Hi, I'm sorry that you are having such a tough time with the Avonex, I have been on it for about a year and a half now. did you know that you can get the needles in a smaller size? you can request...
I think I know what you mean, I describe it as my insides are vibrating and kinda buzzing. I only notice it when I'm trying to fall asleep or when I'm relaxing. Only part of my body that trembles is...
manama monster- I'm sorry your first dose was a horrible experience for you. I have been on Avonex since September (or October- I can't remember) of 2006. I can tell you that from my experience, the...
I haven't read the book, so I can't really comment too much on it. But, I was wondering, does it really suggest to just believe and think positivley about what you want(happiness and healthiness,etc)...
Okay, something very strange has been happening. Yesterday, I had what felt like a knot in between my rib cage. it hurt so bad it made me ill, when I got sick and even now when i sneeze i get a...
I have been taking Anonex for about a year now. I usually inject high up on my thigh as possible. I found the closer to the knee the more painful. Like you, there was hardly any pain the first couple...
There is alternative funding for people with no insurance or a high co-pay. I'm going through that right now. My co-pay tripled after a year. Avonex active source is trying to find funding for me,...
okay, I had my dr's appointment yesterday. He had said he could send in the paperwork to human resources for fmla or whatever it is that they have, or write out limitations for me to give to my...
I was pretty much in the same situation as you. evoked potential were borderline, mri showed lesions, tons of classic ms symptoms. I was put on avonex, before I had the lumbar puncture. It did come...
thank you for all the information, its been a great help. I have a doctors appointment Friday so I will speak to him and see what (if anything) I should do....
I have been trying to get a fmla form from my employer to keep on file at work. From what I understand and maybe I'm incorrect, It is to protect me from when or if I have to take time off. I have...
thank you for the quick response. I thought arthritis causes swelling and distortion in the joints. so I wasnt sure if it was that or a tendon....
I have been having pain above my knee on and off for years, usually it only hurt when I bent down or stood back up. But the pain seems to be getting worse and it hurts even when I move it, last night...
Thanks for the reply, no I'm not on any steriods or anything like that. As for the painting, thats what I thought too...
Does any one on Avonex have trouble with acne? I have been batteling it for a couple of years, but have always been able to keep it under control. I don't know if it's a coincidence or not, but since...
I haven't posted much lately, but I keep up on the posts daily. I had an appointment with my neuro today. I told him about all my new symptoms and he scheduled me another mri on Friday. He also...
shashi-I'm sorry this is happening to you but I'm glad I'm not alone. That is almost exactly what is going on with my left eye (my symptoms are mosly on my left). I have several "stationary floaters"...
If I remember correctly, you are on avonex? I'm so glad its getting easier for you! I've been on it for about 4 months now. usually its doesnt hurt when i give myself the shot, but I still get...
Thank you for your input, it has been very helpful. Uppity, thank you for the clear explaination, I was confused with how avonex effected the immune system. Jen...
I have heard that treatment for ms lowers your immune system, making ms patients more seceptable to illnesses. I haven't found any documentation on it though. I know it's probably a silly question,...
Sometimes when I'm laying down,I can't feel my legs. I don't know if my legs are straight or crossed untill I look. Thankfully it doesn't usually last too long. i constantly have numb spots on my...
I've been on avonex for 3 months now. I had horrible side effects from the first shot, I was so cold that I was shaking really bad, body aches, All the classic symptoms. But every week the symptoms...
Sometimes when I put my elbow on the table I get a shock from my elbow to my hand, and when I grab ahold of something a certain way i get shocks through my fingers. I'm assuming it's hitting a nerve...
I was tested positve for lesions on mri, positive evp, negative lp. neurologist still believes its ms. i have been on avonex for 2 and a half months. Is it typical for one side to be affected more...
last Sunday i started getting what feels like charlie horses in my legs. 3 in one leg and 2 in the other. This is friday and I still have them, and a few more appeared. it gets worse when I stand up...
Around the time when I was experiencing the 1st symptoms of ms I had a pain in the bottom of my foot that felt like i was standing on a hard ball. I even took off my shoe to see if there was swelling...
uppity explained it perfectly. I've had 4 avonex injections so far. the side effects are more of a problem then the shot itself. but each time the effects seems to get less. just make sure you take a...
mesea, I have been taking avonex for a month now. Believe me when I say that the pain from the shots is nothing. i had/have a huge fear of needles, so I didn't think that I could do it. I had someone...
Pegleg, I needed a quick meal tonight since it's trick or treat, so I made the potato soup. OMG it is sooo good, I couldn't stop eating it. Thanks for the recipee I know I'll be making it alot. I...
shashi, when I first started getting symptoms i thought i had fibromyalgia. they are very similiar to ms. You may want to look into that, also you might want to check out candida and chronic fatigue...
I'm sorry for all of you who are suffering from migrains and tmj. I get headaches all the time-migrains, sinus, hormonal -everything seems to end in a headache. a couple of years ago I was having...
When i had the revoked potential done, the tech who did it said the results would be in that day. but it was almost two weeks before they were written up and the doctor read them. Good luck with the...
shashi, I had a Lp a couple of weeks ago. I too, thought that I had a flare after it. But I was was so scared that I think the stress caused it. I'm glad everything went well and you get the answers...
I'm sorry, i'm not sure if you mean because of the ms itself or because of the medication? i just started avonex and was asking my case manager about vaccines and other meds. clinical trails...
There is vestibular therapy that is suppose to help with the dizziness. The exercises do make you very dizzy but the idea is that your body will get use to it and learn to balance yourself out. I...
I had my friend give me the injection yesterday(she gives shots to her sons so she knows what she is doing). A nurse is coming this friday to train me. I didn't even feel the injection at all. But I...
I talked to the doctors office today. He is sticking with his ms dx and still wants me to start the avonex. My first injection is going to be friday. Thanks for all the information you all provided...
Thanks for the input. I'm just going to go by what the doctor told me. I'm surprised at myself for letting someone else get me so upset. hopefully I can talk to him personally tomorrow so he can...
Thank you for the advice. I have every intention of starting the avonex, especially since he prescribed it before I even had the lumbar done. I'm just very upset that she jumped to that conclusion...
the avonex they said that he did give me a definate dx. I have a 90 day supply coming in the mail tomorrow. At that same appointment he also scheduled me for a lumbar puncture which I had done on...
I just wanted to let you all know that I got the LP today and everything was fine. it wasn't nearly as bad as what I thought it would be. The injection for the novicain was worse then the procedure....
Well, after doing my research on avonex and talking to the representive, I decided to go ahead with it so I just now got off the phone with my doctor, they are going to get it set up for me with my...
I get alot of pain in my legs too. I feel pins and needles (it's subsididing some with the cooler weather) sometimes it feels like a big band is tightning around them,and they hurt soo bad expecially...
I'm from Lorain too, small world,huh? I don't know if we can mention dr names on the message boards or not, you are more than welcome to email me...
I know of a few people who went there and loved it. I was and still am considering going myself, but my neuro is on the ms society refered list (along with the mellen center). So I'm going to wait...
wow, that was harsh lol. like I said , i'm call the avonex hotline tomorrow and will get the answers I need, it will probably put my mind at ease, If so will call my doctor about what I need to do to...
what all you said does make sense to me. thank you for clarifing(sic) about the lp, it make me feel better about getting it done. As for waiting untill after the holidays it was because of the...
I do have insurance on prescript ions, although lately its been a nightmare to find a precription that they cover. They changed their formulary lists and now just about everything is non-fumulary...
Thank you for the advice. I did look at the mss website in fact I called them and found a chapter somewhat in my area and they sent me some info. I'm going to call the avonex number on Monday. I'm...
This is the first one, and hopefully the last. Uppity, thank you for your explaination. my eng showed likely that my problems where coming from the central nerve system, mri showed "several lesions"...