://www.swankmsdiet.org/About%20The%20Diet ...
For those of you following the CCSVI path you may find this very informative. The information is on Facebook. http://www.facebook.com/note.php?note_id=491605162210&id=110796282297 I heartily...
Thought some of you might find this an interesting read. I am not sure I agree with it all but portions I do. "After much controversy a considerable body of evidence now demonstrates a firm causal...
More news... http://www.examiner.com/multiple-sclerosis-in-lima/another-5-cases-of-pml-with-tysabri-multiple-sclerosis-patients ...
Yet another update.....makes you wonder http://www.nasdaq.com/aspx/company-news-story.aspx?storyid=200910261455dowjonesdjonline000329...
I have read a few articles about neuros in general and how hard it is for them to keep up. With the net patients are on top of things on a daily/hourly basis. Now being that your neuro has MS I am...
Somebody said is the default when using the quote feature here. Please read the article for the specifics and who wrote it. :wink:...
For those of you on FB you may find this and interesting read. http://www.facebook.com/note.php?note_id=159295534099954&id=120219874688668 ...
A bit technical but some great information and where things are heading. Very promising stuff..... http://www.youtube.com/watch?v=lqDrvNC7Oi8&feature=player_embedded#! ...
Best overall resource on the web is ccsvi.org. You will not be disappointed in your time spent researching it. :smilewinkgrin:...
We need MORE doctors like Dr. Martin Samuels. KUDOS to you good doctor!...
This is a 29 minute lecture that reviews MS, CCSVI, and the literature that supports the CCSVI concept.. May be a good reference for doctors and MS sufferers who have no background with CCSVI at all....
Unreal, how about 5 mil to research......... The rich get richer and we get nothing.........well I take that back we get something all right SUPPORT RESEARCH you idiots....NOT pharmaceuticals......
Its all coming together...it just seems like its taking forever. "Recognizing that venous interventions may potentially play an important role in treating some patients who suffer from multiple...
Biogen: 5 More Cases Of Brain Infection In Tysabri Patients http://www.foxbusiness.com/markets/2010/08/18/biogen-cases-brain-infection-tysabri-patients/ "The number of cases is important because if...
I have MS and sweat.......heat sensitivity is one of my BIG problems. Never really had gout....
2006.......:confused: "In conclusion, MS definitely shows many of the characteristics associated with vascular inflammatory phenomena, underscoring significant roles of the cerebral vascular system,...
Congrats to North Carolina and Charlotte for getting the word out!...
This one of if not the best CCSVI resource on the web. Dr. Haacke and others have done a tremendous job on getting this up and running. Congratulations. Pass it along! http://www.ccsvi.org/...
A friend of mine was liberated on Tuesday! I thougth some of you would be interested in her progress over the first 24-36 hours. I am just going to post her notes to me without any personal...
Sandfly, The Liberation treatment is Angioplasty. The CCSVI procedure is the SAME and carries the same dangers as ANY Angioplasty procedures. Its that simple. Certain portions of the medical industry...
Another bad report...please be careful with what you are taking. http://www.automatedtrader.net/real-time-dow-jones/5363/biogen-3-more-brain-infections--1-more-death-in-tysabri-users ...
Why, if people can be helped what's the problem? Oh yeah...money....:mad: Interesting to see the money trail and who gets what from whom..... Great read...
I have to laugh at all the Anti-CCSVi people saying the liberation procedure is dangerous and can kill you. Angioplasty has been around since the 1960's and is used EVERYDAY. It has all the same...
Send me an email and I will forward you some info on where to look....
Its unfortunate, such a simple and common place procedure. I believe CCSVI is and will be HUGE for those with MS. On my path to get the treatment! Should know my exact date VERY soon :)...
Hmm, after rereading this it has ALOT of false information....ughh... I guess it's a start but they should get their facts straight... :confused:...
Well after almost a year we finally have a major paper or news outlet reporting on CCSVI in the US. I really hope this is a turning point for us and they start educating people on the facts of CCSVI...
What a surprise (NOT) no coverage in the US Press. Go Buffalo, keep up the good work! http://ottawa.ctv.ca/servlet/an/local/CTVNews/20100628/ms-buffalo-ccsvi-study-100628/20100628/?hub=OttawaHome ...
A reminder what CCSVI has done....http://www.youtube.com/watch?v=KIs0JKOKX0A...
I can't tell you how mad this makes me and how poorly I now see the National MS societies. THey Will NEVER get another dime from me....
For anyone who uses supplements to aid in their lives please read this and sign. Pass it along. Stella Marie...