I know exactly what you are going threw! I have the same problem, and it just seems to be getting worse as time goes on. I have R/R, I think. But, when I talk to my Neurologist, he kinda laughts...
Fellow MSer's!!! What disease modifying drugs have you been on? Are you currently oin anything? What are the good and bad things you have expeirenced?...
good to know! I didn't know of any other oral medicine, thanks! My Neuro. never told me...
The new MS pill has been on the market for about 2 years now. It's called Gilenya. Is that what you are talking about? congrats on Tysabri!!!!!...
don't worry yourself just yet.. It does sound like you have some MS symptoms though. try not to stress out till you know what you are stressing over. Let us know what the results are, keep your head...
I went to my Dr. last week, he did a CBC and it was the first time, EVERYTHING came back good! Even my vitamin D was looking good. I don't really understand......
I waited about 3-5 months to get my DX. He said the same thing basically "time will show if I need to do more tests or not." MS is such a difficult DX, Since no one has the exact same sickness, it is...
Have you been to the Dr.?...
sometimes I have numbness in the face, but not as frequently as my speech has a slur, lisp, or really can't think of the words I'm trying to say. "cog fog" I call it. Similar to the "fibro fog", but...
When I lived in Las Vegas a few years ago, we had a Pit Bull named Koda. He wasn't a service dog, but he would let me put my hand on his back and walk with me. He was good like that, but I never...
Yes. I got the MS DX in 1999, and about 4 years ago I got a pain pump for all the pain I was having. About 2 years ago, I got the DX of Fibro. The pump has Bachlofen and Morphine running 24/7. Can...
Ever symptom when away, but it came back?...
I have both... My Brother has Crohn's. where you ever checked for that?...
I would have to agree with the ER Dr. A lot of the symptoms you stated, I have. If I were you, I would find out asap, the Neuro. would want to rule that out first so, I'm thinking 9/10 chances, an...
I don't know anything about the world of "Chropractoring", lol.. I have had a medical device put inside my body with a cathador that goes into my spine. I am so afarid something would get messed up,...
Glad to know I'm not the only one :-)...
I really can't add to much into this, neither one did me any good. My neuro. took my off Rebif also because my body couldn't handle the interferon. :-(...
similarities: Dizziness, nausea, pins and needles, constipaion, cold hands and feet, freezing episodes, lukewarm showers, back pain, feeling weird to walk... I hope the LP and the Neuro. gives you...
Has anyone started, stopped or is currently on 'Gilenya'? I have not tried this yet, but with so many bad side effects on the "ABC,R" drugs, I'm kinda nervous. Can anyone tell me about it from...
I live in Ohio now. My husband and I plan on moving back to Arizona for that reason! lol....
I have heard "more than 2", but I only heard that once..I didnt know their had to be a certain # to be honest. When I got the DX, all they said was, or he said was. "Well, you have MS"...
My person experience, I was giving an MS DX with just my MRI. MS can be such a difficult DX to get. I found out I had it since I was 19, but didn't get the DX Till 22. When do you go to your...
I have been told that Ohio, out of all the states in the USA has the most MSer's. Just wondering, where is everyone from? Me, I was born and raised in Ohio. After my "adult" years began I moved...
I don't use the sugar sub.'s for that reason! It has never happened to me but I was warned from a dr about it. Now When I go to my councler's office, she has a kerrig( did I spell that right?) I get...
I would address it to your Dr. again and if no results.... get a second opion. That is what I would do.... hope this helps...
I have a friend who is on Gilenya. She said that is working for her no problem. I am not an anything at the moment but I am thinking about taking the pill. Hope this helps :-)...
I was just wondering, are there any MSer's that do well in the heat but when it comes to the cold.. you are down.. Let me put it this way, in the summer heat I actually do better than in the cold. My...
Congratulations! It sounds like it works for you!...
I was told this when I waited for my DX, "it has to get worse, for it to get better" It's kinda of like trial and error sometimes.. Any news lately?...
Some symptoms sound like MS symptoms, but there are some that I have not experienced in my "Adventures with the MS in my life". I wish you the best of luck and I really hope you find an answer. MS is...
I would rather take a pill enem though the side effects are bad. When I was on Avonex, it was the most painfull, I always bruised and had problems walking with that leg for 3 days, I was so sick with...
Keep me updated after the Neurologist!...
I have an pump inside my body and a cath. or small tube runs the medicine directly into my spine. Bachlofen and Morphine.. I don't think this will work :-(...
I have never head of "butalbital", I guess, if you find something that works, stick with it. I understand about not having you past life, I was an STNS and as soon as I got the DX of MS, I was doing...
Strange, but every time I bring up LDN to my Neuro. he shoots it down. Can you tell me more about it?...
How is everything now?...
what is an o band? I have had MS for 13 years, Fibromyalgia for about 2. how are you feeling now? Have you been to see a dr?...
Shiller, how are you doing? The only things I can think of is, PLEASE, try not to phyc yourself out. Everything on the internet is not as true with everyone else, such as MS "it is like a snowflake,...
Hello Jennashere, How are you doing? What did the dr say, any news?...
If I am reading it correctly, your symptoms sound like what happened to me when I had a spinal tap for medication. Just wondering, has there been any changes with in you life? sometimes stress can...
gimp79, how is it going? Are you still on tysabri or did you go to the pill? @dietcoke I had no idea tysabri was used for Chrones, My brother just got DX with Chrones a few months ago. How are you...
When I had the crossing of eyes, dr's said it was "dip-lo-thia) I wore a patch and I could see fine. every day I would switch it to strengthen each eye. The eye muscles where being lazy. Even now...
I have had BAD tyhings happen when I was on Rebif and Avonex! I seemed to get worse, and I was down about 20 days out of 30 a month. My neuro tried taking my dose down the "beginer" again, but no...
My brother was DX with crohns 2 weeks after his birthday. Then on his birthday, we lost his insurance :-( I asked my Neuro. if it was related to My MS, he said that there is no way to tell... I'm...
I got my DX with just the MRI machine.. The neuro said there was a suginificent ammount and gave my my MS dx 11 years ago. I can't spell really well anymore so I try to sound it out when I'm...
I have had MS for about 13 years now. I live in Ohio now, I have lived in Nevada and Arizona. I am one MSer' that does very well in the heat but when it is cold, no go, and snow... hahahaha that's...