We are not doing steroids, thank goodness! However, they are pulling me out of work for a bit to get things to calm down. This will be a good test to see if work is triggering these symptoms. Thanks...
The MRI results are in, NO NEW LESIONS! woo hoo! I consider that to be a win. I've filled out the FMLA paperwork, just in case and I see the doctor again on Sept 2nd. However, I do expect them to...
Hi Gretchen, I had my MRI yesterday and the doctor wants to wait for those results before recommending a course of action, including steriods. So I'm in a waiting period at the moment. My Rebif nurse...
So, I had a 6 month follow up with neurologist yesterday (it is within the MS clinic). I've been feeling a little cruddy for several weeks, so it was good that I had the appointment already set up....
As Gretchen mentioned, it isn't unheard of to be diagnosed late. I was diagnosed at 46, just last year. I hope the neuro you see will help guide you and get you some answers. Don't forget to be your...
Thanks Gretchen! It feels good to be managing this disease, finally. I'm hopeful that I'll be able to continue the rebif and keep managing. I'm so thankful to the neurologist team who was so...
Hello all! Sorry I haven't been around much, work has been keeping me extremely busy but I wanted to give you all a quick update on how I'm doing. I had my 6 month MRI in February and no new lesions!...
The side effects aren't that bad. I really haven't had any. The only issue that I seem to be having is the injections on my thighs and stomach. Those really hurt and end up looking like bee stings...
Sorry that I haven't been around much, but work and the holidays have been keeping me very busy. That last round of roids did put the brakes on the flare but it took awhile. I still have the numbness...
A note would be nice! But I think my boss gets it, FINALLY! I took Thursday off and I'm only working a half day today. I've logged off, as it is just taking too long for me to form my thoughts and...
The nurse came again today, as yesterday's infusion took over 4 hours. After the 4th try, the line is in great and I'm dripping like a champ! LOL I just have to get through today and tomorrow and...
When the nurses come here, they set up a port and I'm able to do it on my one, which is great! As the infusion center is an hour away. The nurse who came yesterday was able to get a line in after the...
The nurse came to start my infusion of solumedrol and she couldn't get a vein :( She tried and tried and then I had an episode of some sort. It may have been an anxiety attack or low blood sugar. But...
Oh I don't think he'd change the meds so soon. He just wants to gauge if I'm in an active flare in December. He said there is no sense doing one now, as it is obvious that I'm in one :) I really do...
I had my follow up with the neurologist yesterday and yes, I'm in a very active flare. I didn't do so well on several of the neuro tests. I now have drop foot on the right side, to go with my numb...
I feel like a warrior! LOL I'll feel better about the Rebif once I have at least a week under belt so to speak, given what happened with me and the Copaxone. All was great until the 6th dose.... what...
LOL! Please send me the bill, I'll submit to the insurance company! Oh the knee thing happened years ago, back in 1996 from a work injury. I was tending bar at the time. I had surgery and it is all...
oh yes, I was certainly in a flare! The exhaustion the past couple of days was almost unbearable but I seem to be on the rebound. The doc with my knee was shocked that I didn't complain more. When he...
Well, I think I did have a flare. Not a terrible one but my balance has been more compromised than normal along with the vision issues. I'm working on it all, so don't worry. My facial numbness is...
hmmm, at my last appointment, the resident mentioned something about my eyes tracking abnormally and then when the doc came in and checked, he didn't see it. I'll bring it up when I go again. Thanks...
I don't think I have any symptoms of an impending flare, I certainly hope not anyway! I'm on week 2.5 of the Rebif and all seems to be going well. The only thing that I'm experiencing right now is...
I have had optic neuritis in the past, pretty severe but thankfully, the vision has returned mostly back to normal. I say mostly because of a couple of recent events. In the past week or so, there...
there is a spot on my face, left side near the eye socket that has been tingling since Saturday about an inch or so in circumference. Could this be an MS related issue or something else? It doesn't...
Thanks for the info, Bad Mojo. We have decided to give Rebif a try. The insurance approval process is underway and I should be up and running in about a week or so. We decided on the Rebif for...
Thank you.. I will take my time and figure this out. The doc did mention that doing a titration for the Copaxone could be an option but she was worried that I would just react again and we would have...
My neuro likes to give the information and let the patient make the choice. I have info on Betaseron, Rebif, Avonex, Tecfidera and Aubagio. So far, I'm not liking what I'm reading. I'm kind of...
I saw the neuro today and while it is rare, evidently, I'm allergic to Copaxone... back to researching different options... feeling let down....
Hi all, I'm hoping for some insights. Here's the summarized version: 8/2/14 - I was trained and started my Copaxone 20mg daily injections. Everything was great until 8/7/14. Previous to 8/7/14, I had...
Thank you for the Welcome and your experiences. I think it is just the unknown of the injections that has me a little freaked out but I do have a nurse coming to the house for training of the proper...
Hi all, I'm a 45 y/o female. In March, I had a bout with optic neuritis. I went from 20/20 vision to 20/70 in a matter of days. Brain and spine scans confirmed lesions in both. Fast forward to last...