Hi Michelle. I am also suffering from constipation. It is so painful sometimes but fortunately with medicine and diet I eventually go at this point. My Neuro and I have discussed this many times and...
Wow 8 months seems like an awfully long time to be on Prednisone. I don't think I could handle that. The 1 week dose I go through during a flare is more than enough for me. Prednisone always causes...
What I can't for the life of me understand is WHY we have people from the LYME BOARD on the MS BOARD. What is it about the MS members that Lyme members don't trust? Do you think we WANT to dx people...
I had a neg LP but lesions were shown on the MRI in my brain and spinal chord. My VEP came back abnormal also. My neuro said that with all my symptoms, positive MRI and abnormal VEP that I was still...
I'm on Copaxone and the deciding factor for me was the lack of side effects. The only one I've had on Copaxone was a small amount of weight gain. And I mean only about 3 to 5 pounds. Christine...
Actually, it's pretty boring. I've done it 3 times for 2 brain surgeries. The first time I had one in the second day. The second time I was there 5 days and had not a single sz. I had to go back and...
I had neuro-psych testing done about 7 years ago when I had my first brain surgery. In my case they were testing my short term memory to get a baseline since my Temporal lobe was the area they were...
Oh I know this well. You described the feeling to a Tee. This is the reason I don't go anywhere w/o my crutches now. I would leave to go out and then in about 10 to 15 minutes of walking my legs felt...
Karen thanks so much for this post. I must say that when I read your post I couldn't have put it better myself. You were to the point and spoke on behalf of someone who HAS been there. Personally I...
Fortunately I'm on Copaxone and have very few side effects. All of the interferon side effects bothered me so I opted for Copaxone. I've not read anything about steroids preventing problems but I...
Your story reads like mine. I'm 35 and had my first GM at 1. I had a partial right temp lobectomy in 2001 and then a complete RTL in 2002. I'm still not controlled by any means but going from about 5...
Karen, well said. Michelle this is exactly what I worried would happen. People with firm dx's of MS will start to question their Dr's because of the fanaticism that seems to be surrounding this board...
It's the saddest thing to see her have one. The vet so far thinks that because they are predisposed to problems from the heat that they may be febrile sz's. I'm keeping my fingers crossed that she'll...
Hey Missy! I was gonna call you this morning and see how you are. I know you're crazy busy lately. Email me every so often though and give me an update. I love talking to your Mom but would like to...
You know Uppity, I completely agree. Lately this board seems like it's turned into the Lyme board instead. It's getting daunting to know that each newbie to the MS board will have a response or two...
Yes, I had the paralysis on my left side. In fact at the time my neuro thought it was a stroke. I had been put on blood thinners for a while. My MRI had shown lesions on my brain for sometime but my...
I agree with Keppra being the most tolerable as far as AED's go. I've been on these meds for a few decades and been on them all except for Felbatol and Keppra seems to have the least side effects. I...
I had alot of hair loss with Topomax. In fact I've had it with Keppra and Zonegran as well. Right now I'm on Keppra and am having some but not nearly the amount I had lost with Topomax....
What are the symptoms you're experiencing so we can get a better understanding of what you mean when you say you've been sick? There are many people on this board that can tell you it's taken them...
The heat totally wipes me out. So Cal doesn't usually have horrible heat but for some reason this summer has been miserable. 106 would put me on the ground. During our heat wave a few weeks ago I...
Thanks everyone for your thoughts on this. My bulldoggy will be happy to know that people care! I'm gonna talk to the vet about the meds and the diet. I don't want her to suffer and hopefully we'll...
Oh this means you DO still love me! Sorry I haven't popped in to check on you and Miss Daisy. You are both in my heart all the time. Christine...
Our family pooch has recently developed sz's. Our vet said that they are common in bulldogs especially if they are overheated which happens alot in them since their skulls are so thick. I've had sz's...
Uppity, what are the side effects of this med? I have bladder problems but I feel like I take so many meds between the Epilepsy and MS I don't want to add more med side effects. Going to the bathroom...
Hi everyone. Been so long since I've posted or even been on the forum. I hang out around the MS forum now. about 6 years ago I tried Keppra but had horrible itching right after starting it. My new...
Hi Shelley. You said you went to Loma Linda. That's sort of near where I live. I have personally had great experience with Kaiser for both my MS and Epilepsy. Let me know which one you're paneled to....
I am so glad you posted this cause I just had gotten off the phone with my Neuro's office and my Dr is referring me to PT. I'm having alot of ankle and general leg weakness that he thinks PT will...
Hi Rhonda thanks so much for the kind words. I have good feelings about this relapse not being like the first two. I begrudgingly admitted to my Neuro that MAYBE he was right about the steroids....
For me definitely. I have 3 girls, and as much as I love them, the volume in our house can only be gauged by NASA. Sometimes it's so much I can feel my stress level rise then my symptoms flare. I...
Good morning, Kimber, I agree the placards will be a big help now. My family has been on me for a while to get them but I resisted. I think now I realize that I can't be in denial. Jena1225, yes I am...
Hi everyone, I haven't posted in a while but have been here lurking. I have had my official 3rd flare. It started about 7 days ago and 3 days ago my Dr wanted to see me based on my sx's. Well after a...
Decisions, decisons. Hmmmmm, I think I vote for the Wedding Photo. I just love weddings! Christine...
I didn't care for Lyrica since it was so similar to Neurontin. I know that with Neurontin I had alot of food cravings and so I put on weight. With Lyrica I really didn't eat that much more but I...
You're such a sweetheart. I still haven't gotten that email from you though with the pictures. Just a friendly reminder /community/emoticons/smile.gif (((Hugs)))...
Hi! Sorry I haven't popped in and posted. I appreciate you checking in on me. That means so much to me. I'm still in a flare and still having sz's. I'm getting adjusted to life now as someone with...
Hi Ryan, I can completely understand what you're going through. I did elect to have the surgery. I actually had it twice. The first they removed part of my Temporal Lobe. When the sz's returned they...
Hi everyone. Well i've stopped taking the Lyrica. I would get these feelings of rage and that is a side effect I won't tolerate. The little DBG's don't deserve to be screamed at. It seemed to have...
Hi sweetie so sorry you're still sick. Like I said, pneumonia is a bad thing. Krista was sick for a while. Hope that you're better soon. The girls send you (((((((((Hugs)))))))))))) Christine...
Hi everyone. Last week I had about 10 cp's and as a result my Epi started me on a new aed called Lyrica. He said since it's new and so he doesn't have alot of input from his pt's yet. What i've read...
Hi Beth, your story could have been written by my Mom. She struggled for years with neuros and Dr's trying to convince them that I wasn't just "Daydreaming" and that there was something wrong. This...
Hi Sweetie, I don't blame you for lowering your dose on your own. I've done that myself before when my meds were obviously making me toxic. I really hope this does turn out to be nothing. You deserve...
My sweet friend, you worry too much /community/emoticons/smile.gif You've shown that with all you've been through, you'll come out successful. BTW, Jennifer- Tracy's already applied at CA hospitals...
Hi Frank, when I read Kaweah Delta I smiled cause I have alot of family that lives in Visalia and i've actually been to that hospital. As far as Kaiser is concerned, don't give up. I have Kaiser and...
Sorry about the recent diagnosis. Being diagnosed with Epilepsy as an adult can be very traumatic. I've had seizures since I was one and I feel like i'd rather have had sz's all my life than to have...
Hi Sunflower, ((Hugs)) Sometimes I actually feel fortunate to have had sz's since childhood cause I think it would be devastating to have Epilepsy dropped in your lap as an adult. I can say that time...
Hi Brad, sorry about what's going on. I always advise people not getting good care to seek out an Epileptologist. They are specialty neurologists and if there's a questionable diagnosis, one way or...
Sorry you're going through so much. I'm not surprised you're having a hard time with Disability since it's difficult to receive sometimes in cases of Epilepsy. What type of tests did the Dr put you...
Depakote doesn't have a good reputation as far as weight loss is concerned. Actually most people gain quite a bit of weight on it. I was on it about 15 years ago and i'm pretty thin. It took about 2...
Sorry about the sz's, I know how depressing it is to have sz's after surgery. It's been 2 years since my last surgery and I still count the days in between sz's hoping that maybe this month will be...
I seem to have more jerks at night than during the day. I don't know if they are fatigue related or not but they seem to be since they are more pronounced at night. I didn't know you were having...