I had a vaginal fistula and a rectal fistula but the 2 of them never connected. Now from what I have learned about the retrovaginal fistula is that stool can pass through your vagina and even gas....
It depends on your Crohn's some people have constipation so they need to eat more fiber...Those who have food flying through there system need to eat very little fiber....
I have Crohn's and my first big flare hit me when I was 32. I was on disability for about 3 months recoverying from my surgery. I have been remission ever since and that has been over 5 years ago! I...
I had a colectomy 4 years ago and life has been great ever since! I was 32 at the time and the main hurdle was self image issues but afer a few months I couldn't imagine not having my ostomy. Here's...
I came accross his video on Crohn's disease which was creaed wihthe nation's top GI doctors. I am consantly looking for stuff that my doctor (Dr. Rubin) has done. This is a great education series on...
Hi Tara! Here are some great webcasts on online: To hear paient stories: www.crohnsandme.com Crohn’s Disease-Patient Education-3 web casts on Crohn's Disease Drs. Stephen B. Hanauer and David T....
Hi...sorry I forgot supply the links...by the way I just got my first tattoo...it's a semi colon! Ostomy Handbook http://www.ostomy.evansville.net/ostomyhandbook.htm great ostomy video:...
One more thing I recently started to work for my GI doctor and I can tell you they do not get kick backs for prescribing certain meds...that is against so not only rules but there are laws in plave...
Hi! I hate to bring bad news but I have dealt with disablity myself and I have learned that if you refuse the treatment that you doctor suggests they then can not fill out your disability form due to...
Here's a link that discusses UC and Crohn's in China...It's an abstract from the Journal of Gastroenterology & Hepatology Management Consensus of Inflammatory Bowel Disease for the Asia-Pacific...
Hi Paul! Here's a link to a great ostomy handbook: http://www.ostomy.evansville.net/ostomyhandbook.htm It's a bit of a transition until your j-pouch surgery. But here's a great j-pouch website:...
I had my meeting with my doctors and they loved the list of items-so the next step is to make it work! Thank you!...
Thank you all what great suggestions and I will take it into my meeting today and let you all know how it goes!...
My doctors have done work on this and one recently spent several weeks in China so I hope I'm representing them correctly! UC and Crohn's are diseases of developed nations. Initially as a counrty...
Hi Brie! Welcome to HealingWell! I was your age 10 years ago when my troubles started and had very similar feelings. I'm now involved with a local youth group of crohn's and ulcerative colitis...
It happens to me too.....I tend to withdraw from people and I realize I need to get out there or else I will go into a deeper funk....
If they won't pay you may they can donate to a local organization in your name such as the CCFA or loacl support group, or sponsor a patient education event at you local hospital where they bring in...
Thanks! I'm really enjoying it and feel very blessed with the opportunity. When the website is up I will post it!...
I live in Chicago-lower westside...
I'm going to go see a play on Halloween-BUT I have to tell you all about my first every tattoo that i got 3 weeks ago. I had my colon removed 4 years ago and I wanted something to symbolize my...
Okay everyone I need your help! I have Crohn's, I have an ostomy, and now I work for my doctor and surgeon and I have a fun project to do-A hospital patient cart of goodies. Basically they used to...
HI! I have Crohn's and I had an emergency surgery 4 years ago which removed my entire colon when I was 32 years old. I strongly recommend that if you are going to go into surgery that it's done you...
I have an ileostomy and I agree with the low fiber diet too! I was told to stay away from high fiber because not only can it cause a blow out but it will push food through your system too fast and...
marshmellows always work for me! Bananas too!...
Hi All! Sorry I have been a bit absent lately from the boards. I am glad to say that it's not illness related! I've been working a ton, volunteering on various projects, and just started going to a...
Hi all! Who’s all signed up? I’ll be at the University of Chicago’s table in between sessions so stop by and say hello! I just wanted to drop a line to let you know if you still want to go to the...
Please review the forum rules 16. No duplicate posts. ], You posted the same mesasage in several forums. Also, please review rule #4....
bump...
Eva, With a j-pouch they use a bit of the colon (2 centimeters) as a cuff to connect to the rectum that's why I say the j-pouch is not a cure. And check up are needed every 3 years. The illeostomy...
I had a boss who's cell phone was in his back pocket and when he dropped his pants the phone fell out and went into the toilet!...
There's a great site with message board dedicated to the j-pouch surgery: http://j-pouch.org/groupee/forums I have crohn's and had my colon removed 3 years ago and I live with an illeostomy. Since...
My first time at University of Chicago I was actually transferred in from a suburban hospital. So I had all my testing while I was a patient in the hospital so I didn't go in to the system the...
PS if you didn't like him I cannot stress how much I LOVED Dr. Kane.....her specialty is IBD and the female patient....
I realize it is a bit of a hassle but when going to a teaching hospital one should expect having to repeat oneself to fellows or residents and then the doctor. I go to University of Chicago and I...
I love aerosoles!...
Hey Lisa- Will know by next week if I can go to Springfield....can you believe the conference is just a little over a week away?...
Hi Zoey, I really recommend trying the remicade first surgery should always be the last option. Your surgeon is even saying give remicade a chance first. Remicade has shown in many cases to knock...
Hey Theresa- Has your surgery been set yet? Erica...
I sorry forgot to add my note but these are all the sights UC and Crohn's that I am aware of- I hope this helps! Erica...
CrohnniesChat http://www.tinkertech.net/crohns/message.htm Crohn's Zone http://www.crohnszone.org/ ivillage.com www.ivillage.com CarePlace http://ibd.careplace.com United Ostomy...
Lisa, how the registration going....do you have anyone from chicago that I could tag along with? Is David going?...
If hope you will be able to make it!...
Hi Lisa, How's the registration going so far...
anyone else?...
I would call your doctor and ask him what he means by pre-treat. I had to take prednisone 10-12 hours before to avoid an allergic reaction....