I agree with Gretchen--stress is a major trigger. I avoid stress at all costs as I immediately notice a worsening of my symptoms as soon as I feel it. Work stress and emotional stress are the worst,...
Scott, I don't care if my MS treatment was as stupid as which sock I put on first in the morning--if that treatment was successful for 9+ years, I would not stop it! Why mess with success? What if...
I truly hope your wife finds relief. The fact that she was considered healthy enough for this surgery says a lot. I'm 48 and that procedure sounds too scary for me. I can manage the TN pain now--I...
Yes, I have it. Mine is there full time--which I think is a blessing. Because it has been constant for the last 4 years, my brain has learned to block it out most of the time. Sometimes it gets...
It is cheapest if you can get your dr to prescribe it. From what I've seen, most docs will....
I would schedule an appointment with a neurologist. If it is MS, you should start some type of treatment. Just knowing what is wrong can relieve a lot of fear/stress. Sometimes MS patients even get...
Hoshie, I have allergic reactions to insect bites that cause me to lose consciousness. During one of these allergic reactions, an onlooker said it looked like I may have had a seizure--which led the...
I used to be on Cymbalta. I feel like I've been prescribed almost every drug out there, lol. However, if I do not notice an improvement after a few months, I stop taking it. Be careful coming off...
I was diagnosed in 2010. The sunburn you feel on your face...is it on one side or all over? I have a symptom called trigeminal neuralgia. It is a nerve pain that typically is felt on the right side...
Mischa, Please consider writing a review on that particular neurologist. This can usually be done by simply Googling the doctor's name. Typically there will be a site that will allow you to submit a...
Mischa, Ditto on everything Gretchen said. All I will add is that the spinal tap (aka lumbar procedure) was no where near as scary as others had made it out to be. I even had an intern do mine and...
Funky-Monkey, Don't give up hope! I was bedridden for 3 months due to severe vertigo. Vomited every day...lost 40 lbs. My vertigo was so bad that if I got up to go #2 I would puke from being upright...
I agree Cherie. When I was first diagnosed, I had over 40 lesions, but I was an extremely physically fit person. The AF let me stay in the service after my diagnosis--because I was still running...
I've had many neuros over the years and the one that was the best was the youngest of them all. MS is still not well understood. Hardly any MS patients have the exact same symptoms--so it is hard for...
Have you considered talking to a lawyer regarding your legal actions? I would think that any medical entity or health insurance entity that declared you "cured" and stopped treatment--only to see...
If the spinal tap is done by an experienced doctor, it only takes a few minutes and is relatively painless (note "relatively"--everyone feels pain differently). The first time I had one, they let an...
Voodoodoll, Just wondering...are you falling asleep in a position that restricts blood flow to your left arm? That could cause the "totally dead" feeling you describe....
I have had this my whole life. I don't feel cold during the day, but for some reason I sweat my butt off when I sleep. I often wake up drenched in sweat and will even have to change the bed sheets....
Mischa, I will tell you what I know personally. But as you know, MS affects everyone differently and there may be dissenting opinions, even on this board. When I got my first MRI, I had over 40...
Your neuro is a quack. Get a new one ASAP....
I agree--eating right, exercising, and reducing stress all make sense. I just can't bring myself to call those things "cures" for diseases. It gives people false hope....
The theory is not just for people who live in Northern Europe, but also those that have ancestors from there...i.e., it's a genetic factor. I would be interested in the studies of animals with the...
No one knows what causes MS, so if a doctor says otherwise, ask for proof. The prevailing opinion is it is genetic, although that has yet to be proven. That is why the prevailing demographic trend of...
I agree with Gretchen. I've had full body numbness for over 3 years now with no break. I also have burning/pins and needles sensation down the right side of my face and right arm--again, it is always...
Hounds, I've dealt with nystagmus for almost 3 years now and it sounds like you may be experiencing it too. Typically, there are some positions of the eye where everything is normal. In my case, my...
I was on copaxone but had a really bad episode in 2011. My neuro switched me to Tysabri. It is an infusion taken every 28 days. I've been on it for about 3 years now. I've had 2 small episodes in...
Like you mentioned, everyone with MS has different symptoms. Yours however, do not sound like MS to me. Good luck in getting a diagnosis. Not knowing is the worst!...
I took Ampyra for a couple of months. I didn't see any results so I stopped taking it....
Yes, that works for me. I live in Phoenix (yikes, it's hot) and I swim outside daily. I can only stand excessive heat for a short time. I make sure there is a/c everywhere I go!...
I avoid heat at all costs. I have a terrible time trying to cool down....
I agree with Gretchen--seek medical help. Call 911 if you feel suicidal. I've never experienced (or even heard of) noises coming from the jaw I'm but familiar with your other symptoms. I get spells...
I had a relapse in 2011 that kept me bedridden for three months (vertigo and muscle weakness). I lost about 40 lbs because I couldn't keep any food down. I was given three steroid treatments--they...
I've never heard of them either. My relapses cause me to pass out. For years the docs thought it was just an allergic reaction to bug bites. I even carried an epi pen for almost 10 years. Then...
I know nothing about Fibro so maybe those symptoms are common to it. Have they ruled out MS? I share many of your symptoms. I used to have an aversion to light but it went away about 3 months after...
Ha! I thought that happened to just me! I get it all the time--usually while lying down though. I never seem to have any additional symptoms...just the sound in my head....
Eat healthy (limit processed foods), reduce stress, and get lots of sleep. Exercise is good too. I swim because I get overheated doing most other things...and just being in the water seems to help me...
I don't think you need to be that precise. I think the drs tell you to take it at the same time everyday so it becomes part of your daily routine--so you don't forget. I'm no longer on Copaxone, but...
Agreed! If it were not for Gretchen, I would not post here. Thank you, Gretchen....
I warned you about the interns, lol! Sorry you had such a bad experience. If your neuro said they'd be doing it and didn't, I'd be throwing a fit. I'm no doctor, but I don't see how a CT scan can...
LeeAnn, We all have similar symptoms here so you're never alone here, LOL! Not knowing what is wrong is the worst feeling. No one here will attempt to diagnose you though...MS is hard enough for the...
BadDay, They are not as bad as they sound. The needle is so thin I didn't even feel it go in. I had an intern do mine and he couldn't find the right spot so he kept trying over and over again. Since...
I'd even bet she wanted to keep it free but got talked out of it by lawyers. Money corrupts....
Dr Wahls is a big reason I started the paleo diet. I saw a YouTube video about her before she started charging for her advice. Unfortunately now, it seems she is all about making a buck. When she...
I take 5,000 mg of vitamin D3 per day. Not sure how much it helps but it's cheap and I figure it cant hurt. All of my doctors felt it was worth taking. I also take calcium and magnesium supplements...
I quit mapping them after about one month, lol! I don't carry much fat so I think that is why I hated injecting in the stomach area. I'm sure I skipped a couple of stomach turns :) The shakiness in...
Voodoodoll, I'd like the Android App! I switched to Tysabri a couple years ago but I hated the abdominal injections when I was on Copaxone. I thought the thighs were the easiest. I also thought the...
Lori, My body does not tolerate extreme temperatures (hot or cold) but hot and humid is the worst for me--especially high humidity. Also, my trigeminal neuralgia makes me want to wear long sleeves...
One symptom of MS can be anorgasmy--the inability to orgasm. Even if he doesn't have full-blown anorgasmy, the nerve damage associated with MS can cause noticeable loss of sensation in various parts...
Voodoodoll, I don't know about urgent. MS meds are designed to help prevent future relapses, i.e., slow the disease down. They are not guaranteed to work by any means. Everyone progresses...
I was diagnosed at 43 but ignored symptoms/was misdiagnosed for almost 10 years. Once I had a brain MRI done--that showed multiple lesions in patterns consistent with MS, my official diagnosis only...