Hi Lindz, I have been on Tysabri for more than three years, and I just completed my 41st infusion the day before Thanksgiving. Even though I was one of the MS patients that testified (via videotape)...
Hi everyone, I do not have Crohn's disease but I do have Multiple Sclerosis and have been on Tysabri therapy for over a year now. Acne and a skin rash are both listed as side effects and/or allergic...
Hi everyone, just thought I'd stop by and drop off a link where you can read the CD testimonies of the following patients: Melissa Arnett, Dr. Doug Wolf and Dr. Bruce Sands (both...
Hi s5599, Am so happy for you! My MS has been stable for over a year, no relapses and no disease progression, thank God. While it is understandable that there are patients who are afraid of Tysabri,...
Hi everyone, it's been awhile since I've been back to the Healing Well forums. I don't have Crohn's disease, but I have Multiple Sclerosis, and I have had 16 Tysabri infusions thus far. I thought you...
You neurologist might ask for a spinal tap when trying to diagnose MS, as MRIs can sometimes be clean and show no lesions at the time that the MRIs taken. If he does ask for a spinal tap, he'll...
What should you root for? Gosh, for your test to be negative? I really don't know honey, but I'm keeping you in my prayers... Lauren...
Oh good Zoe (<---smiling), I'm so glad to hear that your heat wave is finally breaking. Still in triple digits out here (through the weekend and next week too). Ah well, it can't stay hot forever...
Hi Stace... I'm not a doctor, but the dizziness and nausea you are feeling could quite possibly be "hypersensitivity reactions/infusion-related reactions", and are listed on the Tysabri Patient...
I am having my 10th Tysabri infusion tomorrow, and have had zero side effects...in fact - over 12,500 MS patients have received Tysabri to date with no cases of PML being reported. Also, a MS patient...
Yep, I'll bet it does make her feel a whole lot better not be injecting the interferon anymore... it is my understanding that they are adding approximately 300 patients a week to the Touch program...
Apparently, it seems to be causing your MS to flareup was well... sounds like you might need a cooling vest, a cooling scarve, and cooling wristbands as well. They really do help when the heat and...
Yes of course I have, I would be remiss to say that I haven't, but out of the approximate 13,000 patients that have currently received Tysabri, and from the hundreds that have written to me...
I happen to agree with uppitycats, as LDN is not FDA approved for MS and needs to be in a controlled study group....as I said before, it works for some and not for others. What concerns me most...
This is a typical insurance ploy Shar, as they are trying to avoid paying for this efficious drug... the "government" is Medicare, and Medicare pays 100% for Tysabri under part D (drug prescription)...
t's quite alright Zoe, if you don't ask - you won't know, right? I don't mind sharing my personal experiences with this MonSter (unfortunately, I have a lot of experience-LOL). Don't ever be afraid...
Hi Zoe and Shar, Both of you take your time reading all the info that you can regarding Tysabri. I hope you both had a wonderful holiday. :-) Zoe, you ask, "do you have no use of your legs at all?...
I had no idea that Tysabri can actually improve your existing symptoms (if not permanent). Do you know how it does that? Remember, I'm not a doctor (even though some people think I play one on...
My post was not meant to scare anyone, it was to help pedidiva's BIL that is undergoing blood tests for antibodies to Tysabri... they need to test as to whether or not the antibodies are transient or...
Hi there pedidiva, :-) If your BIL is being tested for antibodies, hopefully his neurologist knows that these antibodies may be transient and will disappear with continued dosing of Tysabri. He...
The website http://www.mspatientsforchoice.org/ is an all volunteer non-sponsored website that was starting by MS patients (and most of its members testified at the FDA Tysabri hearings). It's a very...
If you ask how Tysabri is helping me now, I am severely disabled now since I had a severe relapse in June 2005 which left me wheelchair-bound and the damage might be permanent, but Tysabri has now...
Hi everyone! :smile: I don't have Crohn's disease, but I have had MS for 31 plus years and I will be receiving my 10th Tysabri infusion on July 11th. Since both MS and CD are autoimmune diseases...
Hi Zoe! I have had nine Tysabri infusions since October '06, with my 10th infusion scheduled for July 11. I also testified before the FDA AC on March 7, 2006 (via videotape) in a combined effort with...