I use lyrica and baclofen. For me it seemed like relieving the muscle spasms helped relieve the nerve pain. I use baclofen during the day and lyrica in the evenings. That way I'm not spacey at...
any change it's tic delaroux? Trigeminal neuralgia?...
I stopped drinking. #1 sugar (I was drinking red wine) and #2 concern for my liver. Figured rebif and lyrica was chewing it up enough. I've had one glass in the last month. As for diet, I've cleaned...
I have pins and needles in my feet and legs. Can't stand to wear shoes. Or have anything touching them. Not exactly daggers but uncomfortable. Are you using neurontin or lyrica?...
http://www.mymultiplesclerosis.co.uk/prokarin.html Prokarin is another alternative medication that the drug companies won't mess with. Not enough money involved. Google Elaine deLack. Look at the...
I tolerated the 22 mcg of Rebif fairly well but wasn't on it for very long before they bumped it up to the 44 mcg. You might want to try it at the lesser dose, just to see. I'm already questioning...
Just as each individual experiences different symptoms with MS so each individual experiences CRABs differently. That said, my own experience included increase in pain with shot, where was dependent...
Zoe, did your doctor do a lumbar puncture? And you've had MRIs?...
Gretch, you're right about LDN and interferon. I stopped taking Rebif for a week, then started on copaxone primarily for that reason. It can be taken with LDN and histamine therapies. I'm hoping to...
"La Vera Chapel had planned to get her 15th Elvis tattoo this year, until she was diagnosed with multiple sclerosis. She already has "the three stages of Elvis - '56, '68 and '73" tattooed on her...
I told my sister who is a nurse. She told my folks. They live in another state. The first thing my mother said was "Tell her to get tested for sugar (diabetes). Then she suggest that maybe I had...
If you go to the thisisms web site you will find people there talking about experiences with minocycline....
The paperwork I received with the copaxone shows most of the areas you recommended. Not the inside of thighs. Are you moving the shot to one of the seven areas each day and not using any area two...
Sativex is an oromucosal (mouth) spray developed by the UK company GW Pharmaceuticals for multiple sclerosis patients, who can use it to alleviate neuropathic pain and spasticity. Sativex is distinct...
I am taking the bilberry, two at a time about three times a day. I think it helps. My neuro suggested I take 5mg of baclofen twice during the day. It seems to help with the burning as well. I still...
I take lyrica which was developed specifically for diabetic neuropathy. There are other meds used for nerve pain, most of them are anti-depressants you take at bedtime. My thoughts are with you....
Thanks! I live in southeast Michigan. i looked on line and found one D.O. in my area. And I think I know a kinesiologist who does this kind of work. I will also ask the massage therapist I work with...
who does this type of treatment?...
I've got an appt with neuro on Monday. But he won't prescribe meds. I'll have to see my pcp in order to switch to the neurontin. I really don't want to take anything that's going to make me sleepy or...
I've been taking lyrica 100 mg twice daily. It's not working well. What meds are available? I know of neurontin. Any others? I need to switch to something that will help. I can't stand much more of...
Anyone on this? Or heard of it? Or tried it in the past?...
Thanks KIMC. I'm not giving up my interferon. Just adding something into the mix. Homeopahy has been considered "real" by Europeans for many years. I do massage therapy and chiropractics. The...
Has anyone tried homeopathic healing? i went to see a practitioner yesterday and was surprised at the results. She's saying I've got lead poisoning, cox sackie virus, and Hepatitis C as well as dog...
I get almost immediate reactions to the Rebif injection. It feels like electrical current. Now I've noticed that where I get the feelings depends upon where I injected. Buttocks means legs, now...
I was diagnosed in December 06, a month before I turned 55. I've been told by several doctors that this should work in my favor, that the MS probably won't progress to the point of total disability....
I use lyrica instead of gabapentine. It is for nerve pain and was developed specifically for diabetic neuropathy. It isn't an anti-depressant....
Thanks for the advice. I never know whether to write off a pain as MS related or not. I had a thorough eye exam a couple of months ago and the doctor said he didn't see anything that would have...
On 3 or 4 occasions now I've had a fleeting pain in my right eye, almost like something metal flew into my eye. Comes and goes really quickly. Is this something I need to worry about?...
I use lyrica. It works to keep the "buzzing"/pain down. But I still get the hyper sensitive skin. It does feel like a sun burn on the back of my knees. sometimes my face feels like I have a facial...
what kind of modifications to your diet did you make? Do you "juice"? I try to keep track of what I eat and any reactions I get. Can't do chocolate. Or beer! So I do the 4Fs: fresh Fruits, Fresh...
I understand your feelings of loss. I was diagnosed a couple of days before Christmas 2006. I'm on rebif. I hate taking the shots. I think we experience all the stages of grief. I'm facing my own...
I'm just wondering if you also looked into H-wave. I tried one of their machines. Electrodes hooked up to various parts of your body and then electrical current running into the muscles, making them...
I've been on lyrica for just over a year and Rebif since January. I've gained twenty pounds in that same time. I can't stand it. I don't overeat and I try to watch what I do eat. Does anyone have any...
I agree about the Dr. Phil Show. He used the segment on MS to sell a book by an author with MS. That's all well and good but I don't think anyone can too much understanding about MS from it. I read...
I've made an appointment with a counselor. I worked with her a couple of years ago, before I knew I had MS. She popped into my head when this started. When I first met her I noticed that she had an...
Tonight Dr. Phil has a guest on who has MS. I know that recently Montel did a show on dealing with MS. I usually hear about the shows after the fact. I'd love it if we could keep each other informed...
You are seeing a counselor? Did you look for someone who specializes in treating those with illness or pain? I just thought about a counselor I dealt with a few years ago. She was probably in her...
It's been a little over a year since my M.S. started. I was diagnosed in Dec 06. I work full time. I hope to continue to work, even though there are times when it is difficult. My office is a small...
my doctor prescribed amatadine with the caveat "It probably won't work." I guess I have to take it for awhile before they can prescribe provigil. I've been having mood swings and a lot of depression....
I just want to say that I agree with everything said. The Tomb of the Unknown Soldier inspires many sad thoughts for me. I spent twenty years in the United States Air Force. During my last year on...
I've felt something like that, not quite as severe, just below my ribs. when I had what turned out to be my first exacerbation the "hug" was what was unbearable. It went away after weeks of...
Any time I receive an invitation I explain "Right now I'd say yes, I'd love to do that, but when the actual time and date comes I'll have to wait and see. I continue to plan a very busy life for...
I'm on Rebif and I used the autoinjector twice - it bruised both times, so forget it. I use ice on the site to be injected, both before and after. I use buttocks and abdoment only. Of all the...
I had the nerve conduction test and an EMG done early on. I just remember the needle sticks on the right side hurt like hell and on the left I felt absolutely nothing. Never did get a satisfactory...
My first MRI showed a lesion on T8-T10. My symptoms were lower body. Then they did an MRI of the brain. The neurologist said had I not been experiencing symptoms in my face and hands he would have...
Having children makes any type of illness all the more difficult. I was diagnosed in December '06. My son is 19. He lives at home, goes to community college, works. He's still too young to be out on...
I made an appt for Monday morning to see the neurologist. I also have an appt with the VA neuro clinic in two weks. In the meantime I'm going to try benadryl and aleve and increase my lyrica. I need...
My neurologist is still out of town.The nurse said I should go to the emergency room. But my primary's nurse says she doesn't know what they will do for me and "doctor" can't comment because he just...
What I'm finding with the food diary is that I am much more aware of what I am putting into my mouth. I'm going to have to write it down. If I don't I'm only lying to myself. I am noticing a definite...
Howdy folks. Another rough day but making it. I called my neurologist's office. His nurse called back. He's out of town but she will mention me to the doctor covering for him. Nurse Nancy (not...