Well, instead of the neuro switching me from Copaxone to Betaseron he wants me to take Gilenya. I can not swallow a pill--he is aware of this, but tells me it is a capsule & that I can break it...
Started Copaxone in March 2014...thought all was going okay, but had brain & cervical spine MRIs yesterday---neurologist just called & told me I have a new lesion on my midbrain...not active but...
Have you been to an eye specialist for the dots? I have pars planitis in both eyes (caused from the MS). I see a flash of white light in the outer corner of my left eye constantly---the lining of my...
I say "quickly" but at the time it seemed like an eternity to get the actual diagnosis. The numbness began in January & I didn't know each day how much worse the numbness was going to be or where it...
The only weird thing I had happen was probably 10 years ago or so my left side went completely numb out of nowhere...and I mean completely. When I touched my left arm with my right it felt like I was...
Zulily, I am diagnosed with multiple sclerosis & have some of the same symptoms as you (of course doesn't mean you also have it.) You mentioned a weak shaky feeling....mine feels more of a floaty...
My kids are both in their 20's so probably wont be outside "playing" lol. The only thing the doctors have found for me is the low vitamin D---otherwise i am perfectly healthy so they were very...
I've been taking 4000 daily for the last 3 months and mine went from 21 to 50 so I'm staying on the 4000 daily. I know they say Multiple Sclerosis isn't hereditary...but....they do say it's due to...
I did this survey & received the $10 Amazon card as promised....
I don't think so....sometimes I wake up on my stomach with my arms to my sides and the left arm is completely numb....
Thanks Bad Mojo...that's interesting. I'm not sure if I wake up because of needing all covers off or because I go to change position and my left arm is completely dead and can't control it. My left...
Does anyone else have problem of becoming hot while they sleep? I freeze all day & am cold when first get in bed but every night wake up hot and the numbness drastically increases on my left...
Saw retinal specialist again yesterday...now on 2 types of steroid drops for the inflammation in my left eye. Hopefully the drops calms everything down. She also upped my vitamin D supplements to...
They told me it was rare...so of course I have it LOL The retina specialist asked to have my Vitamin D level checked...so neuro finally requested the blood test. I previously asked about Vitamin D...
Anyone else out there have this?? A month ago I started seeing lots of floaters in my left eye & a periodic flash way out in my left peripheral vision. Went to regular eye dr & was told my vitreous...
I've been using Copaxone for a little over 4 months--I've had some big site injection reactions--especially in legs so stopped injecting there, but have never experienced the chills/fever that you...
i too had a horrible burn with 20mg but only in legs & arms..other spots were tolerable. i think the 40mg burns just as much if not a little more, but it's only 3 times a week which made it totally...
I'm 45 and the numbness just started out of nowhere on Jan 21st of this year. I went through heart tests first--all were fine. When I had a CT Scan done it showed the spot on my medulla which caused...
By both...do you mean both sides of your body?? But yes, my numbness is predominantly on the left side but travels to the right side while my left side is still numb. I have this problem mostly when...
Hi JadedLotus! I can't confirm or deny if you have MS from your symptoms, but I have been confirmed with MS & can share with you my symptoms. I have left side numbness--it is continuous since onset &...
I start my 40mg on Monday :) what is nuvigil for? i've been been on baclofen for the muscle stiffness..just started a 2nd dose so taking 10mg at breakfast & 10 mg at dinner. saw neuro this past...
I don't have the same pain in my arm now...I think the 3 days of a steroid I.V. in the hospital fixed that problem by making the active lesion on my medulla nonactive. I still feel pressure on my...
no, at first they thought it may be my heart b/c left side numbness & pain around my chest. I went through several tests for that but everything came back great...the cardiologist said my heart is...
I'm definitely no expert on MS because I was just diagnosed in February, but I have some of the same symptoms as you do. I have 2 lesions..at least as of my last MRIs--I get 2 more tomorrow. I have...
Gretchen, my neuro nurse called today & said my doctor approved switching me to the 40mg 3x week shots...they are supposedly contacting the pharmacy to switch my prescription to begin with my next...
I had pain in my chest & left upper arm when my symptoms began...they ran several tests on my heart to rule it out. Maybe that is why they are doing the chest CT scan? My heart tests all came back...
Okay :) thanks!...
I'm currently doing the daily 20mg injections of Copaxone but I'm extremely interested in changing to the 40mg 3x week. I've only been doing this one month but feel like I'm covered with lumps from...
Well it's good to know it's not just me lol....I called neurologist office again because knew they were going to close soon...was told if happens again & I think it's life threatening to go to...
Strangest thing happened today while at work...just sitting at desk & heard like a small spring breaking sound (boing) inside my head...instantly very dizzy for like 10 seconds then fine. Anyone had...
thanks for the info guys! and Gretchen, so far so good---I have already decided not to do shots in my thighs--way too much swelling & pain that lasts like 3-4 days. Everywhere else has been tolerable...
forgot to say that I do Copaxone 20 mg injections daily :)...
how strict are you guys about taking your shot at the same time each day? I have been doing mine at approx 8pm every night, but have plans this Saturday--is it a big deal to take it early one day?...
Well my thigh is officially my least favorite spot....swelled up about a 3" x 3" area after for about 3 hours...and hurt for about that long too :(...
Thanks! When I have my next MRI & follow up appt in May I will ask him again....
I keep reading on various sites of people taking vitamin D supplements & that it helps MS. I asked my neuro about it when diagnosed & he told me it has no effect on it. I don't even take a...
*flat....I should've proofread...lol...
I had a lumbar puncture while in hospital for a 3 day steroid I.v. I didn't think it was bad at all....had to lay on my side and curl in ball (like going to do a cannonball into the water)...my...
Thanks for the tips! My training nurse told me to put a weeks worth of shots in my bag & label the days of week on them so that's what I did so I don't forget if I did it or not :) did stomach...
did my left hip tonight...hurt about the same as my arm. I'm hoping to have at least one favorite area...the home nurse said the abdomen was the easiest/best place...but guess i'll find out tomorrow...
Did my training with the home nurse & did my first injection--used the auto inject b/c she was really pushing me to use it instead of doing manual. She said I need to set it at 6 for all locations....
Good! Thanks Gretchen...
I will be starting on 20mg Copaxone injections on the 25th...just wondering....anyone taking Copaxone have an impaired immune system because of it? Do you feel like you get sick more often that you...
I just received my 1st shipment of Copaxone 2 days ago. the home nurse just left for vacation, so she is scheduled to come train me on the 25th. so still in waiting mode......
That's hilarious! I guess if the auto-inject pen is free I'll take it just in case...but I have no desire to use it. I'll check out the low inflammation foods--as of right now coffee seems to be the...
I've watched the videos of how to give the shot..but hopefully a nurse eventually shows up to train me LOL. I also think I want to do it manually--as of right now the idea of the auto-inject scares...
Thanks Gretchen! I was told if I don't hear anything by Wednesday to call my neurologist's nurse again. I feel like I'm harassing them, but I just want to get started already :) I will keep you...
Thanks Frank :) yeah, i know the meds aren't a sure thing to slow things down. I guess I just don't like that they scared me with the urgent tests & diagnosis to do nothing now lol. I'd at least like...
So I first had left-side numbness on Jan 21st of this year...I have been through all the heart tests (all ruled out any heart trouble)...I've had a CT scan & 3 MRIs, tons of blood work, & a lumbar...